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Getting in contact with someone

Katie0711
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Katie0711 Newbie
Katie0711
Posted

Are there other ways to get in contact with someone who has used this forum in the past?  I found another mother posting about her son who has the very same specific bizarre symptoms as my own son.   I have not been able to find the same symptoms anywhere else on the internet.  She was posting back in 2010 and was only active for 1 month. Her son did not have confirmed celiac and I don’t think it was his diagnosis. It’s not my son’s diagnosis either and I’m trying to find answers.  I have sent her a private message on the forum but she hasn’t been on since 2010. Will she get notified in her email about my message? Or is there another way to contact her?

 

thank you!

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trents Grand Master
trents
Posted

Besides the PM tool, there is no other way. The forum PM tool would send a notification to her private email on file with the forum that you tried to contact her.

knitty kitty Grand Master
knitty kitty
Posted

@Katie0711,

Welcome to the forum!

You could post your son's symptoms in this thread and let us know which post you found with similar symptoms.  Someone currently active may be able to help.  

Best wishes.

Scott Adams Grand Master
Scott Adams
Posted

Yes, I recommend creating a new post on the forum describing your son's symptoms. 

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    • Ann13
      Inhaler problem

      By Ann13 · Posted

      Not everyone will be allergic to whatever they're using in food. There is another forum re people who are posting they have vocal cord & throat issues after they eat breads & pastas which stopped after they removed those foods from their diets. Same as me...gluten doesn't react as gastrointestinal it reacts orally. Which is why I'm saying ensure all your food isn't what you're having a reaction to.  ...& I used Cornflakes as an example because some gluten free people would assume it's gluten free but if they're allergic to barley they will have a reaction...nothing to do with their inhaler.  You're missing my points a lot & frustrating so I'm done commenting. You really need to ensure your...
    • trents
      Inhaler problem

      By trents · Posted

      I certainly agree with all that. However, you also mentioned cornflakes with barley malt but that would obviously not be gluten free since barley is a gluten-containing grain. And the chemicals they spray on grains would affect everyone, not just those with gluten disorders. I'm just trying to figure out what this thread has to do with the main subject this online community is focused on. Is the point of this thread that having a gluten disorder makes someone more susceptible to reacting adversely to inhalers? That could be but it may have nothing to do with the inhaler having gluten. It could have to do with, say, having higher systemic yeast counts because the celiac community...
    • Ann13
      Inhaler problem

      By Ann13 · Posted

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    • trents
      Inhaler problem

      By trents · Posted

      There could be other reasons you are reacting to the inhalers. There is no concrete evidence to believe they contain gluten. Anecdotal experiences can be misleading do not establish fact.
    • trents
      Inhaler problem

      By trents · Posted

      Are you saying you believe there is gluten in the inhaler products? I mean you talk a lot about reacting to foods that are supposed to be gluten free but this thread is about inhalers. 
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