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Newly diagnosed Celiac and trying to deal with the symptoms


Bran81

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Bran81 Newbie

For the most part I have been doing very good on maintaining a gluten free diet but recently I ingested a small amount and now I am experiencing taste issues. Does anyone know how to regain your taste back? 


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cristiana Veteran
(edited)

Hello Bran and welcome to the forum.

The strange thing about coeliac disease is that people react to glutening in so many different ways.   Some people know they have been glutened because they get gastric issues.  Others find their symptoms are neurological - twitching, tingling and numbness, for example. Some individuals get both.  YetI have one friend who hasn't a clue if she's been glutened or not - there is no reaction at all.

Returning to your issue, I am not a doctor but it could well be that your loss of taste ticks the 'neurological' box.  

Your system will take time to recover - some find it takes a few days, others a bit longer, before they feel right again.  I attach a link below with some great tips on what to do if you have been accidentally glutened.

However, it is just possible that your glutening has coincided with a virus, and not even necessarily COVID.  My grandmother temporarily lost her sense of smell and taste many many years ago for a time and from memory the doctors put it down to a virus.  

As I say, am not a doctor - I think I might give it a few days, then speak to one if it carried on for much longer.  I saw an item on the news where patients were helped when they had temporarily lost their sense of smell or taste, can't quite remember which, through COVID, and it really helped them regain what they had lost.  I think the treatment involved exposure to strong flavours or smells first.  Sorry can't quite remember what it involved, but basically it helped.  

Do come back to us if we can help further.

Cristiana

 

 

Edited by cristiana
Scott Adams Grand Master

I agree and wonder if you may have gotten covid-19 recently, as loss of taste would not be a typical symptom of celiac disease.

knitty kitty Grand Master

Zinc deficiency causes loss of smell and taste.  

Our immune systems use lots of zinc, add to that malabsorption of vitamins and minerals...

You can try a zinc supplement.  Talk to your doctor about boosting your absorption by supplementing while healing.

https://ods.od.nih.gov/factsheets/Zinc-HealthProfessional/#h8

The Effectiveness of Zinc Supplementation in Taste Disorder Treatment: A Systematic Review and Meta-Analysis of Randomized Controlled Trials

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10017214/

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      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
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