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Digestive Issue?


Ginger38

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Ginger38 Rising Star

Sorry if this is too much information but I wanted to see if anyone on here has any insight, I seem to be having issues digesting foods. It’s like it just comes right out in my poo. If I eat pizza or spaghetti sauce it’s like I have diarrhea and it’s like I’m just pooping out the sauce. If I eat salad it comes out like I haven’t chewed it. Those are just a few examples. Is this common in celiac? 


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Scott Adams Grand Master

Yes, this can be common in celiac disease. Is your diet 100% gluten-free? How long have you been gluten-free? When you consume gluten, it can damage the lining of your small intestine, leading to malabsorption of nutrients and causing symptoms like diarrhea and undigested food in your stool. To me it sounds like your intestinal damage hasn't healed.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

Ginger38 Rising Star

Thank you for this information! This opens my eyes to a lot. My last antibody test was still positive and I am thinking if I remember correctly that is also an indicator of gluten ingestion and intestinal damage , is that correct??
have been on this roller coaster  of trying to be gluten free 100% of the time for several years now. Unfortunately I don’t seem to be doing the best with the diet as I keep getting glutened or making the wrong choices. 
I noticed this issue I posted about and it has been pretty severe again , and thought it might have something to do with celiac and gluten and intestinal damage which is why I posted. I do have trouble with eggs as well as corn for sure along with the other things I mentioned. 
how long are we talking for healing or even beginning to heal and is there anyway to speed up the  healing process?? And reduce this miserable belly I have? 

knitty kitty Grand Master
(edited)

I found following the Autoimmune Protocol Diet the best thing for me.  The AIP diet has you remove all the foods from ones diet that can be irritating to the gastrointestinal tract.  Eating those non-irritating foods for several weeks allows the intestines to heal, then other foods are slowly reintroduced.  Find baseline foods that your body can tolerate, allow healing time, then add in other foods slowly to make sure there's not a reaction.  

I also chose low histamine foods.  Some foods contain more histamine than others.  Histamine is produced by the body when there's inflammation.  So high histamine foods and high histamine from inflammation can overwhelm our body and make us sick.  Eating low histamine foods allows time for the body to clear that histamine, heal the intestines and lower inflammation.  No eating out.  No processed packaged foods.  Restaurant foods and processed foods are high histamine, too.

The AIP diet recommends Bone Broth and Fermented Foods (like sauerkraut and kefir, but these are very high in histamine, so I avoided them).  I also avoid nightshades (tomatoes, potatoes, peppers and eggplant) because they cause leaky gut syndrome.  

I also took vitamins and minerals because the gluten free diet can be low in essential nutrients.  A B Complex, Benfotiamine, minerals like calcium, magnesium and zinc are important.  Benfotiamine Thiamine Vitamin B1 is especially helpful in healing the intestinal system.  

The AIP diet cuts out many carbohydrates.  This starves out the SIBO bacteria that causes a big bloated belly.  

Sounds really restricted and severe, I know, but I figure six weeks on the AIP diet is better than six weeks recovery from major surgery.  The mental shift to thinking "this food is my medicine" is helpful.  

Hope this helps!

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

 

Edited by knitty kitty
Add link
Scott Adams Grand Master
5 hours ago, Ginger38 said:

Thank you for this information! This opens my eyes to a lot. My last antibody test was still positive and I am thinking if I remember correctly that is also an indicator of gluten ingestion and intestinal damage , is that correct??
have been on this roller coaster  of trying to be gluten free 100% of the time for several years now. Unfortunately I don’t seem to be doing the best with the diet as I keep getting glutened or making the wrong choices. 
I noticed this issue I posted about and it has been pretty severe again , and thought it might have something to do with celiac and gluten and intestinal damage which is why I posted. I do have trouble with eggs as well as corn for sure along with the other things I mentioned. 
how long are we talking for healing or even beginning to heal and is there anyway to speed up the  healing process?? And reduce this miserable belly I have? 

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

Ginger38 Rising Star
25 minutes ago, Scott Adams said:

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

tTg-IgA

Ginger38 Rising Star
6 hours ago, Scott Adams said:

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

Is there anything to do to speed up the healing process or reduce this miserable gluten belly I have? I can’t eat much of anything right now 


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Scott Adams Grand Master

This article, and the comments below it, may be helpful:

 

 

Ginger38 Rising Star
On 6/5/2024 at 4:29 PM, knitty kitty said:

I found following the Autoimmune Protocol Diet the best thing for me.  The AIP diet has you remove all the foods from ones diet that can be irritating to the gastrointestinal tract.  Eating those non-irritating foods for several weeks allows the intestines to heal, then other foods are slowly reintroduced.  Find baseline foods that your body can tolerate, allow healing time, then add in other foods slowly to make sure there's not a reaction.  

I also chose low histamine foods.  Some foods contain more histamine than others.  Histamine is produced by the body when there's inflammation.  So high histamine foods and high histamine from inflammation can overwhelm our body and make us sick.  Eating low histamine foods allows time for the body to clear that histamine, heal the intestines and lower inflammation.  No eating out.  No processed packaged foods.  Restaurant foods and processed foods are high histamine, too.

The AIP diet recommends Bone Broth and Fermented Foods (like sauerkraut and kefir, but these are very high in histamine, so I avoided them).  I also avoid nightshades (tomatoes, potatoes, peppers and eggplant) because they cause leaky gut syndrome.  

I also took vitamins and minerals because the gluten free diet can be low in essential nutrients.  A B Complex, Benfotiamine, minerals like calcium, magnesium and zinc are important.  Benfotiamine Thiamine Vitamin B1 is especially helpful in healing the intestinal system.  

The AIP diet cuts out many carbohydrates.  This starves out the SIBO bacteria that causes a big bloated belly.  

Sounds really restricted and severe, I know, but I figure six weeks on the AIP diet is better than six weeks recovery from major surgery.  The mental shift to thinking "this food is my medicine" is helpful.  

Hope this helps!

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

 

Thank you so much! I recently did an intolerance and sensitivity test

4 hours ago, Scott Adams said:

This article, and the comments below it, may be helpful:

 

 

Thank you so much! I will read that when I get the chance. I recently did an intolerance and sensitivity test. 
I also purchased some gliadin x. Is that something I can take to help right now? 

Scott Adams Grand Master

So as a disclaimer, GliadinX is a sponsor here, but this is not why I post about the product. I think anyone with gluten sensitivity issues, including celiac disease, should, at the very least, be taking 1-2 capsules before any meal that they eat outside their homes--for sure this would mean before eating all restaurant food. Whether or not they take it at home is dependent on their personal situation and sensitivity, and what foods they decide to include in their diet (for example some celiacs do eat foods that are made in a facility shared with wheat).

  • 1 month later...
Ginger38 Rising Star
On 6/7/2024 at 2:27 PM, Scott Adams said:

So as a disclaimer, GliadinX is a sponsor here, but this is not why I post about the product. I think anyone with gluten sensitivity issues, including celiac disease, should, at the very least, be taking 1-2 capsules before any meal that they eat outside their homes--for sure this would mean before eating all restaurant food. Whether or not they take it at home is dependent on their personal situation and sensitivity, and what foods they decide to include in their diet (for example some celiacs do eat foods that are made in a facility shared with wheat).

What is the difference in the GliadinX and like Gluten Cutter? There is a substantial difference in cost so I’m just curious , thanks! I have ordered some of the GliadinX to start using as you mentioned 

Scott Adams Grand Master

As far as I can tell Gluten Cutter doesn't contain the key AN-PEP enzyme, which had undergone a considerable amount of research which has been published that shows that it actually does break down gluten in the stomach. 

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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    • trents
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    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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