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Digestive Issue?


Ginger38

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Ginger38 Rising Star

Sorry if this is too much information but I wanted to see if anyone on here has any insight, I seem to be having issues digesting foods. It’s like it just comes right out in my poo. If I eat pizza or spaghetti sauce it’s like I have diarrhea and it’s like I’m just pooping out the sauce. If I eat salad it comes out like I haven’t chewed it. Those are just a few examples. Is this common in celiac? 


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Scott Adams Grand Master

Yes, this can be common in celiac disease. Is your diet 100% gluten-free? How long have you been gluten-free? When you consume gluten, it can damage the lining of your small intestine, leading to malabsorption of nutrients and causing symptoms like diarrhea and undigested food in your stool. To me it sounds like your intestinal damage hasn't healed.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

Ginger38 Rising Star

Thank you for this information! This opens my eyes to a lot. My last antibody test was still positive and I am thinking if I remember correctly that is also an indicator of gluten ingestion and intestinal damage , is that correct??
have been on this roller coaster  of trying to be gluten free 100% of the time for several years now. Unfortunately I don’t seem to be doing the best with the diet as I keep getting glutened or making the wrong choices. 
I noticed this issue I posted about and it has been pretty severe again , and thought it might have something to do with celiac and gluten and intestinal damage which is why I posted. I do have trouble with eggs as well as corn for sure along with the other things I mentioned. 
how long are we talking for healing or even beginning to heal and is there anyway to speed up the  healing process?? And reduce this miserable belly I have? 

knitty kitty Grand Master
(edited)

I found following the Autoimmune Protocol Diet the best thing for me.  The AIP diet has you remove all the foods from ones diet that can be irritating to the gastrointestinal tract.  Eating those non-irritating foods for several weeks allows the intestines to heal, then other foods are slowly reintroduced.  Find baseline foods that your body can tolerate, allow healing time, then add in other foods slowly to make sure there's not a reaction.  

I also chose low histamine foods.  Some foods contain more histamine than others.  Histamine is produced by the body when there's inflammation.  So high histamine foods and high histamine from inflammation can overwhelm our body and make us sick.  Eating low histamine foods allows time for the body to clear that histamine, heal the intestines and lower inflammation.  No eating out.  No processed packaged foods.  Restaurant foods and processed foods are high histamine, too.

The AIP diet recommends Bone Broth and Fermented Foods (like sauerkraut and kefir, but these are very high in histamine, so I avoided them).  I also avoid nightshades (tomatoes, potatoes, peppers and eggplant) because they cause leaky gut syndrome.  

I also took vitamins and minerals because the gluten free diet can be low in essential nutrients.  A B Complex, Benfotiamine, minerals like calcium, magnesium and zinc are important.  Benfotiamine Thiamine Vitamin B1 is especially helpful in healing the intestinal system.  

The AIP diet cuts out many carbohydrates.  This starves out the SIBO bacteria that causes a big bloated belly.  

Sounds really restricted and severe, I know, but I figure six weeks on the AIP diet is better than six weeks recovery from major surgery.  The mental shift to thinking "this food is my medicine" is helpful.  

Hope this helps!

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

 

Edited by knitty kitty
Add link
Scott Adams Grand Master
5 hours ago, Ginger38 said:

Thank you for this information! This opens my eyes to a lot. My last antibody test was still positive and I am thinking if I remember correctly that is also an indicator of gluten ingestion and intestinal damage , is that correct??
have been on this roller coaster  of trying to be gluten free 100% of the time for several years now. Unfortunately I don’t seem to be doing the best with the diet as I keep getting glutened or making the wrong choices. 
I noticed this issue I posted about and it has been pretty severe again , and thought it might have something to do with celiac and gluten and intestinal damage which is why I posted. I do have trouble with eggs as well as corn for sure along with the other things I mentioned. 
how long are we talking for healing or even beginning to heal and is there anyway to speed up the  healing process?? And reduce this miserable belly I have? 

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

Ginger38 Rising Star
25 minutes ago, Scott Adams said:

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

tTg-IgA

Ginger38 Rising Star
6 hours ago, Scott Adams said:

Yes, studies show a strong correlation between tissue transglutaminase antibodies (tTg-IgA) levels and villi damage in celiac disease. Higher tTg-IgA levels typically indicate more severe intestinal damage and inflammation, reflecting the extent of villous atrophy. You didn't mention which antibody test you had.

Is there anything to do to speed up the healing process or reduce this miserable gluten belly I have? I can’t eat much of anything right now 


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Scott Adams Grand Master

This article, and the comments below it, may be helpful:

 

 

Ginger38 Rising Star
On 6/5/2024 at 4:29 PM, knitty kitty said:

I found following the Autoimmune Protocol Diet the best thing for me.  The AIP diet has you remove all the foods from ones diet that can be irritating to the gastrointestinal tract.  Eating those non-irritating foods for several weeks allows the intestines to heal, then other foods are slowly reintroduced.  Find baseline foods that your body can tolerate, allow healing time, then add in other foods slowly to make sure there's not a reaction.  

I also chose low histamine foods.  Some foods contain more histamine than others.  Histamine is produced by the body when there's inflammation.  So high histamine foods and high histamine from inflammation can overwhelm our body and make us sick.  Eating low histamine foods allows time for the body to clear that histamine, heal the intestines and lower inflammation.  No eating out.  No processed packaged foods.  Restaurant foods and processed foods are high histamine, too.

The AIP diet recommends Bone Broth and Fermented Foods (like sauerkraut and kefir, but these are very high in histamine, so I avoided them).  I also avoid nightshades (tomatoes, potatoes, peppers and eggplant) because they cause leaky gut syndrome.  

I also took vitamins and minerals because the gluten free diet can be low in essential nutrients.  A B Complex, Benfotiamine, minerals like calcium, magnesium and zinc are important.  Benfotiamine Thiamine Vitamin B1 is especially helpful in healing the intestinal system.  

The AIP diet cuts out many carbohydrates.  This starves out the SIBO bacteria that causes a big bloated belly.  

Sounds really restricted and severe, I know, but I figure six weeks on the AIP diet is better than six weeks recovery from major surgery.  The mental shift to thinking "this food is my medicine" is helpful.  

Hope this helps!

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

 

Thank you so much! I recently did an intolerance and sensitivity test

4 hours ago, Scott Adams said:

This article, and the comments below it, may be helpful:

 

 

Thank you so much! I will read that when I get the chance. I recently did an intolerance and sensitivity test. 
I also purchased some gliadin x. Is that something I can take to help right now? 

Scott Adams Grand Master

So as a disclaimer, GliadinX is a sponsor here, but this is not why I post about the product. I think anyone with gluten sensitivity issues, including celiac disease, should, at the very least, be taking 1-2 capsules before any meal that they eat outside their homes--for sure this would mean before eating all restaurant food. Whether or not they take it at home is dependent on their personal situation and sensitivity, and what foods they decide to include in their diet (for example some celiacs do eat foods that are made in a facility shared with wheat).

  • 1 month later...
Ginger38 Rising Star
On 6/7/2024 at 2:27 PM, Scott Adams said:

So as a disclaimer, GliadinX is a sponsor here, but this is not why I post about the product. I think anyone with gluten sensitivity issues, including celiac disease, should, at the very least, be taking 1-2 capsules before any meal that they eat outside their homes--for sure this would mean before eating all restaurant food. Whether or not they take it at home is dependent on their personal situation and sensitivity, and what foods they decide to include in their diet (for example some celiacs do eat foods that are made in a facility shared with wheat).

What is the difference in the GliadinX and like Gluten Cutter? There is a substantial difference in cost so I’m just curious , thanks! I have ordered some of the GliadinX to start using as you mentioned 

Scott Adams Grand Master

As far as I can tell Gluten Cutter doesn't contain the key AN-PEP enzyme, which had undergone a considerable amount of research which has been published that shows that it actually does break down gluten in the stomach. 

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    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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