Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fatigue?


Jessica Hoffman

Recommended Posts

Jessica Hoffman Newbie

Hi all,

I had been struggling for years with stomach pain and bloating. I was just diagnosed 2 months ago with Celiac. I’ve completely changed my diet and even stopped going out to eat to avoid being “glutened.” My stomach pains and bloating are gone, but for some reason I am extremely tired. Do any of you struggle with fatigue? What should I eat/take to help with it? I drink tons of water and exercise daily. Thank you for any advice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran
(edited)

Hello @Jessica Hoffman and welcome to the forum

It is possible you are suffering from vitamin and mineral deficiencies - were any levels checked? If so, I wonder what your Iron and B12 levels are like, as being deficient in either could make you very tired.  Of course, two other reasons for fatigue are Thyroid issues and also diabetes.  Have you had tests for these?

One other possibility - do you think you might have had COVID recently? A friend of mine has and it has left her feeling very tired indeed.

Cristiana

Edited by cristiana
knitty kitty Grand Master

Welcome to the forum!

Newly diagnosed are usually low in B vitamins.  Fatigue can be caused by being low in some of the B vitamins.  The B vitamins are water soluble, so you may be inadvertently flushing them out of your system by drinking "tons" of water.

Athletes and people who exercise frequently have higher requirements for Thiamine Vitamin B1.  

The effects of endurance training and thiamine supplementation on anti-fatigue during exercise

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4241913/

A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10542023/

Thiamine deficiency disorders: a clinical perspective

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8451766/

 

Thiamine helps recover from Covid.

Evaluation of thiamine as adjunctive therapy in COVID-19 critically ill patients: a two-center propensity score matched study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8242279/

trents Grand Master

Jessica, gluten free flour products are not required to be fortified with vitamins as are their wheat counterparts. So, when you eliminate wheat products from your diet, you automatically are likely reducing vitamin input into your diet. And if you have been living with undiagnosed celiac disease for some years you are likely to be already experiencing vitamin and mineral deficiencies. We routinely recommend newly diagnosed celiacs to begin taking high potency vitamin and mineral supplementation including B12, a high-potency B-complex, 5-10k IU of D3, Magnesium glycinate and zinc. Make sure all are gluten free. Costco is a good place to shop.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,562
    • Most Online (within 30 mins)
      7,748

    Tazzy11
    Newest Member
    Tazzy11
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • TerryinCO
      They've not made that call at this point. They say it looks more like Celiac's than common variable immune deficiency.  They say to get a positive diagnosis another endoscopy is needed after I've been on gluten-free diet awhile.  So, waiting for more input from Docs'.
    • Tazzy11
      Hi All! I recieved some coeliac serology test results but I am yet to see my g.p can anyone please confirm what these numbers mean?? Tissue transglutaminase IgA - 3 units (<20) Deamidated Gliadin Peptide IgG - 26H units (<20)   My IgG is high, does this mean it is positive?   
    • cristiana
      Karen, welcome to the forum. Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve.  You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating. The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.   Cristiana
    • badastronaut
      Thanks very much for the in depth reply!!! I'll discuss it with my doctor next week!
    • knitty kitty
      Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin is quite high (2,5 and 0,6). My ALT is also slightly elevated. I have been doing a gluten free diet quite strict although I did eat some gluten in the previous weeks.  "Could my blood result be this way because of gluten sensitivity and me being not strict enough? My echo showed no problems with my liver or pancreas. My bile ducts were fine too (although I don't have a gallbladder anymore).  "What to do??? Could this be gluten related?"   Your bilirubin is high.  The liver breaks down bilirubin.  The liver needs Thiamine to break down bilirubin.  Without sufficient Thiamine, bilirubin is not broken down and escapes into the bloodstream. High levels of bilirubin suppress the immune system.  High levels of bilirubin suppress the production of white blood cells, including anti-gluten antibodies.  The suppression of your immune system by high bilirubin could be the explanation for false negative Celiac antibody testing.  Thiamine is needed for antibody production.  Thiamine deficiency can cause false negatives on Celiac antibody tests.  If you are not making a lot of antibodies, you won't have much damage to the small intestine.   Your ALT is high.  The liver produces ALT.  When the liver does not have sufficient Thiamine, the liver produces more ALT that escapes into the bloodstream.  Elevated ALT is seen in thiamine deficiency. Your Lipase is high.  Lipase is produced in the liver and pancreas.  More Lipase is released by both in thiamine deficiency. Your gallbladder has been removed.  Gallbladder dysfunction is common in thiamine deficiency. Your Zinc is low.  Zinc absorption is enhanced when Thiamine is present.  Zinc is not absorbed well in thiamine deficiency. Your Folate is low.  Celiac Disease causes malabsorption of all the essential nutrients we need for health, the eight B vitamins, including Thiamine, the four fat soluble vitamin, Vitamin C and minerals like Zinc and Magnesium.  Thiamine stores can be depleted in as little as three weeks or even as quickly as three days.  Thiamine deficiency symptoms can wax and wane depending on how much thiamine is consumed that day.   If a high carbohydrate is eaten regularly, additional Thiamine is needed (500 mg per 1000 calories). Anxiety and depression are symptoms of thiamine insufficiency.  The brain just thinking  uses as much thiamine as muscles do when running a marathon.   I have had thiamine deficiency symptoms like you are experiencing.  My doctors did not recognize the symptoms of thiamine deficiency.  They just prescribed pharmaceuticals to cover up the symptoms which only made things worse.  I had a lot of nutritional deficiencies.  I ended up getting a DNA test to check for known genes for Celiac.  I have two Celiac genes.   Have you had a DNA test for Celiac genes?   I took Benfotiamine, a form of thiamine that promotes intestinal healing, and a B Complex to correct my deficiencies.   High doses of thiamine need to be taken to correct deficiency.  Talk to your doctor about administering thiamine intravenously.  Thiamine is safe and nontoxic even in high doses.  Thiamine is easily excreted in urine if not needed.  Improvement of symptoms should be seen within a few hours to a few days.  No harm in trying.  Process of elimination, etc.   Talk to your doctor and nutritionist.  Testing for nutritional deficiencies should be done before taking vitamin supplements, otherwise the vitamin supplements already taken will be measured.   I hope this helps you on your journey. References: https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6662249/#:~:text=CONCLUSION%3A,in men than in women. https://pubmed.ncbi.nlm.nih.gov/24923275/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6040496/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3772304/#:~:text=Based on the patient's history,were also no longer present. https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].  
×
×
  • Create New...