Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease and Gilbert's Syndrome

LovintheGFlife
 Share

Recommended Posts

LovintheGFlife Contributor
LovintheGFlife
Posted

For many years the Bilirubin results in my annual blood work have been borderline or slightly high. They are typically in the range 1.2-1.7 mg/dL. Every time I discussed this with my physician, he claims it is "normal" for some individuals and attributed it to Gilbert's Syndrome, a benign condition. I was diagnosed with celiac disease (celiac disease) three years ago. I don't wish to share TMI or sound gross but another interesting point to note: my poop has been yellow or orange colored for many years, even before my diagnosis. It is seldom brown in color, unlike my other family members. I wonder if this could be related to celiac disease. Interested in hearing about the experiences of other members. Thank you.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, @LovintheGFlife!

1. Are you consistent with eating gluten free?

2. Since being diagnosed with celiac disease, have you had any follow-up testing (blood antibody or biopsy) to check for the status in healing of the small bowel villous lining?

3. Are you still consuming dairy products?

4. What meds are you taking?

https://www.medicalnewstoday.com/articles/323147#stool-colors

 

LovintheGFlife Contributor
LovintheGFlife
Posted
  • Author

Welcome to the forum, @LovintheGFlife!

Thank you @trents. Please see my responses below.

1. Are you consistent with eating gluten free?

Yes, very consistent. I occasionally eat out but only at places that have a gluten-free menu. And I take Gliadin-X when eating out

2. Since being diagnosed with celiac disease, have you had any follow-up testing (blood antibody or biopsy) to check for the status in healing of the small bowel villous lining?

Yes, the antibody titer results kept falling and are now back in the normal range.

3. Are you still consuming dairy products?

Yes, I cannot resist butter/cheese products, yogurt and ice cream!

4. What meds are you taking?

None, other than multivitamins and Vitamin D.

https://www.medicalnewstoday.com/articles/323147#stool-colors

Thanks for sharing this article. It is very helpful.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,888
    • Most Online (within 30 mins)
      7,748
    Atgep5
    Newest Member
    Atgep5
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      R there any organizations that help with financial costs of food?

      By trents · Posted

      Moms Across America for one. Here's the article that kicked off long thread and more than one thread on Celiac.com this past summer:  Our community feels the testing needs to be tightened up. As of now, GFCO allows food companies to do self-testing and self-reporting. Testing is also done We strongly believe testing needs to be done more frequently and there needs to be drop in, unannounced testing by the FDA and certification groups.
    • CiCi1021
      R there any organizations that help with financial costs of food?

      By CiCi1021 · Posted

      What celiac watchdog groups have looked into what you mentioned? Thanks.
    • trents
      R there any organizations that help with financial costs of food?

      By trents · Posted

      Welcome to the forum, @CiCi1021! Well, to begin with, most of us have found it isn't necessary to buy a lot of specifically labeled "gluten free" or "Certified Gluten Free" prepackaged food items as long as you are willing and able to cook from scratch. This is especially true since testing by celiac watchdog groups has cast some serious doubt on how consistently food companies are actually meeting gluten free and certified gluten free standards. It's probably just as effective and certainly less expensive to buy naturally gluten free mainline food products such as fresh meat, vegetables and fruit and prepare your own meals. The only major exception to that in my experience is loaf bread. It's very difficult to make your own gluten free bread products and have them come out decent with regard to texture. The major food companies have invested a lot into that component and have come up with some pretty good stuff that's hard to duplicate for yourself.
    • CiCi1021
      R there any organizations that help with financial costs of food?

      By CiCi1021 · Posted

      Struggling with costs of all the special food.  Are there any organizations out there that will assist with costs? 
    • trents
      Should I get a second opinion?

      By trents · Posted

      I would ask the GI doc about the elevated IGA score of 401. That one is what we commonly refer to as "total IGA" and also known as "Immunoglobulin A (IgA)". It could be nothing but it can also indicate some other health issues, some of them serious in nature. I would google potential causes for that if I were you. Also, if there is a chance the GI doc will want to do more testing for celiac disease, either antibody testing or an endoscopy with biopsy, you should not cut back on gluten consumption until all celiac disease testing is done. Otherwise, you will invalidate the testing.
×
×
  • Create New...