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Recent Activity
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- CJF replied to CJF's topic in Traveling with Celiac Disease3European travel with Celiac Disease
Thank you for your response. I had read that they are more careful in the UK and the wait staff are much more aware. I always bring gluten-free snacks with me when I travel even here in the US. Airports are a nightmare to find anything that is gluten-free to eat. If you are lucky enough to find a Chick-fil-A in the airport the fries(chips) are a safe... -
- jamiet06 replied to jamiet06's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Duodenum biopsy result confusion
Thank you Knitty kitty, no I haven't thought about that. I just assumed that because my biopsy showed no lymphocytosis, celiacs was off the table. Is it possible to have no lymphocytosis and still have celiacs? -
- knitty kitty replied to jamiet06's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Duodenum biopsy result confusion
@jamiet06, Have you thought about getting a genetic test done? You have to have genes for Celiac Disease to develop. If you don't have any of the commonly known Celiac genes, you can look for another diagnosis. Genes don't change. You don't have to do a gluten challenge to test for genetic markers of Celiac Disease. -
- knitty kitty replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Confused About Results
Yes, @Ginger38, there are other genes for Celiac besides the two most common HLA DQ 2 and HLA DQ 8. There are DQ 7 and DQ 9 to name a couple. There are others. I understand how frustrating the diagnosis journey can be. I had a difficult time getting diagnosed, too. But you're through that now! Focus on your recovery and healing. Try the... -
- Ginger38 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Confused About Results
Thank you! This is helpful and validating, which is nice. I am so tired of gastrointestinal issues and feeling poorly. Obviously my immune system is freaking out and seeing gluten as a foreign invader… and I feel like I’m just trying to doctor myself all the time but I did wonder if it was all indicative of pre celiac or something like that. I haven’t g...
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Thank you for your response. I had read that they are more careful in the UK and the wait staff are much more aware. I always bring gluten-free snacks with me when I travel even here in the US. Airports are a nightmare to find anything that is gluten-free to eat. If you are lucky enough to find a Chick-fil-A in the airport the fries(chips) are a safe bet as they are fried in a fryer that is dedicated. Five Guys is also a pretty safe bet. While the only thing they fry is their fries, they also are very careful when cooking their burgers and will change gloves, and put them on a clean grill. Thanks again for all the info. All I don't want is to get sick on a much anticipated trip from food that has gluten in it. -
Thank you Knitty kitty, no I haven't thought about that. I just assumed that because my biopsy showed no lymphocytosis, celiacs was off the table. Is it possible to have no lymphocytosis and still have celiacs?
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By knitty kitty · Posted
@jamiet06, Have you thought about getting a genetic test done? You have to have genes for Celiac Disease to develop. If you don't have any of the commonly known Celiac genes, you can look for another diagnosis. Genes don't change. You don't have to do a gluten challenge to test for genetic markers of Celiac Disease. -
By knitty kitty · Posted
Yes, @Ginger38, there are other genes for Celiac besides the two most common HLA DQ 2 and HLA DQ 8. There are DQ 7 and DQ 9 to name a couple. There are others. I understand how frustrating the diagnosis journey can be. I had a difficult time getting diagnosed, too. But you're through that now! Focus on your recovery and healing. Try the AIP diet to help calm your system down. Try supplementing with a B Complex to boost your absorption and to help heal and repair. Benfotiamine has been shown to promote intestinal healing. Benfotiamine helps keep SIBO in check and so reduce bloating. Keep us posted on your progress! Best wishes! -
Thank you! This is helpful and validating, which is nice. I am so tired of gastrointestinal issues and feeling poorly. Obviously my immune system is freaking out and seeing gluten as a foreign invader… and I feel like I’m just trying to doctor myself all the time but I did wonder if it was all indicative of pre celiac or something like that. I haven’t gotten straightened out mentally or physically since the 8 week gluten challenge. My stomach is a mess and I’m over it
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