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Is this dermatitis herpetiformis?

Jordan Carlson
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Jordan Carlson Explorer
Jordan Carlson
Posted

Is that what this is? I am newer to the celiac scene lol. Always thought it was eczema that would never end. But makes a lot of sense if it is dermatitis herpetiformis!

IMG_9078.jpeg

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Scott Adams Grand Master
Scott Adams
Posted

It's hard to say from the photo, but if you have celiac disease it could be DH. Do you get tiny, hard, clear blisters in that area, and is it super itchy? 

Jordan Carlson Explorer
Jordan Carlson
Posted
  • Author

sorry, didn't realize the picture was so horrible lol. But yes to all of the above. The small darker areas in the photo are the little blisters on my hand.

Scott Adams Grand Master
Scott Adams
Posted

So if you have DH, it usually means that you are super sensitive to very small amounts of gluten, and to get rid of the DH you need to be 100% gluten-free, and this may mean avoiding eating at restaurants, unless you can be certain the food is 100% gluten-free.

If you have DH you will may also need to avoid foods high in iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

Jordan Carlson Explorer
Jordan Carlson
Posted
  • Author

Thank you very much for the info Scott! And the seafood and dairy products makes a lot of sense now.  As much as the dermatitis herpetiformis (if that is what it is) would get better, It still has minor flare ups but I do eat a lot of seafood and do have milk here and there so it very well could be that. 

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    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      @trents I do take all the recommended vitamins and excersize regularly. Basically do all things labeled as a healthy lifestyle haha. Thats why I was thinking more this is my immune system now having the energy to fight viruses rather than being too stressed out as I have heard that it is a common thing when your body is over stressed due to underlying autoimmune diseases
    • trents
      Getting sick much more often

      By trents · Posted

      Jordan Carlson, Wheat flour is fortified with vitamins ("enriched") where as gluten free facsimile flours are not. So when you eliminate wheat flour from your diet you may lose a significant source of nutrition. At the same time, gluten-free prepackaged foods are practically devoid of vitamins and minerals, consisting mostly of highly processed high carbohydrate grain substitutes. Lots of rice flour and tapioca. Have you compensated by adding in some high quality gluten free vitamin and mineral supplements? We typically recommend this for new celiacs, especially at the front end of recovery before there has been very much healing of the small bowel villous lining and nutritional absorption is still poor. Edit: I edited my other post to direct it to Sanna King's post.
    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      Hey there @trents. I wish I could edit my original post. I am talking about getting a cold way more often, not gluten poisoning.
    • trents
      Getting sick much more often

      By trents · Posted

      Reply to Sanna King: As you have withdrawn gluten from your diet you have lost all tolerance to it that you had when consuming it on a regular basis. This is normal. Not everyone experiences it but it is common. It has been my experience as well. When I was consuming gluten every meal every day for years after the onset of celiac disease but before diagnosis I would experience mild GI symptoms like a little occasional diarrhea. After being gluten free for a significant time, any major exposure to gluten would make me violently ill. Hours of severe cramps and vomiting followed by hours of diarrhea. Like when my wife made me gluten-free biscuits and made herself wheat flour biscuits and I got them mixed up and ate a couple. I am not a super sensitive celiac in the sense of being made ill by small amounts of cross contamination but if I get a significant exposure like I just described it is awful. 
    • Jordan Carlson
      Getting sick much more often

      By Jordan Carlson · Posted

      Hi there @Sanna King! I am talking about contracting colds/flu, not gluten reactions. Sorry if I did not make that clear. My stomach symptoms have improved vastly since changing my diet. But I contract colds way more often than I ever had before.
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