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Is this dermatitis herpetiformis?


Jordan Carlson

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Jordan Carlson Explorer

Is that what this is? I am newer to the celiac scene lol. Always thought it was eczema that would never end. But makes a lot of sense if it is dermatitis herpetiformis!

IMG_9078.jpeg


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Scott Adams Grand Master

It's hard to say from the photo, but if you have celiac disease it could be DH. Do you get tiny, hard, clear blisters in that area, and is it super itchy? 

Jordan Carlson Explorer

sorry, didn't realize the picture was so horrible lol. But yes to all of the above. The small darker areas in the photo are the little blisters on my hand.

Scott Adams Grand Master

So if you have DH, it usually means that you are super sensitive to very small amounts of gluten, and to get rid of the DH you need to be 100% gluten-free, and this may mean avoiding eating at restaurants, unless you can be certain the food is 100% gluten-free.

If you have DH you will may also need to avoid foods high in iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful:

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

Jordan Carlson Explorer

Thank you very much for the info Scott! And the seafood and dairy products makes a lot of sense now.  As much as the dermatitis herpetiformis (if that is what it is) would get better, It still has minor flare ups but I do eat a lot of seafood and do have milk here and there so it very well could be that. 

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    • Rogol72
      Hey @suek54, I also have Dermatitis Herpetiformis. I used to be on Dapsone but have managed to wean myself off it after many attempts. It's quiet a toxic drug, as it affects the bone marrow and red blood cells. It also artificially reduces Hemoglobin A1C. Mine was at 21 at one stage, I think normal is around 37. With dermatitis herpetiformis, you need to be really strict. It wasn't until I focused on getting the trace minerals the body needs that I managed to get off it. I believe getting the thyroid numbers in the optimal range also helped with Iodine and Selenium. Iodine doesn't bother me for some reason, but flares others as knitty kitty said. I take Viridian Trace Mineral complex and it's made a huge difference, among other vitamins and minerals. Now I can tolerate gluten free oats which I could never eat before. Though I only have them very occasionally in the form of gluten free soda bread . One thing I miss is my Mums Irish soda bread. Hope this helps.
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