Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ongoing fatigue and stomach pain


Catherine pearl

Recommended Posts

Catherine pearl Rookie

Hi everyone ,not really sure these days how I feel ,diagnosed coeliac 4 years ago and follow gluten .free diet  however over last few months symptoms are much worse ,brain fog ,fatigue ,stomach pain, nausea and wondered if anyone else experienced anything like this, scheduled for a sigmoidoscopy soon as doctor baffled as to what's going on ,also been diagnosed subclinical thyroidism recently feel at my wits end with all this its so depressing and debilitating any ideas or thoughts appreciated 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Scott Adams Grand Master

I'm really sorry to hear that you're feeling this way. It sounds incredibly frustrating and overwhelming to deal with worsening symptoms despite following a gluten-free diet. Here are a few thoughts and suggestions that might help:

Cross-Contamination: Double-check your diet and kitchen practices to ensure there's no accidental gluten exposure. Even small amounts can cause significant symptoms for some people.

Other Food Intolerances: Sometimes, people with celiac disease can develop additional sensitivities or intolerances, such as lactose or FODMAPs. It might be worth exploring this with your doctor or a dietitian.

Check Nutrient Levels: Celiac disease can lead to deficiencies in vitamins and minerals like iron, B12, and vitamin D. Your doctor can check for these and recommend supplements if needed.

Subclinical Thyroidism: Your recent diagnosis of subclinical thyroidism could also be contributing to symptoms like fatigue and brain fog. Make sure your thyroid levels are being monitored and managed properly.

Gut Health: Other gastrointestinal issues, such as SIBO (Small Intestinal Bacterial Overgrowth) or IBS, can mimic or exacerbate celiac symptoms. Discuss these possibilities with your gastroenterologist.

Support and Mental Health: Dealing with chronic illness can take a toll on mental health. Don't hesitate to seek support from a counselor or support group. Sometimes, just talking about it can make a big difference.

I'm glad you're scheduled for a sigmoidoscopy, as it's a good step towards finding out what's going on. Hang in there and keep advocating for your health. You're not alone in this, and I hope you find some relief soon. Take care!

Catherine pearl Rookie

Hi Scott, thank you for your reply ,as its provided some more information for me ,I'm making another appointment with my doctor to discuss if maybe I have nutrients deficiencies and as its over a year since I've saw a gastro doctor this is well overdue too ,really hoping that my sigmoidoscopy shows what's wrong as still have pain fatigue etc every day though at same time kind of dreading it too in case it's something more serious though a recent scan showed nothing malignant except an uncomplicated colon change however as I'm not sure what that means I will ask at my scope also got a letter from doctor saying that I have very high thyroid antibodies however as my hormone levels are still within normal limits there's no treatment ,this is frustrating as I'm desperately looking for answers ,thank you for this forum and for your support you take care too 

Scott Adams Grand Master

Please let us know what you find out.

Catherine pearl Rookie

Hi everyone  ,I posted a few days ago about going for a flexi sigmoidoscopy and I've now had my results so thought I would all let you know  I've been diagnosed with diverticular disease ,only advice was to follow a high fibre diet to try to control symptoms ,think this might be hard to do along with having coeliac as any fibre I've eaten in past causing stomach upset ,seeing my own Dr tomorrow to ask if they have any advice as to management, anyone else have this horrible condition and any tips on fibre intake etc ,is welcome ,take care everyone 

Scott Adams Grand Master

The articles below offer info on how to get more fiber into your gluten-free diet:

 

 

 

  • 2 weeks later...
Catherine pearl Rookie

Hi Scott thanks for your reply and thanks for all the information


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,217
    • Most Online (within 30 mins)
      7,748

    Eric B
    Newest Member
    Eric B
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jason Dyer
      Thanks, Scott and Trents. Scott, tastes vary of course. The metallic taste may just be me. As to the filtration efficacy, I can only add that the micron level to remove a smaller protein chain must be pretty tight. What about the impact of hydrolization on the R5 test? I've been told it presents a challenge. Trents, thanks for the clarification. I did not draw this distinction, but can. I honestly didn't perceive the nuance.  Appreciate the feedback from you both. 
    • Liquid lunch
      I don’t think it matters much if you trust the supplier, I get them from a Welsh company maesyffin mushrooms but I think the guy there has retired from growing now and just resells eu imports so it’s probably the same mushrooms he uses to make the tinctures as the company you posted. It’d probably be cheaper to buy dried and make your own tincture. 
    • Chissers
      Thank you for your prompt reply. Have others experienced LUQ and L sided back pain when on gluten? Could gluten be irritating the pancreas to cause the slight rise in lipase?
    • Rogol72
      Wow! I'd be interested to know where you get the tinctures. You can DM me if you wish. There's a Spanish company ... hifasdaterra ... who make high quality medicinal mushrooms in capsule form. 
    • trents
×
×
  • Create New...