Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Coping With celiac disease

Eve

By Eve
in Coping with Celiac Disease

Recommended Posts

Eve Newbie
Eve
Posted

I think I am doing this right, If not forgive me.

My Name is Eve and I am 27.. I found out 2 years ago about a sever Oat allergy and was never told about Gluten. 6 months ago when my mother tested positive for celiac disease. The rest fell into place.. Since then I have been trying to be gluten free...

I have been having issues with being a newbie.

Mostly it is a lack of support and understanding from all around. I am adjusting to a gluten free lifestyle. I am also in the 1 % of the population that is allergic to cow and chicken.. that means anything to do with them. Some days I think If I lived in a monastery in India I would bee fine... Just not here

Anyway. My issue is with support. I work and go to school and have huge issues with missing both. I have not lost alot of days to this particularly due to my Midwestern work ethic but.. some days I just can't do it. I have had issues with explaining to others that this process of becoming gluten free is just that .. a process.

I messed up and had wheat about 2 weeks ago and am still suffering .. does anyone else understand?? Some days I want to scream I am not a Hypochondriac! I just feel like crap because I somewhere ingested something that had wheat in it and I don't know where!!!! arg!!

Has anyone written up a letter explaining the trials and tribulations one must go thru just to be gluten free. I would love to give one to everyone I know. It is just so frustrating to go thru a list of symptoms and blah blah blah....

I don't want to discuss why and how I feel sick with everyone. But I don't want to be questioned on it every time either..

Any suggestions..

Maybe I just needed to rant...

Thanks

Eve

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


carriecraig Enthusiast
carriecraig
Posted

Hi Eve,

Welcome and I'm sorry that you are struggling through the gluten-free diet. I know exactly how you feel though. I've been on the diet almost 10 months now, and I had 2 slip-ups this weekend while at my parents house. I've felt like crap for a couple of days now. Fortunaltely, I know what the culprits are, so I won't be eating those again - but I am so frustrated with myself!

Feel free to rant at anytime - we're hear to listen.

Nevadan Contributor
Nevadan
Posted

I posted this link about coping with celiac disease several days ago - you might find it relevant.

Open Original Shared Link

George

Lollie Enthusiast
Lollie
Posted

welcome, Eve!!!!!

I know how you feel.....I have my own rant posting ....... :blink:

I just try to keep positive. I come here to let it all out- feel free to do the same!

I think the letter is a good idea- it seems like so many people I have explained it to still just don't get it. If you gave out a letter with numbered points, when they asked you the same thing again, you could just say, "Refer to point 2a in the second paragragh.....!" :D:D:D

Lollie

plantime Contributor
plantime
Posted
I don't want to discuss why and how I feel sick with everyone. But I don't want to be questioned on it every time either..

Any suggestions..

Maybe I just needed to rant...

Thanks

Eve

Yep, I understand this part. I get so tired of trying to explain to people why I am so sick. When I am glutened, I really don't want to talk about it, not to anyone! If someone does come up with a letter, please let me know. Maybe one of these wonderful, supportive, literate spouses that post on here sometimes would do this for us!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,316
    • Most Online (within 30 mins)
      7,748
    Parky
    Newest Member
    Parky
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Skinesa

      By Wheatwacked · Posted

      In what way? Skinese:  You paid for it, might as well try.  They are the usual mix and is gluten free. "Free of milk/casein, eggs, fish, shellfish, tree nuts, peanuts, wheat, gluten, and soybeans. Contains no artificial colors, flavors, or preservatives."   Are you using whole milk yogurt or the no fat yogurt.  The no fat has varius ingrediEnts to mimic fats texture but some people react to the  gums used.   Sibo: Foods that do not contain carbohydrates or fiber do not usually cause problems. This includes meats (beef, pork, lamb, venison); poultry (chicken, turkey, duck); fish and shellfish; eggs; and butter, oils, and hard cheeses. Stonyfield Whole milk yogert, I think, is the only one with lactase for lactose intolerance.  Naturally Fermented Pickles [The Complete Guide] For your skin health you need dietary iodine intake around 500 to 1000 micrograms a day.  I take Liquid Iodine 500 mcg a day.  It is the amount I ate daily in the 1960/s before they stopped using it in bread.  Since 1970 the daily intake of iodine has decrease 50%.  50 mcg/drop in the brand I use.  The dose used to prove Wolff-Chaikoff Effect was upwards of 11 grams The USDA lists the safe range from 125 mcg to 1000 mcg (1 gram).  Japanese say 3000 mcg is safe.  Look at tradition japanese hair, skin, and their childrens intellegence.  They must be doing something more right than us.   
    • Barcino
      Antibodies went up

      By Barcino · Posted

      FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. 
    • Scott Adams
      Daughter waiting for appointment

      By Scott Adams · Posted

      Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings.
    • Barcino
      Antibodies went up

      By Barcino · Posted

      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.   Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications.   Thank you for any input you may have.
    • jjiillee
      Daughter waiting for appointment

      By jjiillee · Posted

      She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy.  They told her to keep Eating gluten. She has been eating is again for the last couple weeks. 
×
×
  • Create New...