Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food sensitivity testing? Worth it?


HilaryM

Recommended Posts

HilaryM Rookie

Hi all, it’s been about 7 months since I was diagnosed and stopped eating gluten. I’m strict and rarely eat anywhere but home but symptoms persist - fatigue, easily upset stomach, etc. one doc said to do food testing to see if there’s anything else I should cut out (dairy probably) but another said good testing is basically useless. Any thoughts? Insurance won’t cover it and it’s expensive so I’m leaning toward no but wonder if I should cut out dairy. Literally makes me want to cry on top of gluten also. Just tired of feeling as fatigued as I would when I was eating gluten (my main symptom). Plus I have pain in one hand that comes and goes and unsure if it’s related? 
 

thanks for any insight! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

I have had food allergy testing done and have mixed feelings about it. First, realize there is more than one method of doing it so you need to look into that. There is skin prick testing and there are blood tests. What is interesting is that you can compare the results from various kinds of testing and they can be significantly different. But there is usually some overlap as well. Typically, there are some false positives that can happen through cross contamination of the antigens used or just the fact that actual symptoms don't match test results. The other issue is that the list of offending foods that accrues from the testing can be quite long and encompass many common everyday foods that are difficult to avoid or difficult/unhealthy to drop from one's diet. I mean you have to eat something to stay alive! The testing will rank the degree of reaction of the different offending foods such as "high", "medium", "low". Focus on the strongest offenders would be one recommendation I have and also pay attention to how your symptoms line up with the test results if you decide to get this done. I would also push the ALCAT food sensitivity test as perhaps the most helpful: 

 

Edited by trents
Beverage Rising Star

I had it done at the time that I was tested for Celiacs (blood testing only). My celiacs tests were super high positive, and all the attention went to that. The super high dairy results got ignored. But recently I inhaled some mold, and I got really sick, couldn't get into my doc for awhile, so I went back and reviewed those old blood test results, thought "oh yeah, the dairy!"  I cut out dairy for about a month waiting for that doc appointment, and lordie, a lot of my sinus issues since the mold exposure reduced dramatically.

On blood tests, they're only going to show anything for foods you are eating. If you aren't eating it, you won't have the antibodies? or whatever it is, in your blood, so an issue won't show up in the tests.  But yeah, the testing can point you in a direction you need to explore for things you are currently eating. 

Without doing the testing, you can research what are the most common issues with people (grains, dairy, alcohol, etc.) and try eliminating one by one for a period of time each to see if you notice any improvements.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Kwinkle replied to Kwinkle's topic in Coping with Celiac Disease
      5

      I’m so confused…

    2. - Deanne jones replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      28

      Can food allergies like milk and soy flatten villi?

    3. - knitty kitty replied to DayaInTheSun's topic in Coping with Celiac Disease
      12

      Being a burden to family/friends

    4. - Celiacandme replied to Kwinkle's topic in Coping with Celiac Disease
      5

      I’m so confused…

    5. - lmemsm replied to jasoncrest's topic in Gluten-Free Recipes & Cooking Tips
      4

      Recipe Apps?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,280
    • Most Online (within 30 mins)
      7,748

    Carole M
    Newest Member
    Carole M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Kwinkle
      Thank you. I already cut out dairy and eggs because I found out I was having a problem with them. To be honest I’m just getting worn out 😂 
    • Deanne jones
      Hi Kitty, thank you for your e mail,  I have seen a nutritionist who seemed to be happy with the food diary I had been keeping and nothing was mentioned about extra vitamins, and I’m still using milk etc . The steroids seem to be working and everything is functioning as it should however,  the course of tablets finish at the end of February and I have an appointment with the consultant early April probably followed by another endoscopy, as far as I’m aware I have not been tested for vitamin B and will definitely discuss it with the doctor on my next visit.      
    • knitty kitty
      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another.   If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on.  They're just not ready to learn that lesson.  But you confidently keep going on your journey.  They can catch up later.  
    • Celiacandme
      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start feeling better soon. 
    • lmemsm
      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances.  It's a web site but there's also an app.
×
×
  • Create New...