Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help me read my blood test results please


Chrisusa

Recommended Posts

Chrisusa Newbie

 

IgA  —-  92 mg/dL

Deamidated Gliadin Abs, IgA — 40 units

Deamidated Gliadin Abs, IgG —- 3 units

TTG IgA —— <2 U/mL

Tissue Transglut Ab —- 4 U/mL

 

is this a positive celiac disease test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, @Chrisusa!

We can't answer your question unless you also supply us with the ranges used by the lab for negative vs. positive. There are no industry standards for these things. Each lab develops there own tests and uses different scales. All you have given us are your raw scores.

You will not be able to edit your original post as the time window for doing that is closed. So, repost the original info and add in the ranges for negative vs. positive for the tests you list.

Had you been consuming plenty of gluten for weeks/months when the blood draw was taken or had you already begun eating gluten free or at least significantly cut back on gluten consumption?

Chrisusa Newbie

for the past 30 days I had been on very low to no gluten at all kinda diet.
 

IgA (Normal Range: 87 - 352 mg/dL) —92 mg/dL

Deamidated Gliadin Abs, IgA( Normal Range: 0 - 19 units)  — 40 units

(Deamidated Gliadin Abs, IgG Normal Range: 0 - 19 units).  —-3 units

 

TTG IgA (Normal Range: 0 - 3 U/mL) — <2 U/mL

 

Tissue Transglut Ab (Normal Range: 0 - 5 U/mL) — 4 U/mL

trents Grand Master

Unfortunately, you may have sabotaged your testing by reducing your gluten intake in the month before the testing blood draw was done. You do have one positive result from the testing, however, and that is for the Deamidated Gliadin Abs, IgA which certainly could indicate you have celiac disease. And it only takes one positive test. They don't all have to be positive.

The next logical step in diagnosis is to have an endoscopy with biopsy of the small bowel lining to check for damage to the mucosa that lines that part of the intestinal track. This is the hallmark of celiac disease and this test is considered to be the gold standard of diagnosis. However, you would need to go back to eating significant amounts of gluten in the weeks leading up to the endoscopy/biopsy. The current recommendations are 10g of gluten daily for at least two weeks leading up to the day of the procedure. 10g is the amount in approximately 4-6 slices of bread. Do you think you could handle that? What have been your symptoms when on gluten?

Chrisusa Newbie

Oh wow. 
For a long time I was having diarrhea, fatigue, headaches, extremely bloated, intense stomach pain, very gassy, farting and burping all day, acid reflux. Then about a month ago I decided to do the carnivore diet.

eating that much gluten would definitely make me sick.

trents Grand Master

So, I assume your symptoms have improved since reducing your gluten intake. Is this correct?

Chrisusa Newbie

Yes, tremendously !!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Well then, I would conclude you do have celiac disease. You have classic symptoms, a positive antibody test result and improved symptoms when gluten is withdrawn. But unless you are willing to embark on a "gluten challenge" you may have to live with that as an unofficial diagnosis. Many people have difficulty staying on the gluten free bandwagon without one as, psychologically speaking, it is easy to rationalize it all away when the reality of the social challenges and the self-denial it presents begin to set in. And in some countries, like the UK, there are actually government subsidies for buying gluten free food and follow-up healthcare benefits that accrue from an official diagnosis.

By the way, kudos to your physician for running a complete celiac panel instead of just the TTG-IGA, which is the most popular antibody tests run by physicians and many times the only one. Had your doc settled for less you would have nothing to go on from the testing. And it would be wise to have a conversation with your physician about granting an official diagnosis on that one test result, your symptoms and improvement on a gluten free diet. Under the circumstances, he or she might be willing to do that.

I'm attaching an article on learning the ropes about gluten free eating. There usually is a significant learning curve involved in achieving a truly gluten free state as opposed to just eating lower gluten. Gluten is tucked into the food supply in so many places you would not expect. And then there is the whole issue of cross contamination.

 

Chrisusa Newbie

Thank you so much for taking the time to answer my questions and for helping me.

I greatly appreciate it.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,513
    • Most Online (within 30 mins)
      7,748

    ALG
    Newest Member
    ALG
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      HLA DQ8 Positive - This means you have the genes to get celiac disease, which ~40% of people have as well, although only ~1% develop the disease. GLIADIN (DEAMIDATED) AB (IGA) 96.8 HIGH <15.0 Antibody not detected > or = 15.0 Antibody detected Since your biopsy was negative (you're correct that at least 6 samples should have been taken), this could mean non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. My question is, were you doing a proper gluten challenge before your tests and eating at least 2-4 slices of wheat bread worth of gluten per day in the 6-8 weeks before your blood screening, and at least 2 weeks before your biopsy? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.       
    • Scott Adams
      It is very doubtful that prescriptions medications would be cross-contaminated. It's not impossible, but most companies make many different medications and have very strict protocols for their manufacture.
    • Scott Adams
      I would not say that milk is bad for you, but for those who have lactose intolerance, milk allergy, etc., it's best avoided. 
    • trents
      @Sammy Web, I'm sorry if I offended you. I was just seeking some clarification. Colloquialisms vary from place to place in the English speaking world. They can even differ from place to place in a given English speaking country. 
    • cristiana
      Hi Sammy Don't worry I understood the English, and I'm from the UK.🙂 Trents is quite right, though, it is possible to feel perfectly well and have coeliac disease.   Cristiana
×
×
  • Create New...