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Celiac story


Dp0155

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Dp0155 Rookie

Hi guys I posted first on hear way back in 2020. Back then I experienced some classic symptoms weight loss, bloating etc ……. I was referred for blood test which indicated I could have had coeliac disease. 
 

I was told I would be referred for biopsy I continued to eat gluten but suddenly my symptoms cleared up and my biopsy was seen as no longer needed. I continued to eat gluten for 4 years with no issues at all. 
 

just for some context I am a keen athlete and have ran numerous road races , triathlons , HYROX competitions and usually placed well in all of these. Alongside this my job is very physical and I train 6 days a week. 
 

I recently undertook a routine blood test and was found to have low hameoglobin , low ferritin and low folate. Vitamin B12 was in the standard range. Clinically speaking i have iron deficiency anemia. I literally have no symptoms and am the fittest and strongest I have felt for years. I have been given iron tablets and folic acid. I have decided to cease eating gluten now. It doesn’t really affect me as I didn’t really eat that much of it before anyway. I am just wondering if the iron deficiency anemia could be caused by anything else. 
 

like I said literally no symptoms what so ever very very strange. 


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Scott Adams Grand Master

Many celiacs do not have noticeable symptoms, and discover that they have it when they have anemia or other vitamin deficiency. If you were referred for an endoscopy for celiac disease, does that mean that you had a positive blood test for it? Normally a blood test would be given before a follow up biopsy is done.

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

 

 

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    • RMJ
      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
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      Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
    • AuntieAutoimmune
      Thanks,Scott. Yes, I had already seen those 
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