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Biopsy

Ginger38

By Ginger38
in Coping with Celiac Disease

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Ginger38 Rising Star
Ginger38
Posted

So my gastro doc says I need a colonoscopy plus egd with biopsy, he wants to see what is going on in there. I first told him I wasn’t going back on gluten but I feel like I need to if I am going to have the biopsy to get good results. I am DREADING it. Gluten makes me really sick. I get rashes and everything. However since I missed the boat the first time if he’s going down and up there I figure I might as well do it. What is the minimum amount of time and minimum amount of gluten to consume to get a Good reliable biopsy ? 

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captaincrab55 Collaborator
captaincrab55
Posted
  On 8/19/2024 at 3:05 PM, Ginger38 said:

So my gastro doc says I need a colonoscopy plus egd with biopsy, he wants to see what is going on in there. I first told him I wasn’t going back on gluten but I feel like I need to if I am going to have the biopsy to get good results. I am DREADING it. Gluten makes me really sick. I get rashes and everything. However since I missed the boat the first time if he’s going down and up there I figure I might as well do it. What is the minimum amount of time and minimum amount of gluten to consume to get a Good reliable biopsy ? 

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Ginger38,  Do you have Dermatitis Herpetiformis(dermatitis herpetiformis)?  

Ginger38 Rising Star
Ginger38
Posted
  • Author
  On 8/19/2024 at 3:15 PM, captaincrab55 said:

Ginger38,  Do you have Dermatitis Herpetiformis(dermatitis herpetiformis)?  

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Yes, I definitely think I do, but the dermatologist wouldn’t biopsy for it the last time I asked , she wouldn’t even entertain the idea without me having the intestinal biopsy done  🙄🤦🏼‍♀️

captaincrab55 Collaborator
captaincrab55
Posted
  On 8/19/2024 at 3:34 PM, Ginger38 said:

Yes, I definitely think I do, but the dermatologist wouldn’t biopsy for it the last time I asked , she wouldn’t even entertain the idea without me having the intestinal biopsy done  🙄🤦🏼‍♀️

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IMHO, you may have the wrong Dermatologist!  I was tested for it on my first visit to a different Dermatologist.  In two weeks my dermatitis herpetiformis biopsy came back positive and he sent me for a blood lab that also came back positive.  You could try the Iodine test with a bandaid.  

Ginger38 Rising Star
Ginger38
Posted
  • Author
  On 8/19/2024 at 3:55 PM, captaincrab55 said:

IMHO, you may have the wrong Dermatologist!  I was tested for it on my first visit to a different Dermatologist.  In two weeks my dermatitis herpetiformis biopsy came back positive and he sent me for a blood lab that also came back positive.  You could try the Iodine test with a bandaid.  

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Is that where you put iodine on your skin ? And see what happens? What if that is negative or doesn’t react? 

captaincrab55 Collaborator
captaincrab55
Posted
  On 8/19/2024 at 3:58 PM, Ginger38 said:

Is that where you put iodine on your skin ? And see what happens? What if that is negative or doesn’t react? 

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Here's a link:  https://www.google.com/search?q=iodine+test+on+skin+for+dermatitis+herpetiformis&sca_esv=050a7531cb22c9f5&sxsrf=ADLYWIJQ1BNQe2y8HwcyMffU60tFc5SaFw%3A1724083366655&ei=pmzDZvPgJ_b7wbkPla-p2Ao&oq=iodine+test+on+skin+for+derma&gs_lp=Egxnd3Mtd2l6LXNlcnAiHWlvZGluZSB0ZXN0IG9uIHNraW4gZm9yIGRlcm1hKgIIBTIFECEYoAEyBRAhGKABMgUQIRigATIFECEYoAEyBRAhGJ8FMgUQIRifBUizlQFQ9BNY5F1wAXgBkAEAmAHSAaABpgmqAQUwLjkuMbgBAcgBAPgBAZgCC6AC1QnCAgoQABiwAxjWBBhHwgINEAAYgAQYsAMYQxiKBcICBRAAGIAEwgIKEAAYgAQYFBiHAsICBhAAGBYYHsICCxAAGIAEGIYDGIoFwgILEAAYgAQYkQIYigXCAggQABiABBiiBJgDAIgGAZAGCpIHBTEuOS4xoAe8Og&sclient=gws-wiz-serp

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