Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frequent bowel movements


Dee4825

Recommended Posts

Dee4825 Newbie

I have just been diagonised with ceilac and am doing the gluten free diet but have noticed my bowel movement has increased, i use to go 2 or 3 times in the morning and that would be it but now its 2 or 3 times in the morning then again a few times through the day. Please help as this is worrying me now and wondering if i should contact my G.P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dee4825 Newbie

I have recently been diagonised with ceilac and have been gluten free now for about 2/3 weeks but i have noticed my bowel movement has become more frequent than ever before, please can someone tell me if this is normal or do i have to be concerned and contact my doctor

trents Grand Master
(edited)

Welcome to the forum, @Dee4825! Is the consistency of your bowel movements normal or are you experiencing diarrhea? Have you added into your diet any pre-prepared/pre-packaged gluten-free foods and snacks or are you just going with naturally free main stream foods?

BTW, I notice you also posted your question in another place in the forum. Please don't double post.

Edited by trents
Dee4825 Newbie

Sorry trent didnt know if i had done it right. I have gone total gluten-free. Its not diarrhoea its just more often.

Thank you for the welcome 

Scott Adams Grand Master

Also, do you eat out in restaurants or other places outside your home? Restaurants can be a prime source of gluten contamination.

Dee4825 Newbie

No only where i can get gluten-free food Scott

Scott Adams Grand Master

From your answer it sounds like you do eat out, is that right? Studies have found gluten is a big issue in most restaurant food, including ones that have gluten-free menus. 

In cases where you have a sudden change in your BM's, it usually makes sense to take a closer look at your diet to be sure gluten isn't slipping into it somewhere.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cristiana Veteran
(edited)

Hello @Dee4825 and welcome to the forum!

I echo @Scott Adams statement about eating out - it really is an important factor to consider.  Although most caterers have a better grasp of catering for coeliacs today, mistakes slip in - only this summer I was given a plate of gluten free food, a Ploughmans Lunch, and the baguette was normal bread!

Now, some other things that might be going on:

Temporary Lactose Intolerance

I had issues with diarrhea some time into my early recovery.  The loose bowels and frequent visits to the loo only really improved when I came off not only gluten but dairy products, specifically milk, soft cheese and yoghurt.   Are you still consuming dairy, because if so, it could be the cause.   Coeliacs can become temporarily lactose intolerant  because the villi tips, which are damaged in coeliac disease, means we cannot digest lactose properly.  Once they heal, you can reintroduce dairy gently.  Maybe give it a few weeks, then try again.  (Incidentally, during this period I was still able to tolerate small amounts of cheddar, you might be able to as well, as it is very low in lactose).

Oats

I am looking at the timing of your posts and wondering if you are in the UK?  If so, did you see a nutritionist or gastroenterologist as part of your NHS aftercare?  Mine advised coming off oats for six months to a year after diagnosis, before reintroducing them to my diet.  The reason is some coeliacs cannot tolerate oats, even the pure oats which are certified free from gluten contamination (we shouldn't be eating anything other than those, so, sadly, goodbye to Quaker Oats for us!)  Some coeliacs, either newly diagnosed or some in the long term, continue to react to oats, even the pure ones, as if they were wheat or barley.

Supplements and Medication

Have a look at the smallprint of the ingredients of any medication you use.  I made a huge mistake sometime into my gluten free diet by consuming an iron supplement, Floradix, instead of Floravital.  The former has gluten in it, but the packaging is almost identical.   (TIP:  A pharmacist told me a while back that if UK medication has a PL number on it (Product License) it will be gluten free.)

Lip Balm etc

Anything that goes on your lips - ensure it is gluten free.

***

I would encourage you to keep a food and symptoms diary during this time and see if any patterns are emerging.  You may have developed intolerances which will fade in the long run (I couldn't cope with soya products during the healing process, for example).  Remember to make sure any shared utensils you use are scrupulously clean and don't share a toaster or butter with any non-coeliacs.   Also, if you are in the UK, it is worth joining Coeliac UK even if just for a while, as they issue a fabulous Food and Drink guide (also a digital version).   It will be money very well spent.

If you have already tried the above, I remember being told when I was diagnosed that GPs are interested in referring people to gastroenterologists who have had 'new' symptoms that have hung around for more than six weeks. 

If that is the case with you, it might be worth talking to your GP.   I had to see my gastroenterologist again a few months after my diagnosis because of a lot of pain with bloating, and he gave a couple more tests just to ensure nothing else was happening (it wasn't, but the peace of mind was good to have!)

Cristiana

 

Edited by cristiana

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,416
    • Most Online (within 30 mins)
      7,748

    Heather8280
    Newest Member
    Heather8280
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.