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Help plz with results. celiac?


Layu

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Scott Adams Grand Master

It’s great that you’ve been to the doctor and are exploring all possibilities! However, it’s important to note that celiac disease testing, including antibody tests and endoscopy, should ideally be done while you're still consuming gluten. The fact that you don’t have diarrhea doesn't rule out celiac disease, as not everyone with celiac has diarrhea — symptoms vary widely, and some people may only experience issues like fatigue or nutrient deficiencies.

While elevated gliadin antibodies (like the ones you mentioned) are not specific to celiac, they can still be a potential marker. An endoscopy with a biopsy of the small intestine remains the gold standard for diagnosis, especially if there's suspicion after antibody testing. It might be a good idea to discuss this further with your doctor if you continue to have concerns.

Also, be mindful that IBS and celiac disease can sometimes have overlapping symptoms.


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Layu Apprentice
20 hours ago, Scott Adams said:

It’s great that you’ve been to the doctor and are exploring all possibilities! However, it’s important to note that celiac disease testing, including antibody tests and endoscopy, should ideally be done while you're still consuming gluten. The fact that you don’t have diarrhea doesn't rule out celiac disease, as not everyone with celiac has diarrhea — symptoms vary widely, and some people may only experience issues like fatigue or nutrient deficiencies.

While elevated gliadin antibodies (like the ones you mentioned) are not specific to celiac, they can still be a potential marker. An endoscopy with a biopsy of the small intestine remains the gold standard for diagnosis, especially if there's suspicion after antibody testing. It might be a good idea to discuss this further with your doctor if you continue to have concerns.

Also, be mindful that IBS and celiac disease can sometimes have overlapping symptoms.

I have a situation where if I take symbiosis alflorex or a medicine with inulin and butyric acid, there is no diarrhea, it even disappeared for half a year. At the same time, I eat gluten normally. But when I don’t take these medicines, I have diarrhea every 14 days, if I eat gluten often. Diarrhea disappeared for half a year after I drank alflorex for three months and I ate gluten, then I got nervous and diarrhea came back. my doctor said that the diarrhea from celiac disease would not be stopped by the medications I wrote about above. I was told that I am most ibs. What do you think, is this true?

Scott Adams Grand Master

I don't believe your doctor can make a blanket statement like "the diarrhea from celiac disease would not be stopped by the medications," because everyone is different. Many celiacs don't have any symptoms at all, including diarrhea. If you have celiac disease you should be 100% gluten-free, even if medications might hide your symptoms, and this is because other damage will be done, and you will have many health risks going forward which can be avoided with the diet.

Wheatwacked Veteran

Have you looked into other symptoms that eating gluten can cause if you have Celiac Disease and continue to eat gluten?  Many are way more dangerous and misdiagnosis can lead to unessary suffering by treating the symptoms of that disease instead of the cause Celiac.  Diarrhea is not the only symptom.  But taking out a Gall bladder because of Celiac Disease malapsortion only to have those symptoms reappear? Foolish.

Eating yogurt will have the same effect as Aflorex and cheaper.

What Are the Symptoms of Celiac Disease?

 

Layu Apprentice
14 minutes ago, Wheatwacked said:

Have you looked into other symptoms that eating gluten can cause if you have Celiac Disease and continue to eat gluten?  Many are way more dangerous and misdiagnosis can lead to unessary suffering by treating the symptoms of that disease instead of the cause Celiac.  Diarrhea is not the only symptom.  But taking out a Gall bladder because of Celiac Disease malapsortion only to have those symptoms reappear? Foolish.

Eating yogurt will have the same effect as Aflorex and cheaper.

What Are the Symptoms of Celiac Disease?

 

I'm sorry, I didn't understand what kind of gallbladder removal is?
I rarely have bloating, mostly in the morning. And it passes quickly. I was told that I most likely have IBS. Also sheep's stool, but every day and not solid

Layu Apprentice
15 minutes ago, Wheatwacked said:

Have you looked into other symptoms that eating gluten can cause if you have Celiac Disease and continue to eat gluten?  Many are way more dangerous and misdiagnosis can lead to unessary suffering by treating the symptoms of that disease instead of the cause Celiac.  Diarrhea is not the only symptom.  But taking out a Gall bladder because of Celiac Disease malapsortion only to have those symptoms reappear? Foolish.

Eating yogurt will have the same effect as Aflorex and cheaper.

What Are the Symptoms of Celiac Disease?

 

My blood tests are good, calprotectin is good. The only thing is that antibodies to gliadin G are elevated, but I was told that they are excluded from diagnostic standards. I have 100 of these antibodies.

Wheatwacked Veteran
7 hours ago, Layu said:

when I don’t take these medicines, I have diarrhea every 14 days, if I eat gluten often.

Even if Gliadin G is excluded from your diagnostic standards, you still have symptoms caused by eating gluten.  Perhaps you have Non Celiac Gluten Sensitivity (NCGS).

    NCGS is diagnosed by first eliminating Celiac Disease as the cause of your symptoms.  A Negative diagnosis for Celiac Disease.  Then showing symptom improvement while on a trial gluten free diet.  Next show the return of symptoms with return of glutin to your diet.

Quote

Even though the correlation between AGA IgG and NCGS condition turned out to be statistically significant in most studies, AGA IgG does not seem to be an adequately strong marker for its lacking diagnostic accuracy. However it can partly help the NCGS diagnosis, integrated in the overall management of the patient. Therefore, in the presence of clinical symptoms that suggest NCGS, IgG AGA positivity, together with negative anti-tTG, EMA, and anti-deamidated-gliadin-peptides (DGP) antibodies, NCGS diagnosis might be suspected.   Anti-gliadin antibodies in non-celiac gluten sensitivity

 


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    • Scott Adams
      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
    • Scott Adams
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    • Scott Adams
      This is a difficult situation, and one that your employer may not take seriously. It's possible that they don't have a way to accommodate your issues, but I don't know much about your work environment. Obviously moving you to another work area would be ideal, but would or could they do that? If not, you might be stuck having to wear a K95-type mask at work to avoid breathing any particles, but they still could end up on your skin. Another alternative is searching for a new job.
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