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Colitis

MSawhill
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MSawhill Newbie
MSawhill
Posted

does anyone else have colitis with their celiac disease?  I have been gluten free for over 20 years and 2 years ago developed colitis with collagen on my colon.  Any one else have this?

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trents Grand Master
trents
Posted

Welcome to the forum, @MSawhill!

Not sure about the collagen part, but all manner of bowel diseases are more common in the celiac population than in the general population. Celiac disease is an autoimmune disease and when you have one autoimmune condition you are likely to develop others. The tend to cluster. That we know.

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Scott Adams Grand Master
Scott Adams
Posted

Many others here have reported having both colitis and celiac disease, and you can find some older posts here:
https://www.celiac.com/search/?q=colitis&quick=1&type=forums_topic

 

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Bltjr21 Newbie
Bltjr21
Posted

I do. That’s actually what tipped my GI dr off to check for celiac. I was first, diagnosed with lymphocytic colitis through my colonoscopy. I immediately started a two month course of budesonide, and then had to labs done for celiac. When that came back positive, we did the endoscopy to confirm things.

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  • Recent Activity

    1. Bltjr21
      - Bltjr21 replied to MSawhill's topic in Related Issues & Disorders
      3

      Colitis

      I do. That’s actually what tipped my GI dr off to check for celiac. I was first, diagnosed with lymphocytic colitis through my colonoscopy. I immediately started a two month course of budesonide, and then had to labs done for celiac. When that came back positive, we did the endoscopy to confirm things.
    2. glucel
      - glucel replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      3 month retest

      Yes I forgot it is the green leafy. I just don't take drugs well. It wasn't just the inr but was also getting nose bleeds. Right now I have to figure out what I am going to do with the mri as discussed with rmj on this page and see how my weight goes. Need to get some info together before my next cardio visit so I can deal with a doc who claims celiac and...
    3. glucel
      - glucel replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      3 month retest

      I was taking the non biological of folate and b12. Have since started methyl forms. Looking forward to some healing.
    4. trents
      - trents replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      3 month retest

      I have been on Coumadin for years because I have a genetic blood clotting disorder known as Factor 5 Leiden. I think it's mainly green leafy veggies that you have to worry about. They are the ones high in vitamin K. And if your are consistent in your consumption of them it your INR should level out. I get my INR checked every 6 weeks. Certain medications...
    5. glucel
      - glucel replied to glucel's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      3 month retest

      I was on coumadin for a while after surgery and had a lot of trouble with vitamin k which pretty much curtailed how many veggies I could eat. The constant testing for vitamin k was expensive and a nuisance. I plan to ask doc if nsaid can be taken every other day instead of daily.
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    • Bltjr21
      Colitis

      By Bltjr21 · Posted

      I do. That’s actually what tipped my GI dr off to check for celiac. I was first, diagnosed with lymphocytic colitis through my colonoscopy. I immediately started a two month course of budesonide, and then had to labs done for celiac. When that came back positive, we did the endoscopy to confirm things.
    • glucel
      3 month retest

      By glucel · Posted

      Yes I forgot it is the green leafy. I just don't take drugs well. It wasn't just the inr but was also getting nose bleeds. Right now I have to figure out what I am going to do with the mri as discussed with rmj on this page and see how my weight goes. Need to get some info together before my next cardio visit so I can deal with a doc who claims celiac and not aspirin is the problem. 
    • glucel
      3 month retest

      By glucel · Posted

      I was taking the non biological of folate  and b12. Have since started methyl forms. Looking forward to some healing.
    • trents
      3 month retest

      By trents · Posted

      I have been on Coumadin for years because I have a genetic blood clotting disorder known as Factor 5 Leiden. I think it's mainly green leafy veggies that you have to worry about. They are the ones high in vitamin K. And if your are consistent in your consumption of them it your INR should level out. I get my INR checked every 6 weeks. Certain medications can mess with INR too, like antibiotics so occasionally I have to go in more often or INR checks.
    • glucel
      3 month retest

      By glucel · Posted

      I was on coumadin for a while after surgery and had a lot of trouble with vitamin k which pretty much curtailed how many veggies I could eat. The constant testing for vitamin k was expensive and a nuisance. I plan to ask doc if nsaid can be taken every other day instead of daily.
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