5 years old with low growth, lack sleep and lack of focusing.

[Jole]

Hi, I am intolerant to gluten as well as my two sisters age 39, 43 and 48, all of us diagnoticated near our 30s. I have a daughter 5 years old. She did two blood test intolerant in the last three years and we fond out that she is not gluten intolerant. I am still thinking that something may still going on related with gluten as she has a bit of low growth issues and very bad sleeping causing her lack of sleep and focus in daily tasks. I am not sure if it may be the case that she is intolerant to gluten and it is hidden somehow? Really appreciate any advice 

[trents]

Welcome to the forum, @Jole!

Can you share specificcaly what diagnostic test or tests were done? Do you have documentation that you can pull the name of the test or tests from? Often, physicians will order only the tTG-IGA test. For young children especially, more tests should be ordered. Children's immune systems are immature and they often don't respond in the same way to the tTG-IGA test as adults do.

 

Edited September 12, 2024 by trents

[knitty kitty]

Welcome to the forum, @Jole,

Children often produce DGP IgG antibodies when so young.  If TTG IgA antibody testing was done, false negatives could've been seen.  

Insufficient gluten consumption prior to blood tests can also cause false negatives.

Genetic testing for Celiac Disease can help with diagnosis.  Since Celiac Disease is an Autoimmune Disease, one has to have the genes to develop it.  All first degree relatives should be tested as well.  

Growth retardation, changes in sleep patterns and changes in mentality can be signs of nutritional deficiencies which develop in Celiac Disease.  

Do consider further testing!