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Advice for Drs appointment for 3 year old


HelenL
Go to solution Solved by trents,

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HelenL Newbie

Hello,

I'm looking for advice ahead of a Dr's appointment for my 3 year old daughter.

She has constant exhaustion, which is getting worse, and constipation (though probiotics help). No growth issues, but constantly grumpy due to exhaustion. She was tested one year ago, when she was 2 for Celiac, results below. We have a history of celiac in the family (but not direct, my uncle and my cousin's daughter). She had her iron tested last year as well and her serum ferritin was fine, but she had slightly low red and white blood cell count.

Should I be pushing for a re-test for celiac? She was regularly consuming gluten before last year's test, and still is.

Last year's results:

Tissu transglutaminase IgA lev: < 0.2 u/mL (Normal range:0 to 10.9 (u/mL))

IgA: 0.36 g/L (Normal range: 0.3 to 1.3 (g/L))

Many thanks

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  • Solution
trents Grand Master

Ask for a more complete celiac panel that includes more than IGA antibody tests. Young children have immune systems that are immature and they often don't respond the same way to IGA antibody testing as adults do and so it can be valuable to check for IGG antibodies. Ask for:

Total IgA

TTG-IGA

DGP-IGA

DGP-IGG

It is also possible she has NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but for which there are no tests yet. Celiac disease must first be ruled out. Some experts believe NCGS can be a precursor to developing celiac disease. It is 10x mor common than celiac disease and also demands avoiding gluten.

Edited by trents
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Scott Adams Grand Master

I agree with @trents, and this article might be helpful. It breaks down each type of test:

 

 

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HelenL Newbie

Many thanks to you both, really helpful 

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Scott Adams Grand Master

Please let us know how things turn out, and good luck!

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    • trents
      I was wrong, however, about there being no particular health concerns associated with high total IGA: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ So maybe the physician's "borderline" remark is relevant to that.
    • trents
      Sometimes that is the case but what is curious to me is the remark by your physician about being "borderline". I assume he was referring to the total IGA score but it just seems like an irrelevant remark when it is on the high side rather than being deficient.
    • StrongerThanCeliac
      Hi,  I’ve noticed that it usually takes me about 5-6 days to recover from a glutening. I was just thinking and maybe I’m going crazy. Long story but I wasn’t able to brush my teeth for a couple days after being glutened. Is there a way the gluten could be like stuck in my teeth still and still causing some sort of reaction because I waited too long to brush? Or is that insane
    • cristiana
      @Gluten is bad Hi!  I just caught this post, and am writing on the off-chance that you might be based in the UK.  If so, I was told some years ago by a pharmacist that in the UK that if a medicine has a Product Licence printed on the packaging, which will appear as the letters PL plus a long number.... for example....  PL 4525908 (making that number up!) it will be gluten free.   I have just checked this on an NHS website, and indeed it appears to be true.  According to the same website, all medications prescribed by GPs in the UK are gluten free. https://www.nhsinform.scot/healthy-living/food-and-nutrition/special-diets/gluten-free-diet/#medicines The same NHS website also makes a very good point.  You might take a gluten-free medication prescribed by a GP that might set off symptoms very similar to a glutening.  Like some meds cause stomach pain or diarrhea, but that doesn't mean they contain gluten. Obviously, if you are purchasing medication from overseas, the above might not apply. Hope this is helpful, and that you can get your medication soon - I have an acquaintance who has had to wait some time. Cristiana
    • gemknorodo
      I wonder if the tTG-Iga result isn't back yet as there is nothing next to that one, perhaps it takes a little longer.  
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