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Newly dignosed Celiac


Rubii
Go to solution Solved by Wheatwacked,

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Rubii Newbie

Hi everyone, i was a symptomtic, i went to dr for fittness, he checked my last lab test after my Recent delvry i had iron deficiency anemia, i didnt took any suppliments for that, he sent my labs again along with ttg iga level, its came positive250, it was big shock for me, they did further test antiglidin, antiendomysial along with endoscopy biopsy , genetic testing within 10 days, all blood test came positive but biopsy is normal, since 15 days um gluten free totally, but  after going gluten free i feel stomach pain, almost every day , is it normal , if it is normal how long it will go


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trents Grand Master

Welcome to the forum, Rubii!

A normal biopsy despite having classic celiac symptoms and a high score on the TTG-IGA antibody test could be cause by a couple of things. One, your celiac disease could have been caught at an early stage before enough time had lapsed for damage to be done to the villous lining of the small bowel. Second, and this is more common than you think, the damage is patchy and the biopsy samples missed the affected sections of the duodenum and bowel. Many doctors doing the scoping do not take enough samples from various areas, i.e., the biopsy process is not thorough enough.

There is quite a learning curve involved in achieving a truly gluten free diet. Gluten is found in food items you would never expect it to be. It is easy to cut out the large sources of gluten but it's the hidden ones that trip the beginner up. Also, many celiacs react to dairy the same way they do gluten and oats as well. The proteins in these two foods are similar to gluten. I offer this primer: 

 

Scott Adams Grand Master

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

 

Rubii Newbie

I didnt have  symptoms, i just went for my job fittness and all this happen, my test came positive, so it was big shock for me to have disease without symptoms, further after going gluten free i feel dizziness, abdominal cramps on off, anxiety, depression, crying episodes. 

trents Grand Master

Sorry, in your first post you typed "a symptomatic" instead of "asymptomatic" so I misunderstood what you were saying. But anemia is a classic symptom of celiac disease.

  • Solution
Wheatwacked Veteran

Hello @Rubii,

Since gluten is addictive and effects the opoid rececptors, some people have a withdrawal that lasts 10 to 15 days.  When alcohol or substance use is halted, the brain is forced to readjust to its sudden absence. This leads to unpleasant physical and mental withdrawal symptoms. Diarrhea, stomach pain, and vomiting are often experienced by people going through withdrawal from opioids and other drugs.

Vitamin and mineral dificiencies are common and each has a set of symptoms.

Vitamin D deficiency is ubiquitous in newly diagnosed celiac disease.

Gluten containing processed food has some vitamins and minerals added to support the nutrients lost in milling.  There typically is no fortification to Gluten Free foods, so we need to be more aware. Low D compromises immune system, Thiamine and the other 7 B vitamins, Choline was B4 and is essential to fat digestion, deficiency can cause gallbladder symptoms.

 

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    • ZandZsmom
      Are you using the same mixer that you used for your gluten containing baking? That could be your culprit.
    • trents
      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Thank you for the reply. It was the TTG IGA that was within normal limits
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