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Shaking/Tremors and Off Balance


Ginger38

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Ginger38 Rising Star
11 hours ago, Scott Adams said:

I could mean that:

  1. You have celiac disease but caught it early, before villi damage (especially true if you had a positive blood test for celiac disease--but there is the Marsh scale, and even minor damage could be caused by celiac disease);
  2. You have gluten sensitivity--approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
  3. You don't have either of the conditions and can eat gluten normally.

From all of your posts I don't think you fit #3 here, so no matter the outcome a gluten-free diet might be your outcome for optimal health.

Thanks for the info, that helps me understand all this a little better. My GI doctor has already told me that regardless of the biopsy results he believes I have celiac and either way I have to live a dedicated gluten free life as a celiac 

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knitty kitty Grand Master
On 9/18/2024 at 12:45 PM, Ginger38 said:

I have about one more week to go on the gluten challenge; I’ve been noticing some odd things and am wondering if they are gluten related— chest pain, extreme sleepiness and yawning, feeling off balance and feeling like I’m walking sideways or something,  tremors and feeling like my insides are shaking. Ive noticed being forgetful and struggling to find words but I’ve also been stuttering some which is not something I ever do

These are some of the symptoms I have had while deficient in Thiamine (and the other B vitamins).  

Tachycardia (chest pain) can be a symptom of Thiamine deficiency.  Yawning can be called "air-hunger" or "sailors' asthma" and is a symptom of low thiamine because Thiamine is needed to help red blood cells carry oxygen. 

The part of the brain that controls balance is affected by low Thiamine and makes one feel off balance.  I walked sideways.  

Tremors, shaking, and muscle cramps can be caused by low Thiamine.  Fatigue and being sleepy are symptoms of low Thiamine.  Thiamine deficiency affects the nerves, so strange sensations can appear.

Stuttering and alterations in mental ability like word recall and forgetfulness are symptoms of Thiamine deficiency.  Thiamine deficiency can also cause dysphagia, trouble swallowing, and a hoarse voice.  

Reflux can be related to low Thiamine and low Niacin B3 which are needed to produce stomach acid and digestive enzymes.  Reflux is a symptom of low stomach acid.  Proton pump inhibitors make this worse and should not be taken.  Magnesium or calcium will take care of reflux.  

I'm on pins and needles waiting to hear your biopsy results!  So glad you made it through the challenge.  

Please get checked for nutritional deficiencies.  Blood serum levels are not accurate.  Talk to your doctor about supplementing with vitamins and minerals while healing.

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    • knitty kitty
      These are some of the symptoms I have had while deficient in Thiamine (and the other B vitamins).   Tachycardia (chest pain) can be a symptom of Thiamine deficiency.  Yawning can be called "air-hunger" or "sailors' asthma" and is a symptom of low thiamine because Thiamine is needed to help red blood cells carry oxygen.  The part of the brain that controls balance is affected by low Thiamine and makes one feel off balance.  I walked sideways.   Tremors, shaking, and muscle cramps can be caused by low Thiamine.  Fatigue and being sleepy are symptoms of low Thiamine.  Thiamine deficiency affects the nerves, so strange sensations can appear. Stuttering and alterations in mental ability like word recall and forgetfulness are symptoms of Thiamine deficiency.  Thiamine deficiency can also cause dysphagia, trouble swallowing, and a hoarse voice.   Reflux can be related to low Thiamine and low Niacin B3 which are needed to produce stomach acid and digestive enzymes.  Reflux is a symptom of low stomach acid.  Proton pump inhibitors make this worse and should not be taken.  Magnesium or calcium will take care of reflux.   I'm on pins and needles waiting to hear your biopsy results!  So glad you made it through the challenge.   Please get checked for nutritional deficiencies.  Blood serum levels are not accurate.  Talk to your doctor about supplementing with vitamins and minerals while healing.
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    • Ginger38
      Thanks for the info, that helps me understand all this a little better. My GI doctor has already told me that regardless of the biopsy results he believes I have celiac and either way I have to live a dedicated gluten free life as a celiac 
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      glucel.  There's a lot of cost, including liability issues when a manufacture labels a product gluten free to be sold in the USA. 
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