Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question about wheat exposure in my profession


Grace Mattaliano

Recommended Posts

Grace Mattaliano Newbie

Hello everyone!

I am a college senior doing a capstone project on wheat starch paste being used in paper conservation labs as an adhesive. It is the most common adhesive used, and conservators make it every week, often multiple times a week. I realized that this might be a problem for aspiring conservators who have celiac disease or wheat allergy when I was making it during my summer internship in art conservation. I am gluten intolerant myself so was a bit cautious while handling, but realized it might pose a way bigger risk to people who have celiac and wheat allergies. My project will focus on viable alternatives to wheat starch paste so that aspiring conservators can safely work in a paper conservation lab with these diseases and allergies.

Before I go farther with my project, I wanted to ask you all if wheat starch paste actually is dangerous for people with celiac and wheat allergy to work with. I was operating under the assumption that it was, but was recently told that it might be wrong, so I would love to hear your input. 

We make wheat starch paste by scooping wheat starch into a pot, in which the wheat starch gets on our hands, on the table, and we also inhale it because it clouds into the air (for lack of better description). Then we heat and mix it for ~30 min. These exposures seem dangerous to me for people with celiac disease, because even microscopic particles could travel from your hands and clothes to food that you eat and make you sick.

Then, when it is ready to be used as an adhesive, conservators use their hands and tools to apply it to tears in paper, in which it also gets on hands.

So, what do you all think about this? Would handling wheat starch paste be dangerous for people with celiac disease and wheat allergies?

Also, please let me know if I should post this in another forum category, I wasn't sure which to post to.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome to the forum, @Grace Mattaliano!

In order to answer your question, we need to know more about the wheat starch. Not all wheat starch is the same. Has the wheat starch being used in these projects been processed and chemically treated so as to remove the gluten (or most of it) such as we see in some "gluten free" pizza products or some bulk laxative products for instance? 

When I was a kid we used to make paper paste out of ordinary wheat flour which, of course, would have contained both the protein component (gluten) and the starch component. Just mixed a little water with it. Is this the kind of wheat starch being used in your projects?

Edited by trents
Scott Adams Grand Master

Most wheat starch has most of the gluten removed, but only Codex wheat starch will test below 20ppm. It's clear that this type of work could never be done with someone who has a severe wheat allergy, not matter which wheat starch was used.

As for people with celiac disease, those who are highly sensitive or have dermatitis herpetiformis (the skin manifestation of celiac disease) would likely have issues doing this type of work, but many with celiac disease might be able to handle the wheat starch. It is very difficult to say exactly which celiacs might be ok, and which would not, but overall it's likely a job best avoided by those with celiac disease.

Grace Mattaliano Newbie

To @trents and @Scott Adams (sorry I don't know how to reply to specific posts!),

Thank you so much for your help! I did some research and have another question. It seems like all wheat starch used in most conservation labs should be gluten-reduced, but I am not sure if they are completely free of it. I found this description online: 

"AYTEX-P is an unmodified, highly purified wheat starch. It contains approximately 87% to 91% starch, 9% to 13% moisture, and less than 1% fibre, protein, and mineral matter from the wheat germ. Other sources of purified, food-grade wheat starch are available and may be more accessible." from https://www.canada.ca/en/conservation-institute/services/conservation-preservation-publications/canadian-conservation-institute-notes/wheat-starch-paste.html

Does this mean that there is less than 1% of gluten? It also seems that some labs will use less purified wheat starch because of accessibility issues, which could be a risk for people with celiac disease, especially with dermatitis herpetiformis as you mentioned. It sounds like it is less of a risk than I thought, but there is always a small chance of ingestion or skin contact if the conservator is highly sensitive. 

trents Grand Master

Yes, it would mean that the wheat starch contains less that 1% gluten. Gluten is not the only protein in the wheat kernel: https://engrain.us/understanding-wheat-protein-content/

It sounds like to me you have a good handle on the variables and hence the questions. The only way to nail this down any further would be to have the starch in question tested for gluten content. The FDA standard for "Gluten Free" is 20 ppm and the GFCO standard for "Certified Gluten Free" is 10 ppm. Even then, the question of safety could not be answered for all celiacs because of the huge range in sensitivity. For some, even 10 ppm is enough to generate a celiac reaction. So, I think it would be impossible to answer the question of safety of the wheat paste adhesive for 100% of celiacs but it might be possible to answer it for the majority, as does the FDA standard of 20 ppm.

Grace Mattaliano Newbie

Thank you so much, this is extremely helpful! I will highlight this in my project and mention the huge range in sensitivity as well as the need for the paste to be below 10 ppm to be safe for most, but not all. I am going to focus my project both on finding alternatives for people with wheat allergies and celiac disease and also people who do not have access to wheat starch paste. Thanks again for all of your help.

trents Grand Master

You are more than welcome. Blessings on your work in this area and thank you for watching out for those of us with gluten disorders.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,311
    • Most Online (within 30 mins)
      7,748

    EMP6543
    Newest Member
    EMP6543
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.