Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question about wheat exposure in my profession


Grace Mattaliano

Recommended Posts

Grace Mattaliano Newbie

Hello everyone!

I am a college senior doing a capstone project on wheat starch paste being used in paper conservation labs as an adhesive. It is the most common adhesive used, and conservators make it every week, often multiple times a week. I realized that this might be a problem for aspiring conservators who have celiac disease or wheat allergy when I was making it during my summer internship in art conservation. I am gluten intolerant myself so was a bit cautious while handling, but realized it might pose a way bigger risk to people who have celiac and wheat allergies. My project will focus on viable alternatives to wheat starch paste so that aspiring conservators can safely work in a paper conservation lab with these diseases and allergies.

Before I go farther with my project, I wanted to ask you all if wheat starch paste actually is dangerous for people with celiac and wheat allergy to work with. I was operating under the assumption that it was, but was recently told that it might be wrong, so I would love to hear your input. 

We make wheat starch paste by scooping wheat starch into a pot, in which the wheat starch gets on our hands, on the table, and we also inhale it because it clouds into the air (for lack of better description). Then we heat and mix it for ~30 min. These exposures seem dangerous to me for people with celiac disease, because even microscopic particles could travel from your hands and clothes to food that you eat and make you sick.

Then, when it is ready to be used as an adhesive, conservators use their hands and tools to apply it to tears in paper, in which it also gets on hands.

So, what do you all think about this? Would handling wheat starch paste be dangerous for people with celiac disease and wheat allergies?

Also, please let me know if I should post this in another forum category, I wasn't sure which to post to.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome to the forum, @Grace Mattaliano!

In order to answer your question, we need to know more about the wheat starch. Not all wheat starch is the same. Has the wheat starch being used in these projects been processed and chemically treated so as to remove the gluten (or most of it) such as we see in some "gluten free" pizza products or some bulk laxative products for instance? 

When I was a kid we used to make paper paste out of ordinary wheat flour which, of course, would have contained both the protein component (gluten) and the starch component. Just mixed a little water with it. Is this the kind of wheat starch being used in your projects?

Edited by trents
Scott Adams Grand Master

Most wheat starch has most of the gluten removed, but only Codex wheat starch will test below 20ppm. It's clear that this type of work could never be done with someone who has a severe wheat allergy, not matter which wheat starch was used.

As for people with celiac disease, those who are highly sensitive or have dermatitis herpetiformis (the skin manifestation of celiac disease) would likely have issues doing this type of work, but many with celiac disease might be able to handle the wheat starch. It is very difficult to say exactly which celiacs might be ok, and which would not, but overall it's likely a job best avoided by those with celiac disease.

Grace Mattaliano Newbie

To @trents and @Scott Adams (sorry I don't know how to reply to specific posts!),

Thank you so much for your help! I did some research and have another question. It seems like all wheat starch used in most conservation labs should be gluten-reduced, but I am not sure if they are completely free of it. I found this description online: 

"AYTEX-P is an unmodified, highly purified wheat starch. It contains approximately 87% to 91% starch, 9% to 13% moisture, and less than 1% fibre, protein, and mineral matter from the wheat germ. Other sources of purified, food-grade wheat starch are available and may be more accessible." from https://www.canada.ca/en/conservation-institute/services/conservation-preservation-publications/canadian-conservation-institute-notes/wheat-starch-paste.html

Does this mean that there is less than 1% of gluten? It also seems that some labs will use less purified wheat starch because of accessibility issues, which could be a risk for people with celiac disease, especially with dermatitis herpetiformis as you mentioned. It sounds like it is less of a risk than I thought, but there is always a small chance of ingestion or skin contact if the conservator is highly sensitive. 

trents Grand Master

Yes, it would mean that the wheat starch contains less that 1% gluten. Gluten is not the only protein in the wheat kernel: https://engrain.us/understanding-wheat-protein-content/

It sounds like to me you have a good handle on the variables and hence the questions. The only way to nail this down any further would be to have the starch in question tested for gluten content. The FDA standard for "Gluten Free" is 20 ppm and the GFCO standard for "Certified Gluten Free" is 10 ppm. Even then, the question of safety could not be answered for all celiacs because of the huge range in sensitivity. For some, even 10 ppm is enough to generate a celiac reaction. So, I think it would be impossible to answer the question of safety of the wheat paste adhesive for 100% of celiacs but it might be possible to answer it for the majority, as does the FDA standard of 20 ppm.

Grace Mattaliano Newbie

Thank you so much, this is extremely helpful! I will highlight this in my project and mention the huge range in sensitivity as well as the need for the paste to be below 10 ppm to be safe for most, but not all. I am going to focus my project both on finding alternatives for people with wheat allergies and celiac disease and also people who do not have access to wheat starch paste. Thanks again for all of your help.

trents Grand Master

You are more than welcome. Blessings on your work in this area and thank you for watching out for those of us with gluten disorders.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,305
    • Most Online (within 30 mins)
      7,748

    Mia Cromwell
    Newest Member
    Mia Cromwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.