Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  1. Grace Mattaliano

    Grace Mattaliano

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - RMJ replied to Chrissyjo's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      I think I’ve got it ?

    2. - Scott Adams replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      24

      Shaking/Tremors and Off Balance

    3. - trents replied to Grace Mattaliano's topic in Related Issues & Disorders
      4

      Question about wheat exposure in my profession

    4. - Scott Adams replied to lnwalser96's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed with Celiac disease

    5. - Scott Adams replied to Pgomez300's topic in Related Issues & Disorders
      2

      Couple of balls found on my stomach


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,916
    • Most Online (within 30 mins)
      7,748

    Maureen1
    Newest Member
    Maureen1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      Be sure to eat plenty of gluten between now and your gastroscopy.  Stopping gluten too soon can lead to false negative results.  Plus, in case you do have celiac disease, you might want to eat all of your favorite gluten-full foods while you can!
    • Scott Adams
      I could mean that: You have celiac disease but caught it early, before villi damage (especially true if you had a positive blood test for celiac disease--but there is the Marsh scale, and even minor damage could be caused by celiac disease); You have gluten sensitivity--approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. You don't have either of the conditions and can eat gluten normally. From all of your posts I don't think you fit #3 here, so no matter the outcome a gluten-free diet might be your outcome for optimal health.
    • trents
      Yes, it would mean that the wheat starch contains less that 1% gluten. Gluten is not the only protein in the wheat kernel: https://engrain.us/understanding-wheat-protein-content/ It sounds like to me you have a good handle on the variables and hence the questions. The only way to nail this down any further would be to have the starch in question tested for gluten content. The FDA standard for "Gluten Free" is 20 ppm and the GFCO standard for "Certified Gluten Free" is 10 ppm. Even then, the question of safety could not be answered for all celiacs because of the huge range in sensitivity. For some, even 10 ppm is enough to generate a celiac reaction. So, I think it would be impossible to answer the question of safety of the wheat paste adhesive for 100% of celiacs but it might be possible to answer it for the majority, as does the FDA standard of 20 ppm.
    • Scott Adams
      Welcome to the forum.  If you can't avoid eating out due to work and travel, you may want to consider taking an AN-PEP based enzyme like GliadinX (a sponsor here), as there has been a lot of research that shows that it can break down small amounts of gluten in the stomach. I still eat out because I enjoy doing so, and I used to have issues ~30% of the time, but since taking these before any meal at a restaurant I haven't had any issues. I still want to support what @trents mentioned, which is the fact that it is still a much safer bet for celiacs to avoid eating out, as totally avoiding gluten is still the overall safest approach.
    • Scott Adams
      If you believe that the rash or other symptoms you have might be caused by gluten sensitivity, then perhaps you could ask your doctor to have you screened for celiac disease? Some of the symptoms you mentioned, with the exception of the rash and nausea, don't sound like typical celiac disease symptoms, however, the only way to know for sure would be to get screened.
×
×
  • Create New...