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unreal blood test results, at least to me


glucel

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glucel Apprentice

I have had microscopic blood in my urine every blood test for last 50 yrs. Initial testing indicated nephritis/berger's disease which could impact the kidneys. I have always paid special attention to testing to see if it ever went higher than +1in rbc. Yesterday I had my annual physical and the urinalysis came back normal. As reference point, I have been gluten free for 4 months. Blew my mind and offers some hope even if it may be just a one off. So I did a little research to see if I could find any correlation between nephritis and celiac. I found a truly amazing article from the American pediatric ass.

https://publications.aap.org/pediatrics/article/148/4/e2021051332/183291/IgA-Nephropathy-as-the-Initial-Presentation-of?autologincheck=redirected

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    • Raquel2021
      Same here. Looking for answers.  My endoscopy also showed chronic gastritis. I hope you find some answers.  Let.me know if you.
    • Helen Robertson
      Yes, when I learned of the Omeprazole side effects I stopped it immediately and experienced extreme acid rebound, but between Tums and Famodidine, I stuck it out.  But I’m sure that the vitamin deficiencies I experienced were caused by taking this medication for almost a year.  And could it be responsible for the blunted villi?  Who knows.  The endoscopy also showed that I have an irritated stomach (again, whatever that means) but biopsies revealed “mild” irritation.  I’m hoping that with strict Gluten-free diet and mild foods that will repair on its own.  Not sure. And here I thought all you had to do is go gluten free and that would solve the problem.  I’m just sad that my GI doc who diagnosed me has retired.  My new GI doc is quite knowledgable, but extremely busy and I can’t get in to see him before November.  Unless they reschedule me again and push it out.
    • Raquel2021
      Exactly my thoughts.  Having blunting of the villi means you have not completely healed the small intestine. It means you still have some damage.  We need normal villi to absorb nutrients properly.  From what I have heard your bot supposed to take Omeprazole indefinitely as this can also cause the body not to absorb nutrients.  It is interesting you had normal villi and now you are back to blunting. 
    • Raquel2021
      Thanks again. My first endoscopy said mild blunting of the villi. The recent one said the same thing mild blunting of the villi. I went back to the GI because eventhough my symptoms had improved I am still suffering from a lot of them. I had read on this forum about people feeling great again and that never happened to me in the 4 years of gluten-free diet. I have also read articles here about some people never fully recover.
    • Helen Robertson
      I was diagnosed in 2004 via biopsy and had a repeat endoscopy in 2006.  At that time my villi had grown back and I was fine.  Most recently I’ve been having gluten symptoms but antibody blood tests were normal.  I have Vitamin D, Vitamin B12 and folate deficiency’s, however, and am taking copious amounts of vitamins to fix that problem.  I must admit, the depression and exhaustion is much better, although taking the vitamins has been problematic since I regularly choke on them.  The endoscopy revealed that I have blunted villi but the doctor said that since the biopsies were normal, that my stomach is fine.  Really?  Is it really?  Why would he notate that the villi were blunted - whatever that means - if it’s normal?  I’m still experiencing acid reflux and GERD, but are they related to blunted villi or taking too much Omeprazole?  I am uber careful to the point that my kitchen is divided in two - with my husband having his own gluten food cabinet, toaster and microwave.  Would appreciate thoughts.
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