Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly diagnosed with Celiac disease

lnwalser96
 Share

Recommended Posts

lnwalser96 Newbie
lnwalser96
Posted

Hello! My names Lauren. I’m newly diagnosed with celiac disease and I am struggling. I have to eat on the go a lot due to my job. But I do my research and request gluten free. But it seems no matter what I get or eat I feel sick afterwards. Im not even entirely sure what symptoms I should look out for. What I’ve experienced so far is bloating, fatigue, gas, burping and nausea. Worse case scenario is extreme stomach pain and diarrhea….please help! I know meal Prep at home is best and I am discovering I may have to just do that! So recipes, stores, snack ideas are all appreciated!! 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, Inwalser96! 

Studies show that eating out is the #1 way to sabotage the gluten free diet. You may order stuff that is gluten free but you have little or no control over how it is cooked and handled back in the kitchen to prevent cross contamination. Our administrator, Scott Adams, tells the story of ordering gluten free pasta at a popular Italian restaurant chain franchise and becoming quite ill afterward. He followed up with kitchen staff and found out that his gluten free pasta was being cooked in the same water along with wheat-based pasta. To avoid CC (cross contamination) things need to be cooked on dedicated or thoroughly cleaned grill surfaces/pots/pans, and be served/sliced with dedicated utensils, etc. How many eating establishments do you think are going to do that for you? I am also attaching this article which is a primer for getting off to a good start in eating gluten free. There is quite a learning curve as gluten is found in the food supply in places you would never expect: 

 

 

 

Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum. 

If you can't avoid eating out due to work and travel, you may want to consider taking an AN-PEP based enzyme like GliadinX (a sponsor here), as there has been a lot of research that shows that it can break down small amounts of gluten in the stomach. I still eat out because I enjoy doing so, and I used to have issues ~30% of the time, but since taking these before any meal at a restaurant I haven't had any issues. I still want to support what @trents mentioned, which is the fact that it is still a much safer bet for celiacs to avoid eating out, as totally avoiding gluten is still the overall safest approach.

Wheatwacked Veteran
Wheatwacked
Posted

Red Bull (not sugar free)  for energy during the day.  Food at home.  Salads are hard to contaminate.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ann13
      - Ann13 replied to Iris Kraft's topic in Gluten-Free Foods, Products, Shopping & Medications
      19

      Inhaler problem

      My POINT trents, was actually related to food more than inhalers causing your issue. My POINT is that even though gluten free food is supposed to not cause a reaction it does and can in some people so think about what you're eating...premade foods labeled gluten free like breads, pastry, cookies....whatever you're consuming....may be causing the reaction...
    2. Farralley
      - Farralley replied to Farralley's topic in Related Issues & Disorders
      2

      Sore mouth lining and Coeliac Disease.

      Thanks Christina. The Granola products I tried were marked Gluten Free so supposed to be suitable. I've had many tests done but no results yet but I get the results in next day or so. I may well have these issues due to deficiencies. Just wanted to get some anecdotal feedback about the issue before I see the GE specialist If and...
    3. cristiana
      - cristiana replied to Farralley's topic in Related Issues & Disorders
      2

      Sore mouth lining and Coeliac Disease.

      Hi @Farralley and welcome to the form I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp. Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I...
    4. Farralley
      - Farralley posted a topic in Related Issues & Disorders
      2

      Sore mouth lining and Coeliac Disease.

      Hi all I was diagnosed wuth Coeliac Disease about 9 months ago after my GP was investigating chronic anaemia. I had an endoscopy and 'total atrophy of the villa' was observed. I have recently had test to check fir other nutrient deficiencies. The test resilts will be shared with me soon during a visit to the Gastro Entrologist. My concern is a...
    5. trents
      - trents replied to Lizy487's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Inconclusive biopsy results

      In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      128,848
    • Most Online (within 30 mins)
      7,748
    PDXCeliac81
    Newest Member
    PDXCeliac81
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Ann13
      Inhaler problem

      By Ann13 · Posted

      My POINT trents, was actually related to food more than inhalers causing your issue. My POINT is that even though gluten free food is supposed to not cause a reaction it does and can in some people so think about what you're eating...premade foods labeled gluten free like breads, pastry, cookies....whatever you're consuming....may be causing the reaction. I can't eat any gluten free breads from stores & certain pasta is a no too...others are OK. You may want to eliminate certain foods and see if your problem clears up.  2. Check with the inhaler manufacturer to ensure it's gluten free. Other than those two points if it continues a throat scope by an ENT may be needed to rule out other things. 
    • Farralley
      Sore mouth lining and Coeliac Disease.

      By Farralley · Posted

      Thanks Christina.  The Granola products I tried were marked Gluten Free so supposed to be suitable.  I've had many tests done but no results yet but I get the results in next day or so.   I may well have these issues due to deficiencies. Just wanted to get some anecdotal feedback about the issue before I see the GE specialist   If and wwhenI get an answer, I'll post it her. Cheers!! Carmel  
    • cristiana
      Sore mouth lining and Coeliac Disease.

      By cristiana · Posted

      Hi @Farralley and welcome to the form I have had soreness, ulcers and also find my tongue and inside my mouth is very sensitive and blisters easily (blood blisters) if I bite something sharp.  Ulcers were a big issue twice before I was diagnosed, the doctors didn't put two and two together and think of coeliac disease, but I had two episodes where I had so many, even eating toast and marmalade made me think I was chewing glass. In your case, what you are describing could well be due to a reaction to cross contamination, or perhaps even a sensitivity to oats?  Are you consuming gluten free oats - i.e. certified pure oats, free from contamination?  You will probably know that coeliacs cannot eat standard oats, they have to be oats that are grown and processed separately from gluten containing grains, and certified as such.  But even then, a small percentage of coeliacs cannot tolerate pure oats, in the short term while they are recovering, or even in the longer term, unfortunately.  It took me eight years before I stopped reacting to even pure oats and now eat them with no issues, but for some a reaction to the protein avenin in oats can be either a temporary or long term issue. Another issue is you may be short of iron or B12 and other B vitamins, which can leave your mouth sore and prone to ulcers.  Have you had these levels tested recently?  If the burning continues, I'd definitely ask your doctors to do another blood test. Lastly - you may have burning mouth syndrome, do have a look into that, which could just be a temporary reaction to something - food, a new toothpaste, reflux? For now, in your shoes I'd probably keep an eye on any recurrences and perhaps keep a food diary to see if there is a pattern.  Have the blood test to check for deficiencies, and try to eat soft, bland food for a few days to help recovery along. Hope this helps, Cristiana  
    • Farralley
      Sore mouth lining and Coeliac Disease.

      By Farralley · Posted

      Hi all I was diagnosed wuth Coeliac Disease about 9 months ago after my GP was investigating chronic anaemia. I had an endoscopy and 'total atrophy of the villa' was observed. I have recently had test to check fir other nutrient deficiencies. The test resilts will be shared with me soon during a visit to the Gastro Entrologist.  My concern is a sore mouth lining. I'm not certain but thought that consumption of a gluten free Granola which contained freeze dried berries seems to coincide with the soreness.. it's taken weeks and a range of over-the-counter remedied to reduce the soreness.  I've also been casting around for a remedy and a genuine cause. Perhaps foolishly I  purchased another similar product ( no frozen berries) and my mouth has become a lot sorer almost immediately.  No doubt my doctor will have some ideas. Just wondering if  1. Others had mouth soreness 2. Others had difficulty with gluten-free Granola-like cereal. TThans in advance. Farralley     . 
    • trents
      Inconclusive biopsy results

      By trents · Posted

      In the time leading up to the blood draw for the antibody testing, attempt to consume at least 10g of gluten daily, about the amount found in 4-6 slices of wheat bread. Concerning the two antibody tests I suggested, the "total IGA" is not a test per se to detect celiac disease but to check for IGA deficiency. If you are IGA deficient, the test scores for individual IGA tests will be artificially low and can generate false negatives. The TTG-IGA test is the most popular test ordered by physicians when checking for celiac disease, and considered to be the centerpiece of celiac disease antibody testing, but it is not the only one. Ideally, others would be ordered but cost containment in medicine being what it is, physicians seldom order a "full celiac panel" at the outset. Here is an overview of the tests that can be run:  
×
×
  • Create New...