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UK COVID Vaccination Eligibility For Coeliac Disease

Russ H
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Russ H Community Regular
Russ H
Posted (edited)

For those in the UK wondering whether a diagnosis of coeliac disease alone makes one eligible for a 2024 Autumn COVID booster, it seems that yes, this does make one eligible. There is variability between GP surgeries in proactively calling people in for vaccination, but it is straightforward to use the NHS App to book a vaccination. If attending a pharmacy you might have to point out the information to the pharmacist. I have had no problem receiving vaccinations at nurse-led drop-in centres or GP surgeries but did have an awkward pharmacist on one occasion.

According to the UK Health Security Agency, COVID vaccination is offered to (ignoring other qualifying criteria):

Quote

individuals aged 6 months to 64 years in a clinical risk group (as defined in tables 3 or 4 in the COVID-19 chapter of the Green Book)

UKHSA, Who’s eligible for the 2024 COVID-19 vaccine, or ‘Autumn Booster’?

According to Table 3 of Chapter 14a of the Green Book, coeliac disease is a risk group:

Quote

Asplenia or dysfunction of the spleen: This also includes conditions that may lead to splenic dysfunction, such as homozygous sickle cell disease, thalassemia major and coeliac syndrome

COVID-19: the green book, chapter 14a

Approximately 30% of people with coeliac disease are hyposplenic - it is more common in those diagnosed in adulthood than childhood.

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    • RMJ
      Too early for diagnosis?

      By RMJ · Posted

      Celiac associations have some directories of physicians: National Celiac Association Pediatrics directory Celiac Disease Foundation searchable directory  
    • JForman
      Too early for diagnosis?

      By JForman · Posted

      Thanks so much. I will definitely look into this. 
    • JForman
      Too early for diagnosis?

      By JForman · Posted

      Thank for you such a lengthy response! She has been on gluten (eating whatever) for quite some time, and was when we did the scope after the first round of labs. Lately, I’ve been feeling a bit “crazy,” after so many doctors have been unable to find a root cause for her troubles. Your insight is helping me feel less so. I do have NCGS. Or I suppose it could be celiac. I’ve just never been tested. I realized a few years ago if I have gluten, I get a horrible rash on my scalp and my eyelids, get gassy, the like.  Wouldn’t it be important to determine if she does have celiac, to prevent cross contamination and prepare her for the future? I know taking her off gluten and living a gluten-free lifestyle without testing is an option, but wouldn’t it be best to know for sure if it’s celiac?  Is there any kind of directory I could access to find a celiac specialist? Our GI was fine, but when the scope was negative it felt like he threw all possibility of it being celiac out the window, not considering some of the basic things youve said here. And he’s the one who ordered the labs I reported above. We are cash pay in the US, so it may be that he was trying to save us money by not ordering it. Not sure.    Thanks again! 
    • Russ H
      UK COVID Vaccination Eligibility For Coeliac Disease

      By Russ H · Posted

      For those in the UK wondering whether a diagnosis of coeliac disease alone makes one eligible for a 2024 Autumn COVID booster, it seems that yes, this does make one eligible. There is variability between GP surgeries in proactively calling people in for vaccination, but it is straightforward to use the NHS App to book a vaccination. If attending a pharmacy you might have to point out the information to the pharmacist. I have had no problem receiving vaccinations at nurse-led drop-in centres or GP surgeries but did have an awkward pharmacist on one occasion. According to the UK Health Security Agency, COVID vaccination is offered to (ignoring other qualifying criteria): UKHSA, Who’s eligible for the 2024 COVID-19 vaccine, or ‘Autumn Booster’? According to Table 3 of Chapter 14a of the Green Book, coeliac disease is a risk group: COVID-19: the green book, chapter 14a Approximately 30% of people with coeliac disease are hyposplenic - it is more common in those diagnosed in adulthood than childhood.
    • Nicole Maree
      Frequent toilet stops after going gluten-free

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