16 year old daughter just diagnosed with Celiac and potentially POI

[Maureen1]

My 16 year old daughter was recently diagnosed with Celiac and potentially Premature Ovarian Insufficiency.  Her blood work indicated her FSH level was 100 which I know is seriously high.  She has been gluten free now for one month but they want to retest her FSH level to receive a diagnosis for POI.  I'm completely devastated for my daughter to think she will never be able to have children.  I'm wondering if anyone has experienced their FSH level normalizing once they were gluten free from such a high FSH level.  Thank you!

[Scott Adams]

I'm really sorry to hear about your daughter's diagnosis, and I can imagine how overwhelming this must feel for both of you. While I don't have personal experience, I do know that there can be a strong connection between celiac disease and hormone imbalances, and going gluten-free can sometimes help regulate these systems over time.

In some cases, high FSH levels in people with celiac disease have been linked to nutrient deficiencies or inflammation caused by gluten, and once the body starts healing on a strict gluten-free diet, things can improve. It's encouraging that they plan to retest her levels after a period on the gluten-free diet, as it might take time for the body to adjust.

I know it’s hard not to think about the worst-case scenario, but try to stay hopeful. Every case is unique, and some people do see improvements in hormone levels as they heal. It might also be helpful to work with a healthcare provider who understands both celiac disease and hormonal issues to make sure your daughter is getting the right support nutritionally and medically.