Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate
  1. Scott Adams

    Scott Adams

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to beyondbabs23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused is an understatement

    2. - beyondbabs23 replied to beyondbabs23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused is an understatement

    3. - Wheatwacked replied to beyondbabs23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused is an understatement

    4. - beyondbabs23 replied to beyondbabs23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused is an understatement

    5. - trents replied to beyondbabs23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused is an understatement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      124,939
    • Most Online (within 30 mins)
      7,748

    Bee123
    Newest Member
    Bee123
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.8k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Yes, by all means, get another doc. Believe me, the ignorance about celiac disease in the medical community sometimes amazes me! Some of them treat it as if it were the latest "fad" diagnosis. It is getting better but there are a lot older docs, even GI specialists out there, who are operating on very outdated notions concerning celiac disease.
    • beyondbabs23
      @Wheatwacked I am a little frustrated with my doctor and the way things have went. I also have been suffering with severe acid reflux and nausea since my EGD, called the office to let them know and haven’t even gotten a call back for that, let alone anything else.  When I return home after this job assignment, I will look for a better Gastro to build a repor with, as of course this happens out of town. Im also frustrated because I’m 26, this is all new to me. I feel like they are treating this as a  run of the mill diagnosis to them, when it isn’t to me! It just isn’t being handled with much grace
    • Wheatwacked
      It is not your ignorance but your doctors ignorance that is concerning, That’s why the moral of the story at this time is to evaluate how you feel when you eat 100% gluten-free for a couple of months. Until we have highly sensitive tests we can rely on to accurately diagnose gluten sensitivity, diagnosing will involve “building a case” by pulling together many pieces In an effort to justify why we can go against the result of a positive test, we ask “how positive is it’? It’s like getting a positive pregnancy test back and asking “how pregnant am I?”  Are You Confused About Your Celiac Disease Lab Results?
    • beyondbabs23
      @trents Thankfully I haven’t given up Gluten yet fully due to just having my biopsy and have been savoring it until I’m told to let it go, lol.    Yeah very much so it seems the symptoms overlap, as you said from what I’ve been reading. I was having sigmoid pain and strange bowel movement issues. but the doctor told me all Celiacs have upper stomach pain, vomiting, and those are the only Hallmark symptoms, which I don’t believe in the slightest.    I’ll keep pushing ! I did a food intolerance test 2 years ago so I knew I was intolerant to gluten and wheat, but never was tested for Celiac despite that. So NCGS is very possible, I’m not sure if that would elevate IgG like mine or not, but worth asking about ! 
    • trents
      Keep in mind that if you decide to get any repeat testing done for celiac disease, whether it be blood antibody testing or endoscopy/biopsy, those tests are invalid if you are already on a gluten free diet. If you start a gluten free diet at some point as an experiment, you would need to go back to eating generous amounts of gluten (the amount in approximately 4-6 slices of bread) daily for several weeks leading up to the testing. Many doctors are ignorant of the wide range of symptoms and associated medical conditions caused by celiac disease. There are over 200 of them. Yet, many physicians are stuck back on dated models of celiac symptomology composed of "classic symptoms" and give bum steers to their patients. You mention being evaluated for possible diverticular disease which would easily present symptoms that overlap with celiac disease.
×
×
  • Create New...