Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Toddler gluten challenge and vomiting

Zoe26
 Share

Recommended Posts

Zoe26 Newbie
Zoe26
Posted

Hello, I'm looking for some advice. My son is 14 months old with various allergies/intolerances. Went on to prescribed milk from a few months old for rashes and diarrhea. Once we started weaning it became obvious he had a gluten allergy/intolerance. Along with a rice allergy/intolerance. Symptoms vary from rash, itchy skin, eczema and mostly gastro symptoms (up all night inconsolable, gassy, constipated, diarrhea). It took until he was 13 months to see a paeds Dr regarding the issues and only saw a dietician this week. Paeds Dr wanted a gluten and dairy challenge, to introduce both back into his diet and have bloods. 

We started the challenge last Wednesday, by Saturday he had diarrhea, by Sunday he had started projectile vomiting. Always 6-8 hours after eating gluten or dairy. Tolerating fluids and safe foods. Did consider a bug but tolerating large volumes of fluid, no temp, seem by GP and ears throat and chest all clear. He's extremely lethargic, barely moving. GP requested the bloods be done early and to immediately stop the gluten and dairy. I know the bloods will show up any dairy allergies at this point but am well aware he will not test positive for celiac now as only been eating gluten for 8 days and was previously gluten free for 5 months. Does this sound like a coincidence and a childhood bug or does it sound like the affects of eating gluten? Or could it be CMPA and nothing to do with the gluten? I'm desperate for answers 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, @Zoe26!

You seem to have thought through all the possible answers to your own questions so I don't have any insight to give. But at this point I certainly would eliminate all foods that know are causing him problems and get him back to good health. Right now you are dealing with too many variables to be able to come to any firm conclusions about celiac disease.

I would recommend having a genetic test done on your son to check for the genes that provide the potential for developing celiac disease. This is not a diagnostic test but a rule out measure. Almost 40% of the population have one or more of the genes associated with celiac disease but if he doesn't have one of them you can essentially rule it out. A genetic test can be ordered by your physician or you can purchase third party "do it yourself" kits for $150-$250 USD. However, even if he does not have celiac disease he could have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten is the antidote for both.

 

knitty kitty Grand Master
knitty kitty
Posted

@Zoe26,

Does your son have a hoarse voice?

Zoe26 Newbie
Zoe26
Posted
  • Author
5 minutes ago, knitty kitty said:

@Zoe26,

Does your son have a hoarse voice?

He doesn't speak yet only has one or two words, he also not walking yet I wonder if it's all affecting his balance but maybe overthinking it and being paranoid 

17 minutes ago, trents said:

Welcome to the forum, @Zoe26!

You seem to have thought through all the possible answers to your own questions so I don't have any insight to give. But at this point I certainly would eliminate all foods that know are causing him problems and get him back to good health. Right now you are dealing with too many variables to be able to come to any firm conclusions about celiac disease.

I would recommend having a genetic test done on your son to check for the genes that provide the potential for developing celiac disease. This is not a diagnostic test but a rule out measure. Almost 40% of the population have one or more of the genes associated with celiac disease but if he doesn't have one of them you can essentially rule it out. A genetic test can be ordered by your physician or you can purchase third party "do it yourself" kits for $150-$250 USD. However, even if he does not have celiac disease he could have NCGS (Non Celiac Gluten Sensitivity). NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten is the antidote for both.

 

Thank you for the reply. We're in the UK but will speak to our consultant about the genetic testing 

knitty kitty Grand Master
knitty kitty
Posted
(edited)

@Zoe26,

Has he been checked for vitamin deficiencies?   

Is he pulling up to standing position? 

Does he crawl?

I ask because delayed development can be associated with nutritional deficiencies.  

Having a hoarse low voice is symptomatic of Thiamine deficiency in children and adults.  Complete loss of voice is possible, too.  

"He's extremely lethargic, barely moving."  This statement really worries me.  Thiamine deficiency can cause fatigue and loss of energy like this.  Thiamine deficiency can be serious in small children.  Do mention this to the doctor.

It's horrible you and your son had to wait so long for an appointment.

Edited by knitty kitty
Add more information
Wheatwacked Veteran
Wheatwacked
Posted

When my son was diagnosed with Celiac Disease in 1976 as soon as he was weaned, his doctor insisted that we feed him only Nutramigen it was the only hyperallergenic with complete nutrition.  Enfamil and Similac were not acceptable if we wanted him to get healthy.  For one thing they had no  choline back then.

Given the lawsuits against them now, he was right.

He spent about 6 months on the Nutramigen formula exclusively and weaned off of that to a gluten free diet and thrived.

He also predicted that by kindergarden the teacher would beg us to put him on Ritalin, which he took all the way through High School.

image.png.01597ba212c2b0f586e8eaf91edae2b4.png

image.png.442f868d17c3a9e15758218de6fab482.png

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,983
    • Most Online (within 30 mins)
      7,748
    Kari Shover
    Newest Member
    Kari Shover
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for the reply! Doctors over the years have tested me for everything under the sun and tests are normal, except the decreasing bone density, high FSH (in regards to infertility), lower iron, and all the other celiac symptoms I experience. When I was 15 the infertility started (my whole life growing up I always ate gluten, and always had severe stomach problems, I’m an adult now and I still remember the stomach pain as a child) and then from here, they couldn’t figure out why. At the same time I was having all these celiac symptoms but nobody ever put two and two together.   Eventually in adulthood I went off gluten and dairy and felt better. Later in life, the topic was brought up by doctors, but they could never actually test for celiac because I was off gluten for years.   Just recently multiple doctors brought it up again, and said I should rule it out. So the ruling out of celiac, which is direct correlation with these symptoms, infertility at a younge age, on the edge and getting into osteopenia, etc. etc. is the concern. I was off of dairy for the same time as gluten because it made me sick. I did not surely have adequate calcium/D intake as well over these years.   The matter of concern is to once and for all get celiac ruled out for my own health, a gastro doctor recommended I get it done and other doctors to confirm yes or no to officially rule it out.  For these 6 weeks I have not been eating enough gluten then it seems, if 2-3 slices of bread a day is not really enough. I should increase my intake of gluten then and extend the test time?   Thank you very much for your help!! The test for Immunoglobulin IgA being a value of —> “1.25” shows it is in the normal range of 0.54-4.17 g/L on the test. 
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Welcome to the forum, @WildFlower1! The reason you are seeing conflicting results when you research the length of time recommended for doing the "gluten challenge" is that the guidelines have recently been under revision. So there are two components: 1. amount of daily gluten consumption and 2. duration of that amount of daily gluten consumption Recently, the guidelines have been under revision because the medical community was sensing the previous standards were too relaxed, particularly in the daily amount of recommended gluten consumption. The more recent guidelines seem to be calling for higher amounts of daily gluten consumption over (perhaps) as shorter period of time. So, it is becoming a daily minimum of 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks. Personally, I would recommend that amount of consumption be extended from two weeks to four weeks to ensure valid testing. Your Immunoglobulin IgA at 1.25. Was that within normal range? If that one is low, you are IgA deficient and other IgA test results cannot be trusted. But regardless of whether or not you have celiac disease or NCGS (Non Celiac Gluten Sensitivity) the antidote is the same, namely, a gluten free diet. What would you do different if you had a more confident differential diagnosis? And there are other reasons for the development of osteopenia/osteoporosis that you probably should explore. Are you on any serious supplementation for D3 and magnesium?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      The results of my blood tests after 4 weeks: *Tissue Transglutaminase Ab IgA —->   “<0.5 NEGATIVE” *Immunoglobulin IgA —-> “1.25” *Deamidated Gliadin peptide Ab IgG —-> “<0.5 NEGATIVE”    
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Hi there, I have been scouring the forums, medical journals, celiac websites, speaking to my doctor and there seems to be a contradiction in the exact amount of time one must do the gluten challenge for a blood test. Let me please express my gratitude for taking your time to help! I will try and keep this short. In a nutshell, I am positive genetically for celiac. Previously for many years 10+ I have been on a strict gluten free diet. At a very young age, I had infertility, hair loss, low iron, stomach problems, neurological symptoms, continued low bone density etc. etc. all the symptoms that line up with celiac.  I could never get an “official diagnosis” because I was not eating gluten for years.   Recently, I had a bone density scan, and was shocked at the results. I am young and my low bone density is continuously lowering. This lead me  to seriously consider doing the celiac blood test to confirm if I actually have celiac. Years ago, I had an endoscopy and they did a biopsy saying it was negative for celiac - but I had been on a gluten free diet for years. Now, I asked my doctor if I can start the gluten challenge and get this over with. My doctor said two weeks then get the blood test. I have been having 2-3 pieces of bread daily. After four weeks of doing this, I went for the bloodwork - it came back negative for celiac. I am continuing to eat bread daily, it has now been over 6 weeks. I am not able to get an endoscopy. Please, from your experience how long really must I eat bread daily to ensure I do not get a false negative blood test for celiac? I have read up to 12 weeks. One doctor advised this is foolish to even do this gluten challenge as I am damaging my body. My other doctor said 2 weeks eat it, but it showed negative. But with my recent continuous lowering of bone density I personally need to rule celiac out.   Thank you VERY much for your help, I truly appreciate it!!
×
×
  • Create New...