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  1. Karen9084

    Karen9084


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    • Wheatwacked
      That sounds more like a withdrawal from gluten reaction.  Gluten affects the opiod rececptors and like withdrawal from opidis it can take two week or so to withdraw.  Over the years the opiod effect of gluten has been masking the pain. Take it easy,  for the time being eat what makes your tummy happy.  Barring gluten. That pretty much is your answer.  You either have Celiac Disease or Non Celiac Gluten Sensitivity,  whatever the results with the gastro are. In the UK there are financial and tax benefits to an official diagnosis.  It the US it may affect your health insurance negatively.  So you need to evaluate how important an official diagnosis is.  You have a diagnosis from the doctor, and even one day made you feel better.  How much more proof do you need that gluten affects you poorly?  This article may help you decide.   Are You Confused About Your Celiac Disease Lab Results? As trents mentioned if you are continuing with diagnosis you need to continue to eat gluten.  The gastroenterologist will likely want to do an endoscopy looking for damage to your small intestine.  The good about GFD Gluten Free Diet is you feel better.  The bad is that as soon as you begin to heal there is less chance of finding damage. Catch 22. Vitamins can contain gluten, though it's rare.  Either verify yours is gluten free, or simply get one that is.  But it is very important to raise your vitamin D level.  Even taking 10,000 IU a day it took from 2014 until 2021 to raise my level to 80 ng/mg ( in some labs it's measured as 200 nmol/L).   Get tested again in three months to see how much your blood level has gone up.  You may need to increase. Starting GFD is just the start.  No gluten diet removes the cause of the damage.  Now you have to replenish your vitamin deficiencies and repair the damage.   I often get lethagic after eating so I eat in the evening.  It seems that all that I eat goes straight to belly fat.  To keep up energy during the day and keep hunger in bay during the day I drink a lot of Red Bull.  It has suger and glucose for energy (all other foods have to be processed by your already sluggish liver), the vitamins and minerals you need to transport to the mitochondria and convert to ATP and Taurine, an essential amino acid antioxident that our body makes to nutraize the oxidents created by the conversion of glucose to ATP. What other vitamins and meds are you taking?  Check them and even your shampoo for gluten. Common deficiencies that can cause your symptoms are Thiamine, Choline, and Iodine. How long you take to heal depends on how much damage there is, your age, and how well you fulfill your essential vitamins and minerals.  Six months to two years to repair your small intestine.  You also need to repair the damage done by malnutrition. Without the gluten numbing your gut you may find foods that did not bother you now do.  Also your gut bacteria will be changing.  Yogourt and fermented foods like pickles (no vinegar)  will speed that along.  Choose vegetables with low omega six.  Overall you want less than 3 omega 6 molecules in you diet for every 1 omega 3.  Omega-3 and Omega-6 Fatty Acids in Vegetables:
    • Wheatwacked
      If you have this reaction to a drug, whether it has gluten is moot.  That drug is not for you.  There are many other drugs that work as well.  For example a 10 ounce bottle of Magnesium Citrate.
    • amandavc
      Thanks Trents, that is helpful. 😊
    • trents
      The prescription version of Dulcolax may contain the same active ingredient but I wouldn't assume the non-active ingredients are the same as the over the counter product. I would check with the manufacturer of the prescription version to be sure. But if your procedure is tomorrow and you haven't finished the cleanout, will they go through with it?
    • Karen9084
      Thank you, trents. I actually have a prescription that reads Bisacodyl EC and read that it is actually Dulcolax. I’ve been online checking and I believe this does contain gluten. I took one at the start of my prep, another colonoscopy and endoscopy tomorrow but this is the first time I was ever given this medication/Dulcolax to use before the start of prep. Within an hour of the first dose, I was nauseous. I’m supposed to take the second dose as I finish the second half of my prep. I’m not going to take it. I haven’t had a chance yet to actually look up Bisacodyl but this wouldn’t be the first time I have been prescribed medication that contained gluten. The sad thing is, both my doctor and pharmacist know I am celiac and yet we still have to check ingredients on all medications, whether OTC or prescription. 
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