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    1. - cjjones5969 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    3. - trents replied to cjjones5969's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    • cjjones5969
      Sorry if I'm doing this wrong, but I've never been in a forum before.  I was diagnosed as a celiac when I went to the doctor for unusual weight loss because my children thought it would be a good idea.  I have complex PTSD, which I've had since I was 17.  They used to call it Maniac Depression then, and I dealt with it through diet, exercise and mediation.  No drugs, my family live to be very old-95 plus, and I didn't want to start on drugs especially so early on. I thought the weight loss was from my absolute best friend dying, the stress of dealing with it and all his legal and other problems.  I was also his enduring guardian through his cancer battle. So the doctor thought I now had Celiacs, and I went to a specialist doctor who only deals with this, was diagnosed and confirmed by biopsy in January 2023. I live in a town which has 2 restuarants and 3 cafes-none of which can be guaranteed gluten-free, so I pre-prepare all my meals on a weekly basis, cook these myself in my own kitchen and do not share any utensils of any kind.  I have lists of food additives so I know which to use, including colourings and preservatives.  I have a list of medications I downloaded from Mayo Clinic so I can avoid the wrong ones.  My doctor put me on iron tablets-for iron deficiency-these have Vitamin C-and calcium tablets with Vitamin D for my bones.  I am 65, have rarely been ill, except for dyhration problems with my second pregnancy, and now I have Osteo problems as well-which are actually improving with diet and exercise.  I weight lift and have done so since 17 or 18 years of age. This is why I'm very confused about the symptons I now have. 
    • A.C.123
      Those iron tablets are probably your current culprit for stomach pain. I am also anemic and was prescribed the iron tablets as well. I wouldn’t wish those things on my worst enemy! They constipate me horribly and cause the most awful abdominal pain! I refuse to take them. I’m trying gentle iron right now and I think it’s still bloating me. 
    • cjjones5969
    • trents
      Welcome to the forum, @cjjones5969! Just out of curiosity, if you had no symptoms, what led to your diagnosis? You may have developed some additional food intolerances which is very common in the celiac community, particularly with foods whose proteins are similar to gluten. Chief suspects are dairy and oats, even gluten free oats. The protein casein in dairy and the protein avenin in oats are similar to gluten. But it can be almost anything. Those two are very common offenders, however.
    • Scott Adams
      Do you eat out in restaurants? This is a common source of contamination. The first step for you would be to re-examine your diet to be sure that it is 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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