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    1. - knitty kitty replied to cjjones5969's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    3. - cjjones5969 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    4. - A.C.123 replied to cjjones5969's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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    • knitty kitty
      @cjjones5969, Unintended weight loss is a symptom of Thiamine deficiency.  Gluten free processed foods are not required to be enriched with vitamins like gluten containing flours and products made with them.  Switching to a gluten free diet can precipitate vitamin deficiencies. Celiac Disease damages the small intestine where vitamins like Thiamine and the other B vitamins  are absorbed.  B Vitamins cannot be stored for long in the body, so we need to consume sufficient quantities every day.  Thiamine can be stored the least amount of time (21days), and because our bodies require so much of it, thiamine runs out first.  Unexplained weight loss is a symptom of Thiamine deficiency disorder.   Please discuss supplementation with B vitamins with your doctor and nutritionist.  B vitamins are water soluble and any excess is easily excreted if not needed.  Thiamine is nontoxic and safe.  Benfotiamine, a form of Thiamine, has been scientifically shown to promote intestinal healing.  Blood tests for B vitamins are not accurate.  The best way to see if you're low in B vitamins is to take them and look for improvement in health.   Thiamine works with magnesium to make life sustaining enzymes.  Magnesium is also needed to keep calcium in the bones.  Magnesium should also be supplemented when taking Calcium.   Hope this helps!  Keep us posted on your progress!
    • knitty kitty
      Welcome to the forum, @cjjones5969 Are you eating much processed gluten free facsimile foods?   Keep in mind that gluten free processed foods, like gluten free breads, pasta and cookies, are not required to be enriched with vitamins and minerals.  Flours containing gluten are required to be enriched with vitamins and minerals lost in processing.  Eating a diet high in carbohydrates requires additional Thiamine and other B vitamins to turn the carbohydrates into energy.  Early Thiamine deficiency can manifest as "Gastrointestinal Beriberi" which results in abdominal pain,  bloating and gastroparesis.   The Gluten Free diet can be low in essential nutrients, like the B vitamins, Vitamin D, and minerals like iron.   Talk to your doctor and nutritionist about supplementing with B vitamins which boosts the absorption of these essential nutrients.     @A.C.123, I agree, iron supplements can cause constipation.  Have you tried taking iron supplements at bedtime, with a Vitamin C supplement?  Taking mine this way helps immensely.  
    • cjjones5969
      Sorry if I'm doing this wrong, but I've never been in a forum before.  I was diagnosed as a celiac when I went to the doctor for unusual weight loss because my children thought it would be a good idea.  I have complex PTSD, which I've had since I was 17.  They used to call it Maniac Depression then, and I dealt with it through diet, exercise and mediation.  No drugs, my family live to be very old-95 plus, and I didn't want to start on drugs especially so early on. I thought the weight loss was from my absolute best friend dying, the stress of dealing with it and all his legal and other problems.  I was also his enduring guardian through his cancer battle. So the doctor thought I now had Celiacs, and I went to a specialist doctor who only deals with this, was diagnosed and confirmed by biopsy in January 2023. I live in a town which has 2 restuarants and 3 cafes-none of which can be guaranteed gluten-free, so I pre-prepare all my meals on a weekly basis, cook these myself in my own kitchen and do not share any utensils of any kind.  I have lists of food additives so I know which to use, including colourings and preservatives.  I have a list of medications I downloaded from Mayo Clinic so I can avoid the wrong ones.  My doctor put me on iron tablets-for iron deficiency-these have Vitamin C-and calcium tablets with Vitamin D for my bones.  I am 65, have rarely been ill, except for dyhration problems with my second pregnancy, and now I have Osteo problems as well-which are actually improving with diet and exercise.  I weight lift and have done so since 17 or 18 years of age. This is why I'm very confused about the symptons I now have. 
    • A.C.123
      Those iron tablets are probably your current culprit for stomach pain. I am also anemic and was prescribed the iron tablets as well. I wouldn’t wish those things on my worst enemy! They constipate me horribly and cause the most awful abdominal pain! I refuse to take them. I’m trying gentle iron right now and I think it’s still bloating me. 
    • cjjones5969
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