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    • Scott Adams
      You’re already making significant strides toward healing, which is great to see. It's not uncommon to experience persistent or new symptoms during the early stages of a gluten-free diet, especially since full healing can take time and other underlying issues might still need addressing. Here are some thoughts and suggestions based on what you've shared: Regarding Your Current Symptoms: Sweating Issues and Heat Intolerance: These might be linked to autonomic nervous system dysfunction, which can occur with celiac disease. You may want to discuss testing for conditions like dysautonomia or neuropathy with your doctor. Dry Skin and Cracked Hands: This can sometimes result from vitamin deficiencies, especially A, E, or zinc, common in untreated celiac disease. Your body's absorption should improve over time, but consider adding skin-friendly moisturizers or consulting a dermatologist for support. Pins and Needles, Weakness, and Dizziness: These could be due to ongoing malabsorption of vitamins like B12, iron, or magnesium. Bloodwork for these deficiencies might provide clarity. Food Sensitivities and Burning Sensations: Many with celiac initially experience heightened food sensitivities or stomach irritation. A low-FODMAP diet or similar temporary approach could help identify and reduce triggers while your gut heals. Fat Malabsorption (Yellow Stools): This suggests your gut still isn’t absorbing fats properly. Pancreatic insufficiency or small intestinal bacterial overgrowth (SIBO) might play a role. Ask your GI about testing for these. Frequent Urination and Sticky Mucus: These could indicate dehydration or another metabolic imbalance. Ensure you're staying hydrated and consider asking about possible thyroid or blood sugar issues. Vitamin and Nutrient Intake: If oral supplements upset your stomach, here are some alternatives: Sublingual or liquid vitamins (especially B12 and D): These are absorbed under the tongue and bypass the gut. Vitamin Injections: Ask your doctor if a short course of injections could address deficiencies like vitamin D or B12. Bone Broth: It can provide nutrients like collagen and minerals while being gentle on the stomach. Long-Term Diet Improvements: Your current diet is understandably limited to avoid triggering symptoms, but diversification will help as your gut heals. Working with a registered dietitian who specializes in celiac disease could be invaluable to safely reintroduce foods and build a balanced diet. Next Steps: Follow up with your GI about your ongoing symptoms and consider further testing (e.g., nutrient levels, SIBO, or pancreatic function). Ask your doctor about working with specialists, like a neurologist or endocrinologist, if symptoms like dizziness, sweating issues, or fatigue persist. Be patient with your body—healing can take months or even years for some. Keeping a symptom diary might help identify triggers and measure progress. You're asking the right questions, and it's clear you're doing your best to manage your health. Keep advocating for yourself with your healthcare team, and don't hesitate to seek second opinions if you're not getting answers. Wishing you continued progress and healing!
    • Scott Adams
      Does the same issue happen if you eat a vegan yogurt, kimchee, pickles, etc? Those might be better ways for you to get your probiotics.
    • Scott Adams
      Another issue is that most job applications now ask if you have celiac disease, and include it in their list of disabilities which they want you to declare up front. This could lead to discrimination when looking for employment:  
    • Scott Adams
      Yes, it will affect your life insurance rates for sure, and possibly your health insurance rates, at least in the future. I pay very high rates for life insurance in comparison to others I know who are my age, and my last policy was harder to obtain due to my diagnosis. As for health insurance, currently under the ACA you can't be denied or charged more if you have a preexisting condition like celiac disease, however, this could change under the new administration, as they have vowed to implement many changes to the health care system.  Also, regarding follow up testing that should be done on those with celiac disease, many doctors don't do this, and in my case I've had to push for such follow up--for example nutrient deficiency screenings and follow up antibody testing. Depending on your relationship with your doctor, you may be able to get these things done without a diagnosis, or you may not even need to have them done. Most people who have celiac disease and go 100% gluten-free do recover well, and their symptoms go away, but for some, further dietary changes may be necessary, as many have additional food intolerance issues (at least temporarily until their villi fully recover). 
    • RMJ
      I love to bake and have discovered that the brand of gluten free flour used can make a big difference in the result.  I find that the recipes developed for a particular brand of flour work best, and a lot of the companies that produce gluten free flours have recipes on their websites.
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