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Just diagnosed (blood work) awaiting endo. many questions. please help.


kopiq
Go to solution Solved by OfcVal,

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kopiq Apprentice

What vitamins brand is recommended in can order from Amazon Canada 


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knitty kitty Grand Master
(edited)

Yes, a nutritionist should be able to order tests for nutritional deficiencies.  Test for magnesium, Vitamin D, and iron.

Blood tests for the B vitamins are not accurate.  The best way to test for deficiencies is to take B Complex and Benfotiamine and look for improvement.

I like Life Extension, and Nature's Way.  Yes, available on Amazon.  Stay away from rice flour fillers.  

Edited by knitty kitty
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Wheatwacked Veteran

pipingrock.com ships international   https://www.pipingrock.com/international-shipping?keywords=shipping+to+canada&qid=1729725535

This is what I've been takine since 2015. High Potency Vitamin D3, 10,000 IU, 250 Quick Release Softgels $8.69 plus shipping and duties.  There are other options.

trents Grand Master

Keep in mind that blood tests for nutritional deficiencies may not be valid if you are already taking vitamin supplements. That may mask deficiencies. 

kopiq Apprentice

so just to update, Ive been watching what i eat to see what symptoms i develop. one of them is a clogged ear. I noticed a few months ago my ear would clog up every morning and had no idea why. since Ive stopped eating gluten it no longer occurs. I had instant rice two days ago (non gluten free) and developed the clogged ear shortly after eating. yesterday i had gluten free rice and for the last two days no clogged ear. weird stuff. im also noticing fats from eggs or pork make me feel sleepy, lethargic, depressed and my nervous system is masked if that makes sense. I feel like ive taken a pain killer when i eat even the smallest amount of fat. I realize iam not digesting it properly but the effects of it are crazy.

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    • ChrisDun
      Yes he has had recent blood work.  Other than low ferritin everything else was normal 
    • trents
      @LizzieF, if you will be seeking repeat blood antibody testing after undergoing a more rigorous gluten challenge, make sure your physician orders the "total IGA" test to check for IGA deficiency. If you are IGA deficient, all other IGA test scores will be artificially low and this can result in false negatives. Can you list the blood antibody tests that were already done, the scores along with the reference ranges?
    • knitty kitty
      @LizzieF, The anemia which can be caused by low iron can impede antibody production.   NCGS can be a precursor of Celiac Disease, especially in those who already carry Celiac genes.   Celiac is the only disease where you have to self harm to get a diagnosis.   Do talk to your doctor about the updated gluten challenge requirements and a repeat endoscopy.
    • trents
      Welcome to the forum, @LizzieF! Yes, I also question whether or not your exposure to gluten before either the endoscopy/biopsy or the antibody testing was long enough or intense enough to render valid test results. Guidelines for the "gluten challenge" have recently been revised to recommend more intense exposure: at least 10g of gluten (about the amount in 4-6 slices of wheat bread) daily for at least two weeks leading up to the day of the blood draw or the procedure. But frankly, I would certainly give it twice that long to be sure. It is also very possible you are dealing with NCGS (Non Celiac Gluten Sensitivity) instead of celiac disease. They share many of the same symptoms but...
    • trents
      Chris, has your husband had a recent checkup with detailed bloodwork (CBC and CMP)? Has he been checked for vitamin and mineral deficiencies?
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