Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Change in Symptoms


amandavc

Recommended Posts

amandavc Newbie

Hi Everyone, 

this is my first time joining the forum. Thanks in advance to all those who respond. I was diagnosed with celiac about 2 years ago, and also have mast cell dysfunction. My question is, can your symptoms change from one end of the spectrum to another? Historically after being glutened I would experience constipation and horrible bloating along with the headaches brain fog joint pain etc. But I think I am starting to trend toward  having upset stomach sometimes with diarrhea and nausea. For example I suspect I was glutened at a restaurant last night. The waiter was very confused by my request, I knew better but ate it anyway. Today I am very nauseated and have upset stomach with cramping. However, my histamine issues can sometimes cause upset stomach and cramping. My lymph nodes are also swollen but again, happen with both exposure to gluten or histamine build up. 
 

Anyone have any thoughts? 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master
(edited)

Welcome to the forum, @amandavc!

I would also think that your response to being glutened at any time might also depend on what else was in that meal that might have triggered histamine overload or other food intolerances that you might have developed since being diagnosed with celiac disease. And yes, I do think how we react to being gluten changes over time. After being gluten free for years, if I do get glutened now my reaction is much more violent than before diagnosis when I was consuming gluten daily. Before diagnosis, my symptoms were vague and relatively minor but now a glutening episode causes severe abdominal cramps and intractable vomiting for hours, followed by hours of diarrhea. Whatever tolerance to gluten I once had before diagnosis is now gone.

Edited by trents
amandavc Newbie

Thanks Trents, that is helpful. 😊

Scott Adams Grand Master

I agree with @trents and reactions can vary quite a bit from person to person, and can depend on the "dosage" of gluten ingested. 

This article, and the comments below it, may be helpful:

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

    2. - olivia11 replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

    3. - olivia11 replied to olivia11's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      suggest gluten free food

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      26

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,791
    • Most Online (within 30 mins)
      7,748

    blondebomber
    Newest Member
    blondebomber
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • olivia11
      Thanks for asking  I’m mainly looking for gluten-free staples and snacks. Any recommendations for brands or go-to items would be appreciated.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
    • Rogol72
      I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.