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Hi I’m Sammie

SammieCook

By SammieCook
in Coping with Celiac Disease

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SammieCook Newbie
SammieCook
Posted

Hi, I’m Sammy I was diagnosed a celiac disease six years ago after I gave birth to my first child. This is not something that runs in my family so I’m kind of running blind here. I’ve been doing my best to stay on a gluten-free diet even through a second pregnancy and having kids that don’t eat gluten-free. I’m 26 years old. They took my gallbladder 1st and then found that I had celiac disease instead after throwing up for a year straight, including within half an hour after gallbladder surgery violently throwing up. 
 

Got home last night and my entire family has a stomach flu. Did you know it’s way worse on celiac people? I honestly feel like I’m dying is the worst pain I’ve been in and I’ve had two kids. Any advice from anyone on how to help pain??? Please feel free to comment any helpful advice. Thank you.

 

also, so excited to fountain a place to talk to people who have the same issues as me😊 

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trents Grand Master
trents
Posted

Welcome to the forum, @SammieCook!

It is very difficult to avoid cross contamination when other family members are not eating gluten free. But it is imperative that you double down on your own efforts in that area. Also, studies show that somewhere between 10% and almost 50% of those with active celiac disease have celiac disease themselves, even if they don't exhibit classic symptoms. Many are "silent" celiacs. I hope your family's stomach flu passes (excuse the pun) quickly. Viral infections can be the trigger that activates the celiac genes and turns the potential for it into the active form.

Pat Denman Rookie
Pat Denman
Posted

Tylenol works fir me. Try fasting 16-24:)hours. A little chicken soup (home made). Soft boiled egg. My mother called them "coddled" eggs. She ate them fron a small drinking glass. Been watching depression cooking videos. I have come to the conclusion that when we Americans began to replace potatos with grains we all became sick and many overweight. Back to potatos!

captaincrab55 Collaborator
captaincrab55
Posted
55 minutes ago, SammieCook said:

Hi, I’m Sammy I was diagnosed a celiac disease six years ago after I gave birth to my first child. This is not something that runs in my family so I’m kind of running blind here. 

Hi Sammy,  Welcome aboard.  I hate to tell you this, but Celiac is genetic.  Somewhere back in the family line someone had it.  It was common for it to go undiagnosed years back.  My Mom was never diagnosed with it, but suffered with many of the same symptoms I had when I was finally diagnosed at age 56.  Silent Celiac may be in your family.   I'm sure others will chime in with more info.

trents Grand Master
trents
Posted

Celiac Disease has a genetic component. There have been two primary genes (HLDQ2 and HLDQ8) identified with the development of celiac disease and some other secondary genes. About 40% of the general population has one or more of these genes and, therefore, has the potential to develop active celiac disease but only about 1% of the general population actually develops active celiac disease. The development of active celiac disease requires not only the genetic potential but some kind of biological stress element that activates the genes.

Scott Adams Grand Master
Scott Adams
Posted
2 hours ago, SammieCook said:

Got home last night and my entire family has a stomach flu. Did you know it’s way worse on celiac people? I honestly feel like I’m dying is the worst pain I’ve been in and I’ve had two kids. Any advice from anyone on how to help pain??? Please feel free to comment any helpful advice. Thank you.

Consider going to the doctor as it could be stomach flu, food poisoning, etc., and if you are in that much pain be sure to contact your doctor ASAP. I hope you get better soon!

Wheatwacked Veteran
Wheatwacked
Posted
7 hours ago, SammieCook said:

They took my gallbladder 1st and then found that I had celiac disease

It's a misdiagnosis that happens more often than you would think.  I'm sorry.

It's your husband that you need to convince to start GFD for your health.  Once over the hump, he will thank you.  Kids under 6 don't really have much choice in what you feed them.

 

7 hours ago, SammieCook said:

Got home last night and my entire family has a stomach flu.

Zinc Glyconate (Cold-Eeze).  The zinc is antiviral and the lozenge coats the mucus membrane, protecting them from infection.

I like Alka Seltzer, original.  Salicylic acid was once essential vitamin B11 and the bicarbonate soothes the tummy.

Willow Bark Tea.  

Chicken soup with celery and baby carrots.

Double your vitamin D and get your blood level checked.  Without supplementation most with Celiac Disease are low.  Low vitamin D compromises your immune system.  As it is 42% of Americans are deficient in vitamin D.

Quote

The use of willow bark dates to the time of Hippocrates (400 BC) when people were advised to chew on the bark to reduce fever and inflammation. Willow bark has been used throughout the centuries in China and Europe, and continues to be used today for the treatment of pain (particularly low back pain and osteoarthritis), headache, and inflammatory conditions, such as bursitis and tendinitis. The bark of white willow contains salicin, which is a chemical similar to aspirin (acetylsalicylic acid). In combination with the herb's powerful anti-inflammatory plant compounds (called flavonoids), salicin is thought to be responsible for the pain-relieving and anti-inflammatory effects of the herb. In fact, in the 1800s, salicin was used to develop aspirin. White willow appears to bring pain relief more slowly than aspirin, but its effects may last longer.

Mount Sinai Hospital: Willow Bark

 

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knitty kitty Grand Master
knitty kitty
Posted

Welcome to the forum @SammieCook,

Sad to hear you're feeling so poorly.  Let's get you feeling better quickly!  

To settle stomachs, cloves.  Put a couple of whole cloves in hot tea and steep for a few minutes.  Add sweetener (sugar, honey, etc.) if desired.  You can even steep just the cloves if desired.  You can chew up the cloves and swallow them, too.  Cloves contain Eugenol, an oil that has anti-inflammatory, antimicrobial, antiviral, antioxidant and antinociceptive (painkilling) properties.  Works really well quickly.  Great for nausea.

For longer lasting pain relief, take a combination Vitamin B 12 Cobalamine, Vitamin B 6 Pyridoxine, and Thiamine Vitamin B 1.  These three vitamins taken together have analgesic effects without being hard on the digestive system like NSAIDs.  

A poorly functioning gallbladder is frequently caused by Thiamine B1 insufficiency.  I had mine out, too, prior to my celiac disease diagnosis.  We need all eight essential B vitamins, but Thiamine runs out first.  Women often become depleted during pregnancy because of increased metabolic demand.  An increased metabolic demand occurs in infections like the flu and other viruses.  Working in hot temperatures can also deplete Thiamine.  Thiamine insufficiency can present as vomiting and other gastrointestinal symptoms.

Do talk to your doctor and nutritionist about supplementing with B vitamins, Vitamin D and other vitamins and minerals which people with Celiac Disease don't absorb sufficiently.  

Get the kids checked for Celiac Disease genes, too.  Keeping the kids on a gluten free diet while young can lower the risk of them developing Celiac Disease.  

Keep us posted on your progress!

References:

The chemical composition and biological activity of clove essential oil, Eugenia caryophyllata (Syzigium aromaticum L. Myrtaceae): a short review

https://pubmed.ncbi.nlm.nih.gov/17380552/

Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review

https://pubmed.ncbi.nlm.nih.gov/35156556/

Rare Presentation of Thiamine Deficiency as Gastrointestinal Syndrome

https://pmc.ncbi.nlm.nih.gov/articles/PMC4175961/

Thiamine deficiency disorders: a clinical perspective

https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/

AJS3849 Rookie
AJS3849
Posted

It's possible that you have developed visceral hypersensitivity as a result of your digestive issues. Basically, that means that the nerves in your gut have been become super-sensitive due to ongoing irritation and what is normal pain for most people is magnified for you. There's really no cure, but I've found that acetaminophen helps as do a heating pad and/or a TENS unit applied to the abdomen. Hope your pain resolves soon.

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