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Newly diagnosed Celiac

Aussie Celiac
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Aussie Celiac Newbie
Aussie Celiac
Posted

Well at the ripe old age of 55 I'm newly diagnosed as Celiac. What a surprise.  I was low in iron and this was the only symptom. Well I did get heartburn after eating bread but according to all sources this isn't officially a symptom! Better late than never lol. 

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trents Grand Master
trents
Posted

Welcome to this online community and to the celiac nation, @Aussie Celiac! Let us know if we can help you with anything as you start the journey. By the way, we have forum participants who weren't diagnosed until they were in their 80s. It is often the case that the actual onset of the condition precedes the official diagnosis by many years, especially when symptoms are minimal. I was 50-51 when I was diagnosed but looking back I had laboratory evidence of the onset preceding the diagnosis by 13 years. It probably took years for your celiac nutrient malabsorption to deplete your iron stores such that nothing was left in the bank and your actual hemoglobin levels began to drop.

Scott Adams Grand Master
Scott Adams
Posted

Welcome, and heartburn is a symptom, along with ~200 other symptoms, but many celiacs have no symptoms, however, this does not mean that their health is not at risk should they keep eating gluten--the health risks are the same to all celiacs, regardless of whether or not they have symptoms.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

knitty kitty Grand Master
knitty kitty
Posted

Welcome to the tribe, @Aussie Celiac! 

How are you progressing?  Are your iron levels getting better?

Aussie Celiac Newbie
Aussie Celiac
Posted
  • Author

Hi there, I haven't been back for another blood test. I had an iron infusion awhile ago and feel a bit better. It's only quite recent so hopefully things will improve. 

Peace lily Apprentice
Peace lily
Posted

Welcome to the forem

i got diagnosed in march with cealiac it’s been a process for me

 I’m strictly gluten free . I went years with suffering with the pain . Don’t want to go thru with that again if I can help it but I found you really have to read the labels on food products . I had a nutritionist for awhile and helped me get thru this who new soy sauce has gluten in it.

plus this forem helps a lot you will get a lot of knowledge.

good luck

peace lily

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    • trents
      Awaiting diagnosis

      By trents · Posted

      I would ask for a total IGA test (aka, Immunoglobulin A (IgA) and other names as well) to check for IGA deficiency. That test should always be ordered along with the TTG IGA. If someone is IGA deficient, their individual celiac IGA test scores will be artificially low which can result in false negatives. Make sure you are eating generous amounts of gluten leading up to any testing or diagnostic procedure for celiac disease to ensure validity of the results. 10g of gluten daily for a period of at least 2 weeks is what current guidelines are recommending. That's the amount of gluten found in about 4-6 slices of wheat bread.
    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

      There was not a total IGA test done, those were the only two ordered. I would say I was consuming a normal amount of gluten, I am not a huge bread or baked goods eater
    • trents
      Awaiting diagnosis

      By trents · Posted

      Were you consuming generous amounts of gluten in the weeks leading up to the blood draw for the antibody testing? And was there a Total IGA test done to test for IGA deficiency?
    • jlp1999
      Awaiting diagnosis

      By jlp1999 · Posted

      Thank you for the reply. It was the TTG IGA that was within normal limits
    • trents
      Awaiting diagnosis

      By trents · Posted

      Welcome to the forum, @jlp1999! Which IGA test do you refer to as being normal? TTG-IGA? Total IGA? DGP-IGA? Yes, any positive on an IGA or an IGG test can be due to something other than celiac disease and this is especially true of weak positives. Villous atrophy can also be cause by other things besides celiac disease such as some medications, parasitic infections and even some foods (especially dairy from an intolerance to the dairy protein casein). But the likelihood of that being the case is much less than it being caused by celiac disease.
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