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Non glutenfree household


Dora77

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Dora77 Apprentice

I am an asymptomatic celiac, so even if I eat gluten I feel no pain. 
 

But since 6 months I have stools which are very similar to malabsorption stools. Which could mean my small intestine is damaged which would lead to my body not being able to absorb nutrients. 
I live in a gluten household but we look out for not like dipping gluten bread in butter etc.

My mom doesnt make gluten food. But they sometimes make gluten noodle. And bread out of gluten flour. Mostly they buy premade gluten bread. But sometimes they also make it out of gluten flour, is this safe? Or should they completely avoid it? Because I know gluten flour is fine and can get everywhere. So what would be the right approach? Never making bread with gluten flour and cleaning the kitchen table to make sure there are no leftover gluten?

Also can I drink from someone others water bottle if he ate gluten like bread prior?

 

I don’t know what is causing my stools, maybe pancreas enzyme deficit. The only thing which could gluten me are:

what I said like gluten flour in our house (although we do it rare like 1 time in 2 months). I can tell my mom that she should completely avoid making bread of gluten flour. I guess for them to consume premade gluten bread would be fine?

Drinking from friends water bottle

And although I watch out for articles which state may contain gluten, a lot of spices like pepper have tons of stuff behind them like may contain peanuts or may contain gluten and I eat those peppers.

i live in germany and some times there are no gluten ingredients and no may contains but also no glutenfree label like in chips. Is this safe?

Is going near a bakery in for example a supermarket safe? Because of floating gluten in air.

I also dont eat out.

Also I guess all these stuff that I told you which could gluten me would be very small gluten. Do you think it will still damage my inner organs or make me unable to absorb nutrients? Even if I am asymptomatic? Its really hard to know for me because I don’t have any symptoms. My blood results always come fine I think, but I never did a endoscopy. And I heard blood results are unreliable.

The only thing I really worry about is that I don’t want to be unable to absorb nutrients. I don’t have sever stomach pain or similar symptoms. I have celiac since I am 14 and am currently 17,5. 

Would small cross contamination events that occur like 10 times in a month (like drinking from friends bottle, being near gluten airborne flour, etc) cause me to be unable in absorbing nutrients? I also don’t even know how my blood results are but there isn’t anything that explains my stools beside epi or celiac.

Also could it still be that my body can absorb nutrients and function normally even though I have floating undigested stools since 6 months and they are permanent never once had normal stools since 6 months. I also take vitamins and can finally fall asleep under 1 hour since taking vitamin d, etc. but I am scared that my body cant absorb vitamins, protein fully.


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Scott Adams Grand Master

Of course in a perfect world it would be great if the entire family can go gluten-free, but that is unrealistic in most cases. 

For your family who eat regular gluten breads, it would be better if they ate prepared breads rather than baking them in your house, but if some in your home really like to bake, it would at least be advisable to create some rules around when they do it, and how they clean up after, so that you don't get contamination. Keeping your food safe is very important, especially if they bake wheat products in your home.

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

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    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
    • melthebell
      That's interesting - that's a lot of gluten! I'll be very curious to see how my son responds to the gluten. In some ways, I guess having a strong reaction would tell us something? It's tough navigating this as a parent and having it be not so clear cut ;\
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