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Family that thinks “it’s all in your head.”


SoBannaz

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SoBannaz Rookie

Anyone else have family like this? I’ve been gluten free for a little over a decade now. I was diagnosed as a teenager through a gastroenterologist.  But I still get eye rolls and scoffs when I say I can’t eat certain things. I get compared to other family who have celiac they say “but so and so eats this and they have celiac.” Same with my nut allergies (which has been confirmed by an allergist)  my mother “had” nut allergies growing up and a plethora of other food allergies she tells me I need to eat what I’m allergic to and that it will go away. Even just interacting day to day. It is such a social thing to eat whether it be at work or at home. I feel like my coworkers think I’m being difficult when I don’t indulged.  I have people constantly trying to get me to eat things I know will make me sick. No matter how many times I explain it. Me doing what’s healthy for me seems to bother other people for some reason. 


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captaincrab55 Collaborator

Bonnaz,  IMO it sounds like you have many foolish family members and friends!  There may well be a chance that your mom may have celiac disease.  Keep reminding yourself that Celiac Disease isn't an Allergy that may go away with further exposure!  You may need to consider finding new friends that also have celiac disease.  There are groups that get together in many areas.  They often meet at restaurants that serve Gluten Free Meals.  Good Luck.

 

Scott Adams Grand Master

I totally get where you’re coming from! It can be so frustrating when people, especially family, don't fully understand or respect our food sensitivities. Sometimes, even after years of living gluten-free, the skepticism doesn’t seem to go away, and people think it’s “just a choice” or “not that serious.” With celiac disease and allergies, though, it’s not just a preference—it’s a medical need that can impact you for days if you’re exposed.

You’re definitely not alone in dealing with pressure to "just eat it" from people who might not grasp the consequences. Maybe it would help to reinforce that these dietary restrictions were confirmed by specialists—not just personal decisions—and that symptoms and sensitivities can vary widely from person to person, even within families. As for coworkers, it's understandable to feel like you're being judged, but setting boundaries consistently will hopefully show them that your health is non-negotiable.

Stick with what’s best for you, and know that there are many others who completely understand and have your back.

Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease:

This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:

 

 

Pat Denman Rookie

"Do not follow after the crowd to do what is bad." Bible. The world is full of crazy people who have little love for their neighbor. Eat what is best for you and ignore their recommendations. 

  • 1 month later...
nanny marley Explorer

Oh yes same here I've been called a weirdo and health aniexty nut even at first my own daughter's were making fun of me but now they have seen the results there's too doing the gluten and lactose free has they both now older have realised they have problems too and threw me ranting on and changing it's helped them to stop suffering early so you keep doing what your doing a true friend will always understand you and help you I couldn't dream of making someone eat something they can't my granddaughter has a bit allergy imagine he saying it's just a nut build your immunity people can be so self centred wen it comes to compromise around food your not crazy your a human being with a different need hold your head up for all the ones in the same boat and you look after yourself regardless of wat anyone says or thinks  a good saying I like the rainbow has many different colours that's why it's so beautiful so shine your colour 🤗

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    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
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    • trents
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