Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Ataxia

Dawn R.

By Dawn R.
in Related Issues & Disorders

 Share

Recommended Posts

Dawn R. Newbie
Dawn R.
Posted

There doesn't seem to be much information about the effects of Gluten Ataxia in this forum.  I was diagnosed with Celiacs Disease but never had typical gluten symptoms.  My symptoms were all ataxic. 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Welcome to the forum. A search for "ataxia" in our forum shows 718 results:
https://www.celiac.com/search/?q=Ataxia&quick=1&type=forums_topic

We also have an article category dedicated to summarizing research on this topic:
https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/

Do you have a specific question about it?

knitty kitty Grand Master
knitty kitty
Posted

Hi, @Dawn R.,

I get gluten ataxia.  It's very disconcerting.  

Are you still experiencing gluten ataxia symptoms eating a gluten free diet?  

Dawn R. Newbie
Dawn R.
Posted
  • Author

Thank you for responding.  Yes I am.  Infact, sometimes I think it's getting worse. How do you deal with it? I do the best I can but it has taken away my independence.

 

Scott Adams Grand Master
Scott Adams
Posted

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.

 

 

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Orgain Protein Powder

      I've not tried the product, but it is definitely possible that it contains barley and wheat grass, and is gluten-free. I would imagine that they are regularly testing their product for gluten content, since they are making the claim that their product is gluten-free. I personally avoid these ingredients, but some celiacs do consume them without issues. PS...
    2. Scott Adams
      - Scott Adams replied to Celiacandme's topic in Related Issues & Disorders
      1

      Perimenopause/menopause

      Welcome back! Many celiac patients navigating perimenopause or menopause consider estrogen therapy, and there’s growing research highlighting its potential benefits. Estrogen has been shown to reduce certain health risks associated with menopause, such as cardiovascular disease, particularly in post-menopausal women. This is significant since studies suggest t...
    3. Erain
      - Erain replied to 20021979's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Orgain Protein Powder

      https://nationalceliac.org/celiac-disease-questions/do-wheat-grass-and-barley-grass-contain-gluten/ I find this helpful. I will update you on what the company says but most likely will choose one of their products without the wheat and barley grass. Overall, I think the other powders should be safe and I will try them.
    4. Scott Adams
      - Scott Adams replied to Blue Roan's topic in Related Issues & Disorders
      1

      Irregular periods AFTER going gluten-free?

      It’s great to hear that you’re feeling better overall since going gluten-free, but I can understand how these new menstrual symptoms are frustrating and confusing. Hormonal fluctuations and changes in your cycle after a celiac diagnosis are not uncommon. When the body starts healing from prolonged inflammation and malabsorption, it can affect hormones, pa...
    5. Scott Adams
      - Scott Adams replied to Katya773's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Wholefoods 365 Organic Wheatgrass Powder

      I noticed on the label: https://www.wholefoodsmarket.com/product/whole-foods-market-organic-wheatgrass-powder-california-73-ounce-b07g333x4y that it says "Contain Wheat Ingredients," which probably means that it can include the protein from the wheat kernels/seeds.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,109
    • Most Online (within 30 mins)
      7,748
    Makaila pickens
    Newest Member
    Makaila pickens
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Orgain Protein Powder

      By Scott Adams · Posted

      I've not tried the product, but it is definitely possible that it contains barley and wheat grass, and is gluten-free. I would imagine that they are regularly testing their product for gluten content, since they are making the claim that their product is gluten-free. I personally avoid these ingredients, but some celiacs do consume them without issues. PS - my daughter uses this product regularly, and she is very sensitive and has DH as well. She does not have issues with it.
    • Scott Adams
      Perimenopause/menopause

      By Scott Adams · Posted

      Welcome back! Many celiac patients navigating perimenopause or menopause consider estrogen therapy, and there’s growing research highlighting its potential benefits. Estrogen has been shown to reduce certain health risks associated with menopause, such as cardiovascular disease, particularly in post-menopausal women. This is significant since studies suggest that women with celiac disease may already face an elevated risk of heart disease due to chronic inflammation or malabsorption issues prior to diagnosis. Estrogen therapy, whether through pills, patches, or other methods, can also help alleviate menopausal symptoms like hot flashes, mood swings, and bone loss, all of which can be exacerbated by nutrient deficiencies common in celiac patients before going gluten-free. Of course, the decision to use estrogen therapy is highly individual and depends on your health history, risk factors, and how well your body is responding to a gluten-free diet. If you're considering this route, it's a great idea to discuss it with your doctor. They can tailor a plan that aligns with your needs and monitor how the therapy affects your overall health. Hearing about others' experiences can also be helpful, so it's great you're reaching out to connect with others in the community!
    • Erain
      Orgain Protein Powder

      By Erain · Posted

      https://nationalceliac.org/celiac-disease-questions/do-wheat-grass-and-barley-grass-contain-gluten/ I find this helpful. I will update you on what the company says but most likely will choose one of their products without the wheat and barley grass. Overall, I think the other powders should be safe and I will try them.
    • Scott Adams
      Irregular periods AFTER going gluten-free?

      By Scott Adams · Posted

      It’s great to hear that you’re feeling better overall since going gluten-free, but I can understand how these new menstrual symptoms are frustrating and confusing. Hormonal fluctuations and changes in your cycle after a celiac diagnosis are not uncommon. When the body starts healing from prolonged inflammation and malabsorption, it can affect hormones, particularly those involved in your menstrual cycle. Additionally, going gluten-free can improve overall health, which might shift your hormone balance and alter your cycles. Delayed or irregular periods, cramping, and other new symptoms may be part of your body’s adjustment process, especially if your antibodies are still trending downward. While it’s reassuring that your labs are normal and serious conditions like PCOS or thyroid issues have been ruled out, these symptoms might take time to stabilize. You could also explore whether stress, diet changes, or other factors might be contributing. If things don’t improve soon, you might want to revisit your OBGYN to discuss hormone-specific testing, such as estrogen, progesterone, and cortisol levels, to check for imbalances. In the meantime, tracking your symptoms and cycles closely could help you and your doctors identify patterns or triggers. Hang in there—healing can take time, but you’re on the right path!
    • Scott Adams
      Wholefoods 365 Organic Wheatgrass Powder

      By Scott Adams · Posted

      I noticed on the label: https://www.wholefoodsmarket.com/product/whole-foods-market-organic-wheatgrass-powder-california-73-ounce-b07g333x4y that it says "Contain Wheat Ingredients," which probably means that it can include the protein from the wheat kernels/seeds.
×
×
  • Create New...