Neurological/Nervous System Symptoms

[Jordan Carlson]

Hello,

I’ve been gluten free for over a year now. I now know and understand that I have been celiac my whole life and my body has been battling without me knowing. Wondering if this has happened to anyone else after diagnosis but I feel like my immune is system is stuck fighting. My mouth is always tingling, I always see stars in my vision, my heart is always pounding, I am always shakey, I get super warm at times. I also cant get rid of this frequent urination either. I definitely notice improvements since going gluten free but its like my body does not have enough power itself to push through this stage. I have an appointment with my doctor this Thursday. But I am wondering if anyone else has experienced symptoms like this and if there is any cause for concern that my nervous system is damaged.

[Scott Adams]

It sounds like you’ve been through a lot, and I’m glad to hear you’ve already noticed improvements since going gluten-free! It’s not uncommon for people with celiac disease to feel like their body is in a prolonged recovery phase, especially if the damage from years of undiagnosed celiac was severe. Your symptoms, like tingling, seeing stars, a pounding heart, shakiness, and frequent urination, could be related to a number of things—potentially from lingering nutrient deficiencies, nervous system involvement, or another coexisting condition.

It’s good to hear you have an appointment with your doctor soon. Definitely mention all these symptoms. Some questions you might want to explore with them include:

Nutrient deficiencies: Celiac disease can cause deficiencies in vitamins like B12, magnesium, and iron, which might explain some neurological symptoms like tingling and shakiness. Have you had a full panel done recently?

Adrenal or thyroid issues: The pounding heart and frequent urination might suggest something hormonal. Many people with celiac disease also have other autoimmune conditions, like thyroid disorders, that could be worth checking.

Neuropathy or nervous system involvement: Tingling and warmth could be signs of gluten-related nerve damage. While these symptoms often improve over time with a strict gluten-free diet, additional support or tests might be needed.

Blood sugar fluctuations: Symptoms like shakiness and feeling super warm can sometimes point to blood sugar issues. Even if you don’t have diabetes, it’s worth exploring.

While it’s encouraging to hear you’re improving overall, your body might still be healing, and sometimes these lingering symptoms point to something else needing attention. Recovery from celiac can be slow, and managing other factors like stress, sleep, and balanced nutrition can also help support healing.

Let us know what your doctor says! You’re not alone in this, and many of us here understand the frustration of not bouncing back as quickly as we’d like. Sending good vibes for your continued recovery!