Hello:). This a lengthy post. Just looking for some advice. I had the capsule study back in 2019  I tried the gluten challenge but got so horribly distended and could finish it, I had been gluten-free since 2016 except for occasional accidental ingestion. However In 2019 I saw a gastroenterologist due to nonstop diarrhea and bloating. No diagnosis of Crohns or ulcerative colitis. After my biopsy I went to see the doctor and he said I could eat gluten bc my risk wasn’t high. However his nurse practitioner called me later and said I had Celiac?! What the heck??? So I stayed gluten-free.  How confusing! These are partial-biopsy results from 2019. *Signifi retained food stomach/SB. Mult ulcers jejunum/ileum-petechiae, damaged villi, lymphangiectasia. I am DQ2.5 homozygous, my mom has Celiac. Apparently being DQ2.5 homozygous puts Celiacs at risk for refractory Celiac and EATL… How scary and this is another reason why I want to be sure of my diagnosis.  Fast forward to now ,last year  I lost 18 lbs bc I felt so full after small amounts of food and had constant nausea. It comes and goes. Usually I can trace my symptoms to accidental gluten ingestion. Didn’t know Wheatgrass is a no no 😕 I have a new Gastro and he said try another challenge and pill endoscopy. So I did my best  but yet again I didn’t complete it. I’m torn if I should go ahead and try the challenge again like my Gastro  recommended. This whole thing has been so draining. I lost my dad to suicide  a few months ago and my twos cats died within 6 months of each other, my stress levels have sky rocketed. Not feeling well off and on makes it harder to stay positive.   

Bone demineralization would not be detectable via bloodwork. It would require a DEXA scan. The body keeps calcium levels pretty constant in the blood and will rob it from the bones if necessary because it is such an important mineral for many metabolic processes. 

Yes. I am.  Ty. 

Low B12, low iron stores and low D all scream of celiac disease as opposed to NCGS! You would not have those deficiencies with NCGS because NCGS does not damage the villous lining of the small bowel. Of course, some or all of those deficiencies could be due to other medical conditions but the fact that you can't do gluten sure points to celiac disease. I do understand that you rely on the NSAIDs for pain control but they are also known to be hard on the gut and I wonder if it is the cause of the intermittent bleeding you mention. Concerning bariatric surgery for weight control, I have know a number of people who had that done and none of them were happy with it in the long run. It can create a number of other health/nutrition related problems and when you already are starting out with some significant preexisting medical issues I would be skeptical of it.

Seborrheic dermatitis can definitely be frustrating, especially when it causes itching and redness. You’re not alone—many people with celiac disease or gluten sensitivity also struggle with skin and scalp conditions, and some find that gluten exposure worsens inflammation. Have you noticed any connection between your diet and flare-ups? Some folks see improvement with gluten-free or anti-inflammatory diets, while others benefit from medicated shampoos (like those with ketoconazole or selenium sulfide). It might be worth tracking symptoms alongside your diet to see if there’s a pattern. Hope you find some relief soon.