Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If your biopsy ends up negative you still may want to go gluten-free for a few months to see if your symptoms go away. Also, be sure to eat tons of gluten daily in the 2 weeks leading up to your endoscopy, otherwise you could get false negative results.       

It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight.

Hi I finally visited with the Dr today and she ordered labs to be done. Not just for celiac disease but about 7 blood tests in total including iron levels. I’m 30 years old.  My symptoms are  -Chronic diarrhea. In the last month and I half I had it multiple times a day, everyday. Pretty often occurrences  before I really started paying attention.  -frequent headaches  -fatigue -had my appendix removed 1 year ago due to appendicitis (not sure if this is related) -frequent stomach rumbling and gas -sleep disturbances-waking up multiple times a night (3-5 times a night) -severe restless leg syndrome  -generally just don’t feel well on a daily basis -hands and feet get cold very easily tingly feet -anxiety/depression/mood swings/irritability . I take medication for bipolar disorder and anxiety but still have anxiety  -sometimes get acid reflux. And sometimes it’s really bad. Like wake up choking on vomit thinking I’m gonna die bad.  My son is 6 and has excema, is anemic, is on 2nd percentile for growth, gets constipated, and is at risk of having seizures… My Dad was diagnosed with ulcerative colitis as a kid 50 years ago, and has a non alcoholic fatty liver, is anemic, and is fatigued.    I’ll post my results as soon as I get them. To be honest I’m hoping it is celiac disease as it could explain so many things I’m dealing with. 

Welcome to the forum, @mariamccl! It is outrageous that you have to wait so long for a GI appointment! I assume you are in the UK from your use of "mum" for your mother. That is par for the course I understand in the current UK medical system. I am glad you went private concerning the camera. Will this also include a biopsy of the small bowel lining?

Hello Scott,   Yes I have done all that and I am eating chips and turtles, and  gluten free pasta. But still nothing. Why is that have little appetite?