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Symptoms after ingesting gluten

Juliana82
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Juliana82 Newbie
Juliana82
Posted

Does anyone have bleeding after eating gluten?

You can still have celiac disease with negative blood test results, although it's not very common: 

Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/ 

Seronegative Celiac Disease - A Challenging Case:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/ 

Enteropathies with villous atrophy but negative coeliac serology in adults: current issues:
https://pubmed.ncbi.nlm.nih.gov/34764141/ 

 

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trents Grand Master
trents
Posted
(edited)

Welcome to the forum @Juliana82!

Bleeding where?

Thanks for the articles on seronegative celiac disease. As I recall, one of our moderators is seronegative and has been faithful to draw our attention to this phenomenon at different times. The heterozygous factor seronegative celiac disease is an important factoid I believe.

Edited by trents
knitty kitty Grand Master
knitty kitty
Posted

@Juliana82,

Is the bleeding occurring when you throw up?  Or with bowel movements?  Constipation?  Is it bright red or black and tarry?  Anal fissures?  Crohn's or Colitis?  Alcohol consumption?  

Diabetes, Thiamine deficiency and anemia can cause false negatives.  Most diabetics are deficient in Thiamine.  Thiamine deficiency can also occur due to high calorie malnutrition, eating lots of carbohydrates but insufficient Thiamine from dietary sources.  

The Gluten-Free Diet for Celiac Disease: Critical Insights to Better Understand Clinical Outcomes

https://pmc.ncbi.nlm.nih.gov/articles/PMC10537989/

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    • trents
      Need Advice on Doctors

      By trents · Posted

      You got some bum steers my friend. I have little confidence that you can trust your test results as differentiating between NCGS and celiac disease. And I think you would be much more likely to have gotten that note you need if you had been diagnosed with celiac disease. But believe me, I understand the predicament you are in with regard to the risks of repeating the gluten challenge. We have heard this story many times on this forum. People experiment with the gluten free diet before getting an official diagnosis and then cannot tolerate the gluten challenge later on when they seek an official diagnosis.
    • Jason Hi
      Need Advice on Doctors

      By Jason Hi · Posted

      For the upper gastrointestinal endoscopy, they said 7 days of gluten. So I did 8...fast food and Krispy Kreme doughnuts. For the earlier blood test, the younger doctor said I didn't have to. My immune system went down, I was in the bathroom a lot, and as my wife said my brain wasn't braining.
    • ChrisSeth
      Waiting on Blood test results…

      By ChrisSeth · Posted

      Thanks guys. I just got my results but I don’t know what they mean…  celiac disease reflex panel Immunoglobulin A  normal range 66-433  my results are a score of 358. Is this normal? I have no idea what to make of it…
    • trents
      Need Advice on Doctors

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      How long was your gluten challenge? I hope it was longer than a week. If not, your testing was likely invalid. Recently upgraded guidelines call for the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) for at least two weeks prior to either the blood antibody test draw or the endoscopy/biopsy. And if you had been gluten free for all those years, you likely had lost any tolerance to gluten you may have had when consuming it regularly. That's probably why it was such a tough sledding experience. Before I was diagnosed, I had very minor GI symptoms. Now, after many years of being gluten free, I get violently ill for hours if I get a good slug of gluten, like when I got my wife's wheat biscuits mixed up with the gluten free ones she made me.
    • Jason Hi
      Need Advice on Doctors

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