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- trents replied to Sammy Web's topic in Related Issues & Disorders4Can anyone offer any advice/help please!
Sammy, I have doubts as to whether you were eating enough gluten to render any of the celiac testing you had done valid. Recently revised guidelines for pretest celiac blood antibody analysis is the daily consumption of at least 10 g of gluten (about the amount found in 4-6 slices of wheat bread) for at least 2 weeks before the blood draw. -
- Sammy Web replied to Sammy Web's topic in Related Issues & Disorders4Can anyone offer any advice/help please!
@cristiana Hello ! the first time I sent it off there was a failure and they needed to be redone , whilst I was waiting for this information I was off gluten, then I reintroduced it for a couple of days before going to have it tested again. But I had such a low score that the doctor said it would be quite unlikely to be celiac based off my results, even after... -
- cristiana replied to Sammy Web's topic in Related Issues & Disorders4Can anyone offer any advice/help please!
Hello @Sammy Web and welcome to the forum. Just one question - you say you pretty much cut out gluten and caffeine. Were you eating gluten when you had your coeliac blood test? Cristiana -
- Scott Adams replied to Sammy Web's topic in Related Issues & Disorders4Can anyone offer any advice/help please!
It sounds like you’ve been through quite a journey with your digestive health, and it’s great that you’ve been able to identify some triggers and make adjustments that have helped. Based on what you’ve described, it’s possible that gluten could still be playing a role in your symptoms, even if celiac disease has been ruled out. Non-celiac gluten sensitivi... -
- Sammy Web posted a topic in Related Issues & Disorders4
Can anyone offer any advice/help please!
Hello! I'll try and keep this short and to the point. I was diagnosed with ibs/gerd last year, I took omeprazole around 6 months ago and that knocked me about a bit/prolonged the issue. Happy to get off that. Whilst on omeprazole , I noticed I was sensitive to gluten/caffeine, I pretty much cut them both out completely and they helped my symptoms...
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Sammy, I have doubts as to whether you were eating enough gluten to render any of the celiac testing you had done valid. Recently revised guidelines for pretest celiac blood antibody analysis is the daily consumption of at least 10 g of gluten (about the amount found in 4-6 slices of wheat bread) for at least 2 weeks before the blood draw. -
@cristiana Hello ! the first time I sent it off there was a failure and they needed to be redone , whilst I was waiting for this information I was off gluten, then I reintroduced it for a couple of days before going to have it tested again. But I had such a low score that the doctor said it would be quite unlikely to be celiac based off my results, even after only eating for a few days. @Scott Adams thank you sir! I shall lay off the gluten for a few weeks and take it from there. I shall keep posted! Thanks again
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Hello @Sammy Web and welcome to the forum. Just one question - you say you pretty much cut out gluten and caffeine. Were you eating gluten when you had your coeliac blood test? Cristiana
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By Scott Adams · Posted
It sounds like you’ve been through quite a journey with your digestive health, and it’s great that you’ve been able to identify some triggers and make adjustments that have helped. Based on what you’ve described, it’s possible that gluten could still be playing a role in your symptoms, even if celiac disease has been ruled out. Non-celiac gluten sensitivity (NCGS) is a condition where individuals experience symptoms like bloating, brain fog, fatigue, and mood changes after consuming gluten, despite not having celiac disease or a wheat allergy. Your experience of brain fog, low mood, and reduced appetite after consuming gluten-heavy meals could align with NCGS, especially since you’ve noticed a pattern with toast, sandwiches, and other gluten-containing foods. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. That said, your symptoms could also be related to IBS or blood sugar fluctuations. Gluten-containing foods like bread can cause blood sugar spikes and crashes, which might explain the brain fog and low mood several hours after eating. Additionally, gluten can be harder to digest for some people, potentially triggering IBS symptoms like bloating or discomfort, which might indirectly affect your mood and energy levels. The fact that you feel better with whole grains and smaller amounts of gluten suggests you might have a threshold for tolerance, which is common in both NCGS and IBS. Since you’ve already made positive changes like cutting back on caffeine and incorporating whole grains, it might be worth experimenting further with a low-gluten or gluten-free diet for a few weeks to see if your symptoms improve. Keeping a food diary could help you track patterns and identify specific triggers. Additionally, ensuring you’re eating balanced meals with protein, healthy fats, and fiber (from non-gluten sources if needed) might help stabilize your blood sugar and reduce the brain fog. If the symptoms persist, consulting a dietitian or gastroenterologist could provide more personalized guidance. It’s also worth noting that stress and cortisol levels can exacerbate digestive issues and mood changes, so managing stress through relaxation techniques or mindfulness might help too. Hang in there—it’s a process, but you’re clearly on the right track by paying attention to your body’s signals! -
Hello! I'll try and keep this short and to the point. I was diagnosed with ibs/gerd last year, I took omeprazole around 6 months ago and that knocked me about a bit/prolonged the issue. Happy to get off that. Whilst on omeprazole , I noticed I was sensitive to gluten/caffeine, I pretty much cut them both out completely and they helped my symptoms a lot. On my stag do for example I couldn't drink lager it gave me incredible stomach pains and anxiety, but drinking cider I felt completely fine. I got tested for celiac disease but that came back negative. My own take was the last of stomach acid made it difficult for me to digest the gluten and the caffeine made my stomach acid which caused irritation. After the omeprazole (I took for I think 8 weeks) noticed I wasn't as sensitive to gluten or caffeine, however stuck to whole grains and tea and still to this day don't drink coffee (I used to drink 2-3 strong cups a day). And find whole grains easier to digest. I was also advised to start supplementing vitamin D because my levels were insufficient. I used a low dose spray over winter but stopped after a month or so because I felt like my energy levels were back to normal, after a few weeks I started to begin feeling tired again so recently started back up again, feeling better after day 4 so shall stick with that. However, recently I've been feeling like maybe I do still have a gluten intolerance, or whether it just triggers my ibs. I've began to notice after 5 or so hours after lunch, before tea (if I leave it too long), that I get a slight low mood and brain fog until I eat, I don't know whether this is normal, because 6 months prior I'd never experienced it, however I've recently noticed that it's much worse, (maybe only ever happens) on days when I have toast for breakfast or a sandwich for lunch, or both. Basically on days when I seem to over indulge in gluten. If I have porridge for breakfast and a wrap for lunch this seems to happen. I also notice that I have less of an appetite after I eat gluten, so I'm wondering whether it could be that and that I need to eat but haven't worked up an appetite yet. Could anybody offer any advice ? Could this just be ibs, cortisol increase/bread affecting blood sugar more, could it be gluten intolerance and it kicking in hours later, causing the brain fog? I seem to be fine with some gluten, but like I have a threshold potentially. if you can it will be wonderful, I'm very tired of going back and forth over the beliefs of my own body . Thank you!
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