Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

fed up italian


Sicilygirl

Recommended Posts

Sicilygirl Newbie

I am looking for words of encouragement because I have just had enough with this celiac diagnosis. I recently got diagnosed in October this year and its been hell let me tell you. Fist of all my doctor did not want to do the test saying that I was not Celiac because I did not have blood in my stool. Really??? I thankfully insisted that he do the blood work test just to make sure., since I was sick while in italy after eating both pasta and pizza and I knew something was wrong. I exhibited all the signs of gluten sensitivity, bloating and bad stomach pain which I never had ever after eating gluten.  After a week of waiting patiently for the test result it showed positive. I was both happy and floored at the same time. It has been an emotional roller coaster. Having to now work hard  to read labels constantly making sure they don't add gluten EVERYWHERE!! buying some comfort expensive gluten free foods to somehow make me feel like I am a normal person again. Hiring a dietician to put me on a diet to get my nutrients needed and to fix my villi that is destroyed. I feel sad, angry, depressed and why me?? is it an italian thing? I do not know. Anyways any feedback would be helpful. I am still extremely tired and have bowel symptoms and brain fog when do these go away?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Beverage Rising Star

Oh gosh. I remember being shocked when my new doc said he thought I had Celiacs (went in bcuz kidneys were failing, no intestinal issues), but relieved at first to find an explanation for my issues.  Then as I hit the library and the internet and read up on Celiacs, I got sooooo depressed and overwhelmed.  Funny you say "is it an italian thing?" ... I'm not Italian, but half Portuguese, so we're both full of fire.

I had to keep repeating in my head something my Mom used to say (she had been raped as a teen, got pregnant from it, forced to marry the bastid, he beat them, she finally got away, married my dad years later and had a wonderful life full of love and lots of laughing), she would say "it's not what happens to you in life, it's what you do with what happens to you in life, how you go forward"

So I finally accepted that this is what i have, everyone has something, and i will do what i have to do to get healthy and will probably end up living longer and better in the long run. 

Start with your home, clean the kitchen from top to bottom. Read the info here on what to keep and what to toss, food and cookware, body products, just go through everything one at a time. You will get better at reading labels, it will be second nature.  Eat more whole foods, meat and veggies.  I remember running every dish in my house through the dishwater on the super cycle. It was probably overkill, but I felt better.

You will make mistakes and have set backs, but you will prevail and the fire in your soul will get you through.  The people here are so supportive, never give up. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,465
    • Most Online (within 30 mins)
      7,748

    Newhere19
    Newest Member
    Newhere19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
    • Scott Adams
      Your experience sounds incredibly challenging and frustrating. It’s impressive that you’ve been so methodical in tracking your triggers and finding safe foods. While it may feel bizarre, sensitivities like these can sometimes point to underlying conditions like chemical sensitivities, histamine intolerance, or even specific food additives. Have you considered consulting with a functional medicine practitioner or allergist who might specialize in these types of issues? You’ve done a lot of the hard work already with your food diary, and that could provide valuable insights for a professional to help you further.
    • Scott Adams
      Welcome to the forum! The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
    • Dana Gilcrease
      I just found out that I have Celiac disease. I need help with determining what foods to eat.
    • Beverage
      Sounds like you're very careful with food.  Any possible airborne or non-eating exposures? One time I got really sick from feeding my neighbor's chickens, the feed would get kicked up and I'd inhale the dust, read the ingredients, yup gluten. Another time we were doing some home remodeling, removed some old plaster, probably gluten in that. Anything like that?  Anybody lip kissing gluten eaters?  Any contact with pets that are eating gluten?  Body products like shampoo and lotions? 
×
×
  • Create New...