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Anyone Else Experiencing These Symptoms?


Mantooth

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Mantooth Newbie

Hi everyone,

I’m currently in the process of figuring out if celiac disease might be the cause of some persistent symptoms I’ve been dealing with, and I’d love to hear from others who’ve had similar experiences. I’m not diagnosed yet, but these are the symptoms I’ve been struggling with:

Diarrhea

Constipation (sometimes alternating between the two)

Elevated Liver Enzymes - (dont know why)

Visual Snow syndrome (static vision)

Sandy stools or really skinny - (sorry for the TMI)

Muscle cramps and general soreness

Tingling in my hands and feet

Bloating that can feel really uncomfortable

Tiredness and extreme fatigue

SI joint pain and stiffness

Herniated disk and degenerative disk disease + stenosis. 

Ive been trying to figure out whats causing these symptoms for 8+ years and I believe its caused by Celiac. Ive had a blood test come back negative so my doctor immediatly writes it off now. Ive seen every type of specialist under the sun and no one can help me. Im currently on a gluten-free diet but have recently learned about reactive foods that can cause the same symptoms as well so im consistenly changing my diet to accomidate. Did anyone else have these symptoms before getting a diagnosis? 

Thank-you!


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nanny marley Rookie

Hello mantooth nice to meet you it's so uncanny what you wrote you sound just like me even the back issues are exactly the same and I'm new here too trying to find out if I have the same had I too have been struggling to find answers with my docters I don't have a diagnosis but I've been struggling like forever and was told ibs and health aniexty was my problem but on researching I've come to the conclusion it's probably more because i cut gluten and lactose out for 6 months and  it was a incredible change for me so although I can't help with diagnosis I can say your not alone in trying  to find answers 😊

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    • nanny marley
      Hello mantooth nice to meet you it's so uncanny what you wrote you sound just like me even the back issues are exactly the same and I'm new here too trying to find out if I have the same had I too have been struggling to find answers with my docters I don't have a diagnosis but I've been struggling like forever and was told ibs and health aniexty was my problem but on researching I've come to the conclusion it's probably more because i cut gluten and lactose out for 6 months and  it was a incredible change for me so although I can't help with diagnosis I can say your not alone in trying  to find answers 😊
    • nanny marley
      I call it the fish because I can't spell the other word at times 🤣 don't want to make myself look silly but yes I have this symbol on many items so nice to see it today wen I'm needing help  gives me faith I'm on the right track 
    • nanny marley
      Yes I have the fish symbol on my car and my ring 🙏 and yes I've been going for years to the docters but I got that feed up ov having to avoid eating out or even visiting people threw aniexty of needing the toilet or of gas or sickness I did some research of my own and I did the elimination diet and what a difference I've had my family think I'm nuts at times saying it's in my head it won't help until they now are doing it too because my daughter's are facing the same issues it's made me feel so ill at times it's so crazy how food can do this to you one night I was up 6 times to the point I had nothing left in my body I didn't go to the toilet for days after and I felt sick has a dog I'm so glad I found this forum I feel a little more human already 😄
    • trents
      Prolonged dehydration can cause kidney damage. How long has this been going on? Are you have diarrhea also? That's what the dyclomine is for I think.
    • nanny marley
      Can I also pick anyone brains of the symptoms I have fatigue body hair loss had low vitamin d for like forever jumpy legs Renaud's contact dermatitis rhinitis body aches tmj heart palpitations I have regular hair loss sleep issues sickness dizziness also with my bowel issues are these any signs of this too because all I've ever been told by my doctors is that I have severe IBS  and health aniexty I've had inflammation flagged up before in blood tests but I have 3 herniated discs and a trapped sciatic nerve so they have put it down to that every time but I've been struggling with my bowels for years and it's got worse had Ive got older and Wen I cut the gluten out it was like omg what a difference then I did the lactose and it was  even better but I still have a few issues going on too so I'm thinking on the lines I could have this any help be appreciated because my docters are terrible 🙏
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