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My son newly diagnosed

Nicola McGuire
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Nicola McGuire Newbie
Nicola McGuire
Posted

It’s quite overwhelming receiving diagnosis my son is 14 should I have had an apt for him to discuss food etc ? I have read up a bit but have lots of questions re cross contamination 

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trents Grand Master
trents
Posted

Welcome to the forum, @Nicola McGuire!

An appointment with a dietician might be helpful. In the meantime, this article might get you off to a good start:

It is easy to eliminate major sources of gluten in the diet but to arrive at a consistently "gluten-free" state is much more challenging. There is a real learning curve involved and part of that is just experience. In time, you and your son will develop a sixth sense of where gluten might be hiding as you shop for food and eat out. Eating out is the biggest challenge. You will make mistakes so give yourselves some grace. It is important that your son take ownership of this new health reality as you cannot be with him 24/7.

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Scott Adams Grand Master
Scott Adams
Posted
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Welcome to the forum, the biggest source of cross-contamination would be eating our in restaurants--even ones that have a gluten-free menu. If your son was just recently diagnosed I'd recommend trying not to eat out during his healing period, which could last up to a year or more, depending on how much villi damage he had.

Nicola McGuire Newbie
Nicola McGuire
Posted
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Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 

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    • thejayland10
      Recent blood test results check in - TTG- IGA

      By thejayland10 · Posted

      Thank you for the response and info! You are right, I do not know if they are fluctuating, what I should have said was is this sort of test normal and common for celiacs who are even on a gluten-free diet?  I was very surprised to see these results as I am very careful and only eat out at dedicated gluten-free places or make food at home with gluten-free products.  For IGA my lab said 325 was the upper end of the reference range but Google had others saying 400-420.   I am in my mid twenties now so the original diagnosis was some time ago. I wonder if certain things I feel are related to celiac or just normal stress in life now with these elevated numbers   
    • trents
      Oats gluten free?

      By trents · Posted

      Welcome to the forum, @PA Painter! Are the oats you are using either gluten free or GFCO certified gluten free? It is not well-known but there are certain cultivars of oats that contain gluten. If you are using mainstream food industry oat brands there are two threats: 1. cross contamination from other grains containing gluten in the fields, in transport, in storage, in processing, etc. and 2. that gluten-containing cultivars of wheat were used. And, yes, sensitivity levels can change over time.
    • trents
      Recent blood test results check in - TTG- IGA

      By trents · Posted

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