Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question


VinnieVan

Recommended Posts

VinnieVan Newbie

Hi, brand new here! When I was a baby, I was nursed exclusively until I was 10mo old. My mother introduced a few foods, some of which had gluten. I became very ill and she had no idea why. The doctor she took me to told her I had “Anglo Saxon disease and could not eat any gluten.” He also told her I would likely never walk and not develop normally. I’m 71, very healthy and I walk!! Has anyone ever heard celiac called that? I never eat gluten. If some slips by me, I know within a few minutes. It’s horrible, as all of you know! Anyway, thank you for letting me be here! Let me know if anyone else has ever heard celiac disease called Anglo Saxon disease! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Welcome to the forum, @VinnieVan!

No, never heard it called that. What was the physician's racial/ethnic profile? IIRC, The connection between gluten and celiac disease was made during the WW2 era in Holland when the Germans blockaded a region along the Rhine River and the local populace did not have access to wheat flour. A local physician began to notice that some of his patients who had always been unexplainably sickly began to thrive. That's a pretty "white" area. Also, for many years, it was thought that celiac disease was largely confined to those of European descent but we know better now. That likely was a product of what people groups had access to healthcare rather than some ethnic/racial phenomenon. As healthcare has become available on a more worldwide basis we have seen that celiac disease is certainly not confined to those of European ancestry. It has become very common in India, for instance.

VinnieVan Newbie

Thank you for your response, Trents. I was only 10mo old at the time, so I don’t know anything about the doctor other than he was in Portland, Oregon. I assume, given it was 1954, that he was white, but I can’t be sure. We didn’t live in Oregon. Having this “issue” was never a big deal as I remember. As an older child, teen and young adult, I ate some breads - rye, sourdough, spelt. No pasta, baked goods, pizza or breaded meats. That said, I was extraordinarily thin. Since my 20’s I’ve been totally gluten free, so nearly 50 years. I am very cautious and eat really well. Are you a celiac? How has it been for you?  Again, thank you for responding. 

trents Grand Master
(edited)

I am a celiac, officially diagnosed almost 25 years ago but I have laboratory evidence that the onset was at least 13 years prior to that when my liver enzymes became mildly but persistently elevated and there was no other explanation. My GI symptoms were relatively minor and back then they were only looking for classic GI symptoms when considering a diagnosis of celiac disease. My PCP said, "I don't know why your liver enzymes are elevated. Maybe that's just the way you are." Well, that wasn't a good enough answer and the liver is a pretty important organ so I took it upon myself to schedule a GI consult. I should mention that my iron stores were also beginning to drop out of normal range and some other labs were getting out of whack. At the time I was employed as a chaplain by a healthcare system and part of my benefit package was annual CBCs and CMPs so it was easy for me to track lab values. Right away the GI doc tested me for celiac disease and I was positive. But by the time I got diagnosed at age 50 or so and started the gluten free diet I had developed osteopenia and kyphosis of the upper spine. Within three months of going gluten free my liver enzymes had normalized. But it was too late for the bones and my total protein and albumin continue a little below normal. Not sure what that's about.

I see from the bio summary below your avatar that you are in Virginia. That is where I was born and raised.

Edited by trents
Scott Adams Grand Master
13 hours ago, VinnieVan said:

Hi, brand new here! When I was a baby, I was nursed exclusively until I was 10mo old. My mother introduced a few foods, some of which had gluten. I became very ill and she had no idea why. The doctor she took me to told her I had “Anglo Saxon disease and could not eat any gluten.” He also told her I would likely never walk and not develop normally. I’m 71, very healthy and I walk!! Has anyone ever heard celiac called that? I never eat gluten. If some slips by me, I know within a few minutes. It’s horrible, as all of you know! Anyway, thank you for letting me be here! Let me know if anyone else has ever heard celiac disease called Anglo Saxon disease! 

Yes, in the mid-20th century, including the 1950s, some doctors and researchers referred to celiac disease as a condition primarily affecting people of European, particularly Northern European, descent. The term "Anglo-Saxon disease" was sometimes used in medical literature and discussions to describe celiac disease, based on the observation that it appeared to be more prevalent among people of Anglo-Saxon ancestry compared to other populations.

This terminology stemmed from early epidemiological studies suggesting that celiac disease was more common in individuals of Northern European descent, while being less frequently diagnosed in other ethnic groups. However, this was likely due to differences in genetic predisposition (such as the prevalence of HLA-DQ2 and HLA-DQ8 genes), dietary habits, and diagnostic awareness rather than an absolute racial or ethnic exclusivity.

While the term "Anglo-Saxon disease" is outdated and no longer used, historical references to it can be found in older medical texts and discussions about the geographic and genetic distribution of celiac disease. 

VinnieVan Newbie

Thank you so much! This is helpful, just to know. Over the years, I’ve seen the scope and understanding of the disease broaden. In some ways, I think it’s remarkable a doctor in Oregon way back then could diagnose a baby he’d never met so quickly. I wish I’d asked more questions!! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,741
    • Most Online (within 30 mins)
      7,748

    wstprkprincess
    Newest Member
    wstprkprincess
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      71.2k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • FayeBr
      Hi. It has been a while since I have been Glutened but I have had reactions to soy in the last year. But yesterday I ate 3 crisps that stated it contained just dehydrated sweet potatoes. They are not certified gluten free but I thought they would be safe. Immediately I felt like they were stuck in my throat and I had acid reflux with indigestion. I had breathing problems too. Brain fog then followed and I have today got all the aches and pains, tinnitus, nausea, sickness, D, low mood, weakness and neuro symptoms. My question is does anyone else have an instant severe reaction like this to gluten. I used to have a period of 12/24 hours before having symptoms. This was quite a shock to be so severe and come in so quickly. Thank you 
    • Ashley Marie
      I have celiacs disease,  and am highly allergic to gluten. I ate Sweet Baby Ray's Original Barbecue Sauce throughout the last couple of days and have more than 10 canker sores in my mouth which is only gluten does that to me. As well as major belly pains ect. There must be trace amounts in my opionion. Which sux, cuz I love the stuff. But it just isn't worth the allergic reactions. I have celiacs disease,  and am highly allergic to gluten. I ate Sweet Baby Ray's Original Barbecue Sauce throughout the last couple of days and have more than 10 canker sores in my mouth which is only gluten does that to me. As well as major belly pains ect. There must be trace amounts in my opionion. Which sux, cuz I love the stuff. But it just isn't worth the allergic reactions. I have celiacs disease,  and am highly allergic to gluten. I ate Sweet Baby Ray's Original Barbecue Sauce throughout the last couple of days and have more than 10 canker sores in my mouth which is only gluten does that to me. As well as major belly pains ect. There must be trace amounts in my opionion. Which sux, cuz I love the stuff. But it just isn't worth the allergic reactions. I have celiacs disease,  and am highly allergic to gluten. I ate Sweet Baby Ray's Original Barbecue Sauce throughout the last couple of days and have more than 10 canker sores in my mouth which is only gluten does that to me. As well as major belly pains ect. There must be trace amounts in my opionion. Which sux, cuz I love the stuff. But it just isn't worth the allergic reactions. I have celiacs disease,  and am highly allergic to gluten. I ate Sweet Baby Ray's Original Barbecue Sauce throughout the last couple of days and have more than 10 canker sores in my mouth which is only gluten does that to me. As well as major belly pains ect. There must be trace amounts in my opionion. Which sux, cuz I love the stuff. But it just isn't worth the allergic reactions.
    • Ashley Marie
      I too seem to have a reaction. I have about 10 canker sores in my mouth rn from it and J only get that reaction with glute . I have celiacs disease and am extremely allergic. I don't understand, when this is supposed to be a gliten free product. 
    • CelluloseSick
    • cristiana
      Hi @CarolTN I haven't been diagnosed with seborrheic dermatitis but as @Scott Adams says, like a lot of coeliacs I do suffer from itchy skin, and now adult onset eczema. The latter started during one of the lockdowns.  I find my skin is often itchy if the temperature changes from hot to cold or cold to hot, that seems to set it off. This time of year is bad,  I also get an itchy throat, so maybe pollen is having some effect. I am not sure where you live but here I'm mentioning the products I buy in the UK that help me - they may be available where you live? For my scalp, I have used with some success Neutrogena T-Gel, but I think Philp Kingsley's products for flakey, itchy scalps are amazing. I've used the shampoo and the toner. For the rest of my skin, I use something called Adex Gel after I have showered, and then any really itchy patches I treat with Betnovate, a steroid cream, 20 minutes later, as suggested by a doctor. I currently have some very stubborn patches around my waist, no idea what they are - Canesten anti-fungal cream makes them worse, so does Betnovate.  But when I rub the patches, they disappear, i.e. blanch, which apparently classic for dermatitis.  It's a constant challenge! When I first got eczema I had given up chocolate and was eating cakes which contained almonds.  My blood tests showed the markers for eczema were elevated at that time - the  IgE.  I felt there might be a connection. So you  may find something in your diet isn't helping the situation, other than gluten? Cristiana      
×
×
  • Create New...