Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Support Here


gf4life

Recommended Posts

gf4life Enthusiast

Is there anyone here who would consider being my gluten free/dairy (casein) free online buddy. I need support for it because my kids are not planning on being dairy free again anytime in the future and so the cheese/ice cream/milk will still be in the house. So far I haven't been able to stick to it. I reduced my consumption, but have not stuck to eliminating it altogether.

When I was off dairy for over a year I felt great and lost over 25 lbs. I went back on dairy slowly and felt fine with it for about 6 months. Then my health started slowly going downhill and my weight started to creep back up! I have now gained back about 20lbs. :( I really need to lose about 50-60 lbs to be at my ideal weight. I was so happy to have been about half way there.

I just really need someone who will support me. Someone who will check in with me every few days and see how I am doing, who will listen to me rant about how crazy it is making me to not be able to eat cheese (the only thing I cannot replace with a good substitute), and who will yell at me (loud enough to be heard through the computer!) if I feel like giving up and just dealing with the reduced health and excess weight...

Please PM or email me if you are willing to help. If you are in the same boat as me I would be more than happy to support you back! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornbread Explorer

Hi gf4life,

I hope you found a casein-free support buddy! I would offer to help but I have such an awful reaction to casein (exactly like my gluten reaction - knocks me out for 10+ days) that I had NO problem at all giving it up! It's a double-edged sword I guess - I have zero urge to 'cheat' because those foods to me now seem like poison, but then again I can very easily get sick from the most minute amount of the 6 food groups I react to, that I can no longer eat out. I miss that aspect of my life more than the foods themselves. And I miss coffee and wine (yeast allergy) MUCH more than cheese!

I also couldn't find a good cheese substitute because I'm also allergic to soy, which is in all the casein-free fake cheeses. I just try and focus on the good stuff I CAN eat, and on how great not feeling sick all the time feels. Cheese is tasty, but I ask myself what would I miss more, cheese or strawberries? Cheese or (dairy-free/soy-free) chocolate? It makes me thankful for the delicious stuff I still can eat. And more than that, thankful for my health, at last. :)

gf4life Enthusiast

Yes I did find some support "buddies".

I am on my 4th day now Gluten-free Casein-free. I am doing fine. My belly is quiet again.

Today for lunch I had chicken tacos with avocado instead of cheese. It is a similar texture to melted cheese and so it fits the bill for most foods, except italian. Pasta and pizza are just not the same without cheese. I can do pizza with lots of toppings and not miss the cheese too much, but I can't eat it that way very often. What do I use to substitute cheese in lasagna??

Anyhow, I know what you mean about the soy cheese. It doesn't taste very good anyhow, but I am also allergic to soy. The first time I had the soy cheese I just had a little and took some benadryl. I still got itchy and had to take more. The second time I had some soy cheese I had problems breathing and figured I shouldn't try it a third time or else I might have a worse reaction! I took my soy allergy a lot more serious after that experience. :blink:

Guest jhmom

Hi Mariann,

Good to hear from you, I haven't seen you in awhile! I am glad you have found a CF buddy to help you through this, I know it must be hard! Take care :)

gf4life Enthusiast
Good to hear from you, I haven't seen you in awhile!

Hi Stacie,

I was just thinking the same about you. I've been here, but just not having the time to post very often. It has been crazy this year.

I'm doing well on the Gluten-free Casein-free diet. This is the first week in the past 6 months that my tummy has been calm and I haven't hardly needed the digestive enzymes. I do miss cheese the most, and it is taking a lot of thought to get through each meal, but I am getting there. There is just so much in the house with dairy in it...

Hope all is well for you.

God bless you.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,193
    • Most Online (within 30 mins)
      7,748

    Jodidodd
    Newest Member
    Jodidodd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • WednesdayAddams13
      Hello,   I contacted the makers of Alpine Original Spiced Cider Drink Mix and they sent me this email.....   Subject: [EXTERNAL] Fw: Ref. ID:1335211 Alpine Original Spiced Cider Drink Mix.               On Friday, December 6, 2024, 1:04 PM, Consumer <baking@continentalmills.com> wrote: December 06, 2024   Dear Janie, Thank you for taking the time to contact us regarding our Alpine Original Spiced Cider Drink Mix. We appreciate your interest and are happy to provide you with additional information. This product does not contain gluten. However, it is not manufactured in a gluten free facility. If I can be of further help, please contact me at 1 (800) 457-7744, weekdays 7:00 a.m. to 4:00 p.m. (PT), or visit www.alpinecider.com and select "Contact Us." Sincerely, Kristin Kristin Consumer Relations Specialist Ref # 1335211   I hope this helps everyone.  I am currently looking for a spiced hot apple cider drink and have yet to find one that is not made in a plant that manufactures other gluten products.  It's so frustrating. 
    • trents
      @Rogol72, dermatitis herpetiformis occurs in a minority of celiac patients and if the OP hasn't developed it yet I doubt it will show up in the future. I think it unwise to use a scare tactic that probably won't materialize in the OP's experience. It has a good chance of backfiring and having the opposite effect.
    • Rogol72
      Hi @trents, You're correct. The OP mentioned fatigue and vitamin deficiencies as the only symptoms at the time of diagnosis. Since the family are not taking him/her seriously and find them to be too fussy, I suggested showing them pictures of dermatitis herpetiformis as one of the consequences of not taking the gluten-free diet seriously ... would make life easier for him/her, and the family might begin to take his/her strict gluten-free diet more seriously. A picture says a thousand words and the shock factor of dermatitis herpetiformis blisters might have the desired effect. The OP did say ... "How do you deal with people close to you who just refuse to understand? Are there any resources anyone could recommend for families that are short and easy to read?".  @sillyyak52, It might also help mentioning to your family that Coeliac Disease is genetic and runs in families. Any one of them could develop it in the future if they have the HLA DQ 2.5 gene. Here's a Mayo Clinic study calling for screening of family members of Coeliacs ... https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-celiac-disease-screening-for-family-members/ https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-study-calls-for-screening-of-family-members-of-celiac-disease-patients/ I got glutened a few months ago because I missed the may contains statement on a tub of red pesto. It was my own fault but it happens.
    • peg
      Thank you, Scott!  This is just what I needed.  Appreciate your site very much and all of your time and energy that goes into it! Kind Regards, Peg
    • Hopeful1950
      Oh yes.  I would never recommend taking it for an extended period of time.  When 70% of my body was covered in blistering itchy sores, an amazing doctor prescribed it diagnostically because I was unwilling to do a gluten challenge after already going strictly gluten-free in desperation after 10 years of suffering and being poo pooed by dermatologist after dermatologist. The fact that it stopped the itch and mostly cleared the rash after about 2 months was diagnostic for him.  I stopped it and have remained strictly gluten-free with very few flares since that time (over 10 years ago).  So the fact that it cleared the rash was diagnostic for me.     
×
×
  • Create New...