Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Documentary


Rlpaulproductions

Recommended Posts

Rlpaulproductions Newbie

I am an independent public radio documentary producer and I am producing a documentary portraying the human face of Celiac Disease. The program, titled "Gut Reaction," will air on the national public radio documentary series "Soundprint" later this year.

What I need from you are your personal life stories (more details shortly). Please email me directly at rlpaulproductions@starpower.net

The program has two purposes. First, it will explain to that vast portion of the American public that has never heard or celiac what the disease is, how widespread it is, and that many of the people who are listening have the disease and do not know it or have the disease and have been diagnosed with something else. Second (and equally important), the program will tell its story -- of pain, discomfort, confusion, frustration, embarrassment, discovery, recovery and endurance -- in the voices of actual celiac sufferers. This approach will make the massage personal and take it out of the abstract realm which can be dismissed as something that is a problem of "other people."

I want to be very specific about what I'm looking for so please read this next part carefully.

I am looking for adults who learned they had celiac as adults -- people who suffered all their lives until they found out that they had celiac. I would like to hear from people who went to various doctors over the years and were given various diagnoses other than celiac, or were told "We just don't know what's wrong with you." I will want to ask you about your symptoms and the impact they have had on the way you have lived your life. So I need you to think hard about how comfortable you will be talking about embarrassing life experiences that were caused by your celiac and expressing your embarrassment and emotional pain, as well as your physical pain. I am looking for people who are good storytellers and who have an interesting story to tell. That's what will be most important in conveying the information that I will want to get out through this program.

This is a journalistic endeavor. Therefore no one will be paid to appear in this program, but you can imagine the good you will be doing by informing other people who are currently as in-the-dark as you were before you were diagnosed.

Please write me your story in the most engaging way you can, including as much detail as you think I need to know. Again, please send it to me directly at my email address - rlpaulproductions@starpower.net

If I select your story, I will need to contact you (please tell me a way to do that) and get you to a radio station to record your story. Unless you live near Washington, DC in which case I will ask you to come to my studio to tell your story.

For the last thing I'm going to write here, I ask the indulgence of the list manager. I do not mean this to be promotional.

For an example of the impact this storytelling approach can have, please listen to my documentary "We Were On Duty," about the survivors of the 9/11 attack on the Pentagon. You can hear it in the "Documentaries" section of my website -- Open Original Shared Link

Looking forward to hearing from you,

Richard Paul

rlpaulproductions, LLC

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,769
    • Most Online (within 30 mins)
      7,748

    CeliacMama3
    Newest Member
    CeliacMama3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
    • Bebee
      I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out).  I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately.  What treatment is suggested to help with rosacea?  I would like to know too if there is a test for celiac if you have been gluten-free?   Thank you, Barb    
    • bluebird2032
      Gluten free/ non dairy , low calorie pudding ideas please?
    • K6315
      Well, that's interesting. I am lactose intolerant and have been managing that for years. I'd be interested in seeing if that changes once I feel better from not eating gluten (one thing at a time for now, though). Helpful to hear about the avenin. I will do some digging and pose that to the dietitian. Grateful for your feedback.
×
×
  • Create New...